Influencia de la estimulación cerebral profunda en la carga de cuidadores de pacientes con enfermedad de Parkinson

Crespo-Burillo, J.A.; Rivero-Celada, David; Cabezón, A. Saenz-de; Casado-Pellejero, J.; Alberdi-Viñas, Juan; Alarcia-Alejos, R.

doi:10.1016/j.nrl.2016.05.017

Cited by 14 publications

(3 citation statements)

References 20 publications

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“…19,20 This evidence was in line with the conclusions of another recent trial showing that treatment with DBS was not associated with a lower caregiver burden compared to treatment with other antiparkinsonian therapies. 21 Moreover, few data on the effect of apomorphine on caregiver burden are available. 18 In our previous report of the results from the PREDICT study, whose aim was to describe the burden of carers of advanced PD patients either treated with CSAI, LCIG, or continuing with their CU, we showed that caregiver burden tended to be lower when patients were treated with LCIG than with CU.…”

Section: Introductionmentioning

confidence: 99%

<p>Impact of Supporting People with Advanced Parkinson’s Disease on Carer’s Quality of Life and Burden</p>

Modugno¹,

Antonini²,

Tessitore³

et al. 2020

NDT

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The aim of this study was to assess the burden and the quality of life (QoL) perceived by caregivers assisting advanced Parkinson's disease (PD) patients. Patients and Methods: Consecutive advanced PD patients treated with levodopa/carbidopa intestinal gel (LCIG) or continuous subcutaneous apomorphine infusion (CSAI) or care as usual (CU) and their care partners were recruited during routine visits according to a cross-sectional design. Caregiver's distress was assessed by Zarit Burden Interview (ZBI) and a QoL survey to evaluate and understand the burden experienced by care partners during family and working activities. Results: A total of 126 patients (53 LCIG, 19 CSAI and 54 CU) and their care partners were enrolled. The ZBI score boxplot showed that LCIG and CU populations have a similar distribution (ZBI inter-quartile range [IQR] values respectively 18-42 for LCIG and 19-43 for CU group), while the CSAI group has a wider score range (IQR 16-52). Caregivers assisting patients in treatment with LCIG have more time to perform family or household duties (p=0.0022), or to engage in leisure activities (p=0.0073) compared to CU, while no difference was found when compared to CSAI group. Approximately 50% of the care partners showed mood changes in the last 6 months and LCIG and CSAI had less impact on caregiver's mood compared to CU. Patients treated with LCIG were more independent in taking a bath or shower without assistance and were more able to move and walk without assistance. Conclusion: Care partners of advanced PD patients treated with device-aided therapies have more time for their own life and a better perception of their QoL with a tendency to an improvement of mood compared with those of patients treated with CU.

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Section: Introductionmentioning

confidence: 99%

<p>Impact of Supporting People with Advanced Parkinson’s Disease on Carer’s Quality of Life and Burden</p>

Modugno¹,

Antonini²,

Tessitore³

et al. 2020

NDT

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“…Por lo antes mencionado, la calidad de vida en cuidadores de pacientes con EP presenta mayor relación de sobrecargaansiedad al ser alterados ejes económicos, emocionales y sociales 34 , siendo necesaria la intervención psicoterapéutica para mejorar las alteraciones en la calidad de vida de ambas partes 35 . Genç y col., en su estudio mencionado con anterioridad demostraron que un 40-50 % del binomio presentaban síntomas depresivos asociados a síntomas no motores y eran incrementados por la fatiga, acrecentando a su vez la dependencia.…”

Section: Calidad De Vida De Los Cuidadoresunclassified

Terapia de rehabilitación cognitiva, calidad de vida de pacientes con enfermedad de Parkinson y cuidadores.

Jiménez¹,

Ramírez

Romero

2021

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La enfermedad de Parkinson es la segunda patología neurodegenerativa más recurrente, progresiva y crónica que perjudica a pacientes y cuidadores. Es fundamental describir la calidad de vida en pacientes y cuidadores posterior a la terapia de rehabilitación cognitiva. Por ello se elaboró un artículo de revisión mediante una búsqueda en bases de datos, PubMed, Google Scholar, SciELO, empleando artículos originales, ensayos clínicos, de revisión, entre otros, publicados en los últimos cinco años en español e inglés. El deterioro cognitivo en los pacientes de forma prematura conlleva a mayor riesgo de demencia, que se manifiesta con repercusión en las actividades de la vida diaria, como en la calidad de vida pacientecuidador. Mientras más avanzado se encuentre el estadio de la enfermedad, los pacientes con deterioro cognitivo generan mayor dependencia de sus cuidadores, empeorando la calidad de vida de ambos. La terapia de rehabilitación cognitiva pretende mejorar la calidad de vida de pacientes con enfermedad de Parkinson y sus cuidadores; actualmente se describen terapias de rehabilitación cognitiva basada en ejercicio físico. Al fortalecer la cognición mediante terapias de rehabilitación basadas en actividad física, el paciente presenta mayor independencia, lo cual disminuye la carga del cuidador, generandomayor empatía entre ambos.

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“…The quality of life of patients with PD decreases considerably due to changes in both motor and non-motor functions. The resulting functional disability places a considerable physical and mental burden on family members and caregivers [ 5 ]. The clinical manifestations of PD are characterized by slow movements, resting tremor and rigidity, together with non-motor manifestations.…”

Section: Introductionmentioning

confidence: 99%

Non-Immersive Virtual Reality to Improve Balance and Reduce Risk of Falls in People Diagnosed with Parkinson’s Disease: A Systematic Review

et al. 2021

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(1) Objective: To evaluate the effectiveness of non-immersive virtual reality in reducing falls and improving balance in patients diagnosed with Parkinson’s disease. (2) Methods: The following databases were searched: PUBMED, PEDro, Scielo, CINAHL, Web of Science, Dialnet, Scopus and MEDLINE. These databases were searched for randomized controlled trials published using relevant keywords in various combinations. The methodological quality of the articles was evaluated using the PEDro scale. (3) Results: A total of 10 studies with a total of 537 subjects, 58.7% of which (n = 315) were men, have been included in the review. The age of the participants in these studies ranged between 55 and 80 years. Each session lasted between 30 and 75 min, and the interventions lasted between 5 and 12 weeks. These studies showed that non-immersive virtual reality is effective in reducing the number of falls and improving both static and dynamic balance in patients diagnosed with Parkinson’s disease. Results after non-immersive virtual reality intervention showed an improvement in balance and a decrease in the number and the risk of falls. However, no significant differences were found between the intervention groups and the control groups for all the included studies regarding balance. (4) Conclusions: There is evidence that non-immersive virtual reality can improve balance and reduce the risk and number of falls, being therefore beneficial for people diagnosed with Parkinson’s disease.

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Influencia de la estimulación cerebral profunda en la carga de cuidadores de pacientes con enfermedad de Parkinson

Abstract: According to our results, treatment with DBS is not associated with lower caregiver burden. Apathy in patients and anxiety in caregivers are factors associated with the appearance of overload.

Cited by 14 publications

References 20 publications

<p>Impact of Supporting People with Advanced Parkinson’s Disease on Carer’s Quality of Life and Burden</p>

<p>Impact of Supporting People with Advanced Parkinson’s Disease on Carer’s Quality of Life and Burden</p>

Terapia de rehabilitación cognitiva, calidad de vida de pacientes con enfermedad de Parkinson y cuidadores.

Non-Immersive Virtual Reality to Improve Balance and Reduce Risk of Falls in People Diagnosed with Parkinson’s Disease: A Systematic Review

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