Influence of coping skills on health‐related quality of life in patients with systemic lupus erythematosus

Rinaldi, S.; Ghisi, Marta; Iaccarino, Leonardo; Zampieri, Sandra; Ghirardello, Anna; Sarzi-Puttini, Piercarlo; Ronconi, Lucia; Perini, Giulia; Todesco, S; Sanavio, Ezio; Doria, Andrea

doi:10.1002/art.21993

Cited by 42 publications

(40 citation statements)

References 29 publications

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“…Similarly, another study (Rinaldi et al, 2006) found that patients with sle used mostly strategies such as acceptance and turning to religion, and less strategies such as planning, suppression of competing activities, restraint coping, focusing on and venting of emotion, along with strategies focused on the problem, compared with healthy controls.…”

Section: Copingmentioning

confidence: 86%

“…Although most studies agree that there are no adaptive or maladaptive strategies, the suitability of these depend on the situation that must be coped with (Rinaldi et al, 2006). The active coping is considered the best predictor of qol preservation in both the active and inactive phase of the disease (Dobkin et al, 1999).…”

Section: Discussionmentioning

confidence: 99%

“…The review helped to confirm that sle induces a lasting change in the health and lifestyle of the person, even when the disease is controlled by specific therapies (Rinaldi et al, 2006). qol and coping were assessed with various instruments (table 2), sf-36 being the most common, while there were a variety of instruments to assess coping.…”

Section: Quality Of Lifementioning

confidence: 99%

“…Dobkin et al, 1999;Rinaldi et al, 2006;Da Costa et al, 2000;Friedman et al, 1999;Abu-Shakra et al, 2006;Bennett, Fuertes, Keitel & Phillips, 2011;Dobkin et al, 2002;Haupt et al, 2005;Dobkin et al, 2001) who qol-Brief scales 2 (Hyphantis et al, 2011;Abu-Shakra et al, 2006) Focus groups 1 (Robbins, Allegrante, & Paget, 1993;Beckerman, 2011) Coping: The Coping Style Inventory (csi) 1 (Kozora, et al, 2005) Freiburg questionnaire on coping with illness (fkv) 1 (Haupt et al, 2005) The Coping Orientation to Problems Experienced (cope) 1 (Rinaldi et al, 2006) Lupus erythematosus needs questionnaire (slenq) 1 (Auerbach, Beckerman & Blanco, 2013) Lupuspro 1 (Jolly et al, 2014) General Health Questionnaire-30 (ghq-30) 1 (Ng & Chan, 2007) Coping skills 10 items questionnaire designed by Arthritis Foundation. 1 (Sohng, 2003) Focus groups 3 (Beckerman, 2011;Beckerman & Sarracco, 2012;Robbins, Allegrante & Paget, 1993) in different significant domains of life experience, such as social relationships, personal development and intimacy.…”

Section: Copingmentioning

confidence: 99%

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Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

Córdoba-Sánchez

Limonero

2015

Pensando Psicol.

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Background: Systemic lupus erythematosus (sle) is characterized by uncertain prognosis, severe symptoms and a negative impact on quality of life (qol) of patients. Purpose: The aim of this review is to generate a comprehensive approach in order to improve psychological intervention in these patients. Methods: A qualitative review of articles indexed in medline, Psycinfo and Scopus up to July 2015 was conducted. Articles reporting sle, coping strategies and qol were included. Results: Twenty-four studies were found, covering different research designs, forms of assessment and intervention. Coping strategies and their relationship with qol were analyzed in order to describe the best strategies for dealing with sle. Conclusions: There are no adaptive or maladaptive strategies, and the suitability of these depends on the situation that a patient could sustain; nevertheless, an active coping style seems to help preserve the qol. The main goal of psychological intervention should be to diversify and expand the number of coping strategies used by patients.

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Section: Copingmentioning

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Section: Quality Of Lifementioning

confidence: 99%

Section: Copingmentioning

confidence: 99%

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Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

Córdoba-Sánchez

Limonero

2015

Pensando Psicol.

