Influencing factors when living with Parkinson’s disease: A cross‐sectional study

Abstract

Aims and objectives: To identify the personal-and disease-related factors that are associated with living with Parkinson's disease. Background: Living with Parkinson's disease affects the physical, psychological, social and spiritual areas of the person. Health professionals need to know which factors influence the daily living with Parkinson's disease, in order to facilitate a positive living. Design: A multicentre cross-sectional study. Methods: A total of 324 patients with Parkinson's disease diagnoses were included in the study through a consecutive case sampling. Data were collected from January-June 2015, in specialised units of movement disorders of public and private and community centres, from Spain, Argentina, Mexico, Ecuador and Cuba. Nine measures were applied to evaluate personal-related factors (age, gender, psychosocial function, satisfaction with life, social support, home economical situation) and Parkinson's disease-related factors (duration of disease, motor symptoms and non-motor symptoms). The STROBE checklist was used to ensure quality reporting during the study (see File S1). Multiple linear regression analysis was carried out. Results: Results indicated that social support, followed by satisfaction with life and home economical situation are the only three factors that significantly influence in living with Parkinson's disease. The rest of the factors analysed did not present significant influence in the daily living with this neurodegenerative disease. Conclusion: This study highlights the necessity to put more emphasis on the person and his/her daily living with the condition and less on symptoms and treatment. Health professionals need to develop person-centred interventions that also deal with other elements of the experience of living with a long-term condition like Parkinson's disease. Relevance to clinical practice: Interventions to foster positive living with Parkinson's disease in clinical practice should integrate strategies to tackle and prevent loneliness and interagency elements to increase community resources and systems of support.

Validation of Living with Chronic Illness Scale in a Type 2 Diabetes Mellitus population

“…On the other hand, many patients believe their healthcare is not su ciently individualised [49]. Prior analyses of patients with Parkinson's disease have shown that social support, followed by satisfaction with life and by socioeconomic status, are the only factors relevant to the patient's coexistence with the disease [50]. If these factors were equally in uential with respect to T2DM, we would be facing a scenario in which social factors exerted signi cant in uence on health conditions and should be taken into account when socio-health policies are designed and applied.…”

Rasch analysis of the living with chronic illness scale in Parkinson’s disease

“…It is a complex and disabling disorder manifested through a combination of motor and non-motor symptoms that generate an important impact on the daily living [ 2 ]. Throughout the PD course, patients do not only experience a progressive intensification of symptoms, but also have to deal and cope with an increasing limitation in all areas of their day to day, as a consequence of the disease [ 3 , 4 ]. Several studies show that living with PD affects the patients’ physical state together with other essential aspects in their lives, such as the psychological, social and spiritual ones [ 5 , 6 ].…”

Living with Chronic Illness Scale: Validation in a Type 2 Diabetes Mellitus Population

“…On the other hand, many patients believe their healthcare is not su ciently individualised [47]. Prior analyses of patients with Parkinson's disease have shown that social support, followed by satisfaction with life and by socioeconomic status, are the only factors relevant to the patient's coexistence with the disease [48]. If these factors were equally in uential with respect to T2DM, we would be facing a scenario in which social factors exerted signi cant in uence on health conditions and should be taken into account when socio-health policies are designed and applied.…”