Informal caregiver motivations, values, challenges and gains: A photovoice and interpretative phenomenological analysis of interrelationships

Abstract

The adoption of a caregiving role in the context of illness and disability is often taken for granted. This study explores caregivers’ motivations to provide care and how these relate to values, and to the challenges and gains of caregiving. Eight semi-structured interviews were conducted with caregivers and photographs were taken by caregivers to exemplify their caregiving experiences. This photo-elicitation method complemented the use of Interpretative Phenomenological Analysis when applied to verbatim transcripts. Superordinate themes included: caregiver’s life story; significance of family; caregiving obligations; caring relationship; challenges and gains associated with caregiver motivations. Intrinsic and extrinsic motivations were less distinct in caregivers’ lived experiences than previously suggested, and were influenced by family values and specific challenges and gains of caregiving. The coexistence of different motivations and the nature of single complex motivations is discussed. The importance of caregiver assessment and support planning, and regular breaks from caregiving are highlighted.

Exploring the Support and Involvement of Family Caregivers for Reablement Programs: A Qualitative Study

“…This finding is in line with previous research showing that family caregivers experience more burden, if they do not have a choice in the amount of involvement. 58 , 59 It is also important that caregivers have someone they can turn to; however, this is often overlooked, so it would be beneficial to appoint a team member as single point of contact for the family caregiver for emotional support. 14 To build a family–staff relationship, it is important that care professionals possess the right competencies and skills, eg being empathic, showing interest, etc.…”

A comparative analysis of motivational techniques in public and private schools: Implications for secondary education

“…The literature provides various theoretical viewpoints on motivation and its effectiveness to attain desired outcomes (Zarzycki et al., 2023). Different perspectives from academics and researchers on the nature and types of motivation, its impact on different aspects of human behaviour and its critical importance for students' learning outcomes and academic performance are present in the literature (Korpershoek et al., 2020).…”