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“…No study to date has examined how coping cognitions specific to pain may influence important outcomes, such as pain, stiffness, fatigue, and mood, in SLE patients. Past studies in patients with SLE have demonstrated that patients' general coping strategies and perceptions of control (i.e., not specifically related to SLE pain) are related to SLE disease activity (2,6 -8), physical functioning (9), psychological functioning (2,10), and other measures of quality of life (11). Two pain coping cognitions that may be particularly important to consider in patients with SLE are self-efficacy for pain control and pain catastrophizing.…”

Section: Introductionmentioning

confidence: 99%

Self‐efficacy and pain catastrophizing in systemic lupus erythematosus: Relationship to pain, stiffness, fatigue, and psychological distress

Somers¹,

Kurakula²,

Criscione-Schreiber³

et al. 2012

Arthritis Care & Research

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Objective. To determine how self-efficacy for pain control and pain catastrophizing, both potentially modifiable pain coping cognitions, are related to pain, stiffness, fatigue, and psychological distress in patients with systemic lupus erythematosus (SLE). Methods. We conducted a cross-sectional study of patients with SLE who completed measures of pain coping cognitions (i.e., self-efficacy for pain control, pain catastrophizing), symptom ratings (i.e., pain, stiffness, fatigue), and psychological distress. Results. Correlational analyses revealed that self-efficacy for pain control and pain catastrophizing were associated with the patients' physical symptom reports and psychological distress. After controlling for age, race, and disease activity, patients with lower levels of self-efficacy for pain control reported much higher levels of pain, stiffness, and fatigue. Patients with higher levels of pain catastrophizing reported much lower positive mood. SLE activity as assessed by the rheumatologist was not associated with physical symptoms, psychological distress, self-efficacy for pain control, or pain catastrophizing. Conclusion. These results suggest that pain coping cognitions (i.e., either self-efficacy for pain control or pain catastrophizing) are significantly related to physical symptoms and psychological distress in patients with SLE. This finding is important because the results of studies from other samples of patients with persistent pain conditions have shown that these pain coping variables can be modified using psychological interventions, and that such treatment-related changes in pain cognitions are related to improved patient outcomes.

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Health‐Related Quality of Life in Adults With Adolescent‐ and Adult‐Onset Systemic Lupus Erythematosus: A Longitudinal Study of a Multiethnic US Cohort

Borgia

Ugarte‐Gil

Vilá

et al. 2023

Arthritis Care & Research

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Objective. The long-term impact of childhood-onset systemic lupus erythematosus (SLE) on health-related quality of life (HRQoL) in adult SLE patients in comparison to those with adult-onset SLE is unknown. We aim to examine and compare HRQoL trajectories in adults with adolescent-and adult-onset SLE.Methods. Patients enrolled in the LUpus in MInorities: NAture versus Nurture cohort were included. Adolescentonset SLE were those diagnosed before 24 years of age, and adult-onset SLE were those diagnosed otherwise. Sociodemographic, clinical, medications, behavioral/psychological, and functioning data were obtained. Longitudinal trajectories of the physical component summary (PCS) and the mental component summary (MCS) Short Form 36 health survey scores were compared between the groups using a linear mixed model accounting for time-dependent and independent covariates.Results. A total of 470 SLE patients were included (95 with adolescent-onset SLE and 375 with adult-onset SLE). The mean ± SD age at diagnosis was 19.7 ± 2.8 years in the adolescent group and 39.3 ± 11.0 years in the adult group. The baseline PCS scores were higher (better physical functioning) in adolescent-onset SLE than in adult-onset SLE (38.9 versus 34.3, respectively; P < 0.001); however, the baseline MCS scores were comparable between the groups (41.4 versus 40.5, respectively; P = 0.53). The HRQoL improved equally in both groups with no statistically significant difference within and between the groups (last mean PCS and MCS scores 43.9 and 45.3 in adolescent-onset SLE; 38.1 and 43 in adult-onset SLE).Conclusions. Adults with adolescent-onset SLE exhibited better physical functioning than those in the adult SLE group, despite more severe disease; noteworthy, HRQoL was below the general US population, despite clinically meaningful improvement in HRQoL over time in both groups.

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Influence of coping skills on health‐related quality of life in patients with systemic lupus erythematosus

Cited by 42 publications

References 29 publications

Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

Coping and Quality of Life in Patients with Systemic Lupus Erythematosus: A Review

Self‐efficacy and pain catastrophizing in systemic lupus erythematosus: Relationship to pain, stiffness, fatigue, and psychological distress

Health‐Related Quality of Life in Adults With Adolescent‐ and Adult‐Onset Systemic Lupus Erythematosus: A Longitudinal Study of a Multiethnic US Cohort

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