Inflammatory bowel disease patient's satisfaction with healthcare services received: physicians' and nurses' perceptions

Abstract

Background: patient satisfaction with healthcare services provided for inflammatory bowel diseases (IBD) is essential due to high resources use.Objectives: the study aimed to describe patient satisfaction with healthcare services using the CACHE questionnaire and to assess gastroenterologist and nurse perception on patients' satisfaction.Methods: observational multicentric prospective study in 35 Spanish hospitals. Patients included had Crohn's disease or ulcerative colitis. The study was approved by the Hospital Universitari Vall d´Hebron Ethics Committee. Scheduled study visits: baseline (patient sociodemographics and clinical data were collected), 2-4 and 6-months. Patient satisfaction with healthcare was assessed by CACHE questionnaire at each visit; it scores from 0-least satisfaction to 100-highest satisfaction.Gastroenterologists and nurses answered once an adapted questionnaire.Results: participating 290 patients (54.2 % males, 41.3 years old), 62 gastroenterologists and 47 nurses. At baseline mean (SD) CACHE score was 81.7 (10.9); satisfaction with clinician care was the highest, patient information the lowest. Scores did not change across study.Gastroenterologist global score was 72.5 (9.8); Staff Care satisfaction was the highest, patient information the lowest. All scores were significantly lower than patients´.Nurses´ global score was 82.2 (8.5), clinician care satisfaction was the highest, centre facilities the lowest. Scores on satisfaction with clinician care, centre facilities, and patient information scored statistically lower than patients´.No relationship was found between patients´ satisfaction and patients characteristics.Conclusions: IBD patients are satisfied with healthcare services provided, even though the information may be improved. Nurses'

Satisfaction and expectations of patients with inflammatory bowel disease on biologic therapy: a multicenter study

“…In this large, multicenter survey we used the CACHE questionnaire to measure patient satisfaction in IBD patients undergoing ongoing biologic therapy [13,14]. Among the possible tools, we chose this questionnaire because, compared to other questionnaires such as QUOTE-IBD, patients can complete it more easily and quickly [11,13].…”

“…More specifically, we found that as many as 19.5% of patients were not satisfied with the IBD information they received through brochures and books, and from healthcare staff. In another study involving 290 Spanish patients with IBD, which used the same questionnaire (CACHE), the patient information score was the lowest (68.5±18) [14]. Likewise, using a different questionnaire (QUOTE-IBD), the received information was judged unsatisfactory by 28% of patients in a previous Italian study performed between April 2010 and February 2011 [22], and by 45% of 162 Dutch IBD patients in 2001 [11].…”

“…This is a specific questionnaire, recently developed and validated [14], composed of a single sheet with 31 items structured in the following 6 domains: 1) staff care (10 items); 2) clinician care (5 items); 3) center facilities (4 items); 4) patient information (5 items); 5) accessibility (4 items); and 6) patient support (3 items). For each item, the patients was required to choose one of 5 response options, consisting of “Totally agree”, “Agree”, “Neither agree nor disagree”, “Disagree”, and “Totally disagree”.…”

“…The following formula was used to calculate a score for each item: (real score - minimum score)/(maximum score - minimum score) × 100. The final score was standardized to achieve a range from 0 (lowest level of satisfaction) to 100% (maximum satisfaction), for each item [14], the total representing the overall degree of patient satisfaction. To measure the frequency of disappointed patients, data were also analyzed taking into account the number of positive (“totally agree” and “agree”) and negative (“totally disagree” and “disagree”) responses for each domain.…”

How is inflammatory bowel disease managed in Spanish gastroenterology departments? The results of the GESTIONA-EII survey

“…These surveys provided information beyond the views of GEs who consider themselves IBD experts -other scientific associations such as ECCO (European Crohn's and Colitis Organization) and GETECCU have already performed surveys (10,11), and drawn interesting conclusions on topics ranging from biosimilar awareness to satisfaction with care. The value of the present survey is likely related to the fact that SEPD includes a large number of gastroenterologists, many of them unrelated to IBD, which will allow "external" but close data on IBD that cannot be obtained from studies by societies devoted to more specific areas of gastroenterology.…”