Inequities in organ and tissue donation and transplantation for sexual orientation and gender identity diverse people: A scoping review

Leeies, Murdoch; Collister, David; Ho, Julie; Trachtenberg, Aaron J.; Gruber, Jackie; Weiss, Matthew J.; Chandler, Jennifer A.; Mooney, Owen; Carta, Tricia; Klassen, Ben; Draenos, Chris; Sutha, Ken; Randell, Shane; Strang, Matthew; Partain, Billy; Whitley, Cameron T.; Cuvelier, Susan L.; Mackenzie, Lauren; Shemie, Sam D.; Hrymak, Carmen

doi:10.1016/j.ajt.2023.03.016

Cited by 9 publications

(2 citation statements)

References 64 publications

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“…Currently, in Canada there is a lack of clarity on which sociodemographic data elements are collected by individual organ donation organizations (ODOs), including information on individual variable definitions, measurement standards during data collection, and how data are reported. At present, there are no Canadian national recommendations regarding the collection of sociodemographic variables for the OTDT health system despite a growing body of evidence identifying inequities in outcomes and access to donation and transplantation associated with race, ethnicity, sexual orientation, gender identity, age, and location of primary residence both in Canada 1-13 and globally. 14-32 The Public Health Agency of Canada recently made a public call for the acknowledgment of existing health inequities and the prioritization of the collection and analysis of equity-focused data across the country.…”

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confidence: 99%

“…data are reported. At present, there are no Canadian national recommendations regarding the collection of sociodemographic variables for the OTDT health system despite a growing body of evidence identifying inequities in outcomes and access to donation and transplantation associated with race, ethnicity, sexual orientation, gender identity, age, and location of primary residence both in Canada [1][2][3][4][5][6][7][8][9][10][11][12][13] and globally. [14][15][16][17][18][19][20][21][22][23][24][25][26][27][28][29][30][31][32] The Public Health Agency of Canada recently made a public call for the acknowledgment of existing health inequities and the prioritization of the collection and analysis of equity-focused data across the country.…”

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confidence: 99%

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Sociodemographic Variables in Canadian Organ Donation Organizations: A Health Information Survey

Leeies

Wilson

et al. 2023

Transplantation Direct

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Supported by a grant from Canadian Blood Services. Canadian Blood Services is a national, not-for-profit charitable organization that manages the supply of blood and blood products in all provinces and territories in Canada (apart from Quebec) and oversees the Canadian Blood Services Stem Cell Registry. In 2008, Canadian Blood Services became responsible for national activities related to organ and tissue donation and transplantation (OTDT), which includes national system development and operation of interprovincial organ-sharing

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Sociodemographic Variables in Canadian Organ Donation Organizations: A Health Information Survey

Leeies

Wilson

et al. 2023

Transplantation Direct

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Emotional Well‐being

Murphy

2024

Renal Nursing

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Croyance des directeurs médicaux sur la prise en charge des lésions cérébrales dévastatrices à la jonction entre le service d’urgence et l’unité de soins intensifs au Canada : un sondage national par établissement

Wtorek,

Weiss,

Singh

et al. 2024

Can J Anesth/J Can Anesth

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Purpose Insufficient evidence-based recommendations to guide care for patients with devastating brain injuries (DBIs) leave patients vulnerable to inconsistent practice at the emergency department (ED) and intensive care unit (ICU) interface. We sought to characterize the beliefs of Canadian emergency medicine (EM) and critical care medicine (CCM) physician site directors regarding current management practices for patients with DBI. Methods We conducted a cross-sectional survey of EM and CCM physician directors of adult EDs and ICUs across Canada (December 2022 to March 2023). Our primary outcome was the proportion of respondents who manage (or consult on) patients with DBI in the ED. We conducted subgroup analyses to compare beliefs of EM and CCM physicians. Results Of 303 eligible respondents, we received 98 (32%) completed surveys (EM physician directors, 46; CCM physician directors, 52). Most physician directors reported participating in the decision to withdraw life-sustaining measures (WLSM) for patients with DBI in the ED (80%, n = 78), but 63% of these ( n = 62) said this was infrequent. Physician directors reported that existing neuroprognostication methods are rarely sufficient to support WLSM in the ED (49%, n = 48) and believed that an ICU stay is required to improve confidence (99%, n = 97). Most (96%, n = 94) felt that providing caregiver visitation time prior to WLSM was a valid reason for ICU admission. Conclusion In our survey of Canadian EM and CCM physician directors, 80% participated in WLSM in the ED for patients with DBI. Despite this, most supported ICU admission to optimize neuroprognostication and patient-centred end-of-life care, including organ donation. Supplementary Information The online version contains supplementary material available at 10.1007/s12630-024-02749-7.

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Inequities in organ and tissue donation and transplantation for sexual orientation and gender identity diverse people: A scoping review

Cited by 9 publications

References 64 publications

Sociodemographic Variables in Canadian Organ Donation Organizations: A Health Information Survey

Sociodemographic Variables in Canadian Organ Donation Organizations: A Health Information Survey

Emotional Well‐being

Croyance des directeurs médicaux sur la prise en charge des lésions cérébrales dévastatrices à la jonction entre le service d’urgence et l’unité de soins intensifs au Canada : un sondage national par établissement

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