Individuals with special needs and their families’ oral health-related quality of life

Cancio, Viviane; Faker, Khawana; Bendo, Cristiane Baccin; Paiva, Saul Martins; Tostes, Mônica Almeida

doi:10.1590/1807-3107bor-2018.vol32.0039

Cited by 13 publications

(23 citation statements)

References 22 publications

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“…Family motivation plays an important role in the viability of dental care programs for individuals with special needs, since parents/caregivers are the main decision makers regarding the oral health of these individuals . To ensure that dental programs for children/adolescents with DS are effective, it is also necessary to maintain surveillance of their family . The findings of the present study highlight the importance of the prevention and treatment of oral conditions, such as malocclusion and dental caries, which may cause pain, discomfort, and well‐being impairment for the child/adolescent with DS and consequently affect the emotions and activities of family members.…”

Section: Discussionmentioning

confidence: 80%

“…Dental caries experience and the clinical consequences of untreated dental caries were some of the oral conditions of children/adolescents with DS associated with the perception of their parents/caregivers as having a negative impact on the OHRQoL of their family members. Previous studies performed with populations without DS have reported that the impact of dental caries experience on family OHRQoL may be influenced by parent/caregivers concerns about the aesthetic appearance of their children . Moreover, dental caries and the clinical consequences of untreated dental caries can cause pain and functional limitations during chewing and speech, which results in changes in the daily life of the children/adolescents and their families .…”

Section: Discussionmentioning

confidence: 99%

“…Oral conditions are associated with a negative impact on the Oral Health‐related Quality of Life (OHRQoL) of children/adolescents with DS, similar to individuals without DS . Usually assessed by proxy measures, the repercussions of oral diseases during the childhood/adolescence of DS individuals is strongly linked to an impaired perception of parents/caregivers about the OHRQoL and the accomplishment of daily activities of their sons/daughters . Not only pain and impairment of oral function, but also psychological issues and sleep disturbances have been reported by guardians as consequences of oral diseases over individuals with special needs, such as the individuals with DS .…”

Section: Introductionmentioning

confidence: 99%

“…Usually assessed by proxy measures, the repercussions of oral diseases during the childhood/adolescence of DS individuals is strongly linked to an impaired perception of parents/caregivers about the OHRQoL and the accomplishment of daily activities of their sons/daughters . Not only pain and impairment of oral function, but also psychological issues and sleep disturbances have been reported by guardians as consequences of oral diseases over individuals with special needs, such as the individuals with DS . Studies have demonstrated that dental caries, traumatic dental injuries, and malocclusion among children/adolescents without DS negatively affects the OHRQoL of the family members .…”

Section: Introductionmentioning

confidence: 99%

“…Parents tend to be the primary caregivers of children with DS . The emotional well‐being of parents is fundamental to promote a good quality of life and the health maintenance of children/adolescents with DS .…”

Section: Introductionmentioning

confidence: 99%

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Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

Carrada

Scalioni

Abreu

et al. 2019

Special Care in Dentistry

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Aims To assess the impact of oral conditions among children/adolescents with Down syndrome (DS) on the Oral Health‐related Quality of Life (OHRQoL) of their families in comparison with a group without DS. Methods and results Families of 144 children/adolescents with DS aged 4‐18 years were compared with families of individuals without DS. Dental caries experience (DMFT/dmft), clinical consequences of untreated dental caries (PUFA/pufa), gingival bleeding (GBI), visible plaque (VPI), and malocclusion were evaluated. Parents/caregivers answered the Family Impact Scale (FIS) and questionnaires on sociodemographic conditions and the health of children/adolescents. Data analysis included chi‐square test and Poisson regression. There was no difference between groups regarding the impact of the children's/adolescents' oral condition on their families’ OHRQoL for all domains and the total FIS score (P > 0.05). A negative impact on the OHRQoL of families of children/adolescents with DS was determined by dental caries (PR = 3.95, CI = 2.09‐7.46), clinical consequences of untreated dental caries (PR = 1.83, CI = 1.18‐2.84), defined malocclusion (PR = 2.75, CI = 1.23‐6.13), and severe malocclusion (PR = 2.82, CI = 1.02‐7.74). Conclusion There is no difference on the OHRQoL of families of children/adolescents with and without DS. Dental caries experience, clinical consequences of untreated dental caries, defined malocclusion, and severe malocclusion determined the negative impact on the OHRQoL of families of children/adolescents with DS.

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Section: Discussionmentioning

confidence: 80%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

Carrada

Scalioni

Abreu

et al. 2019

Special Care in Dentistry

Self Cite

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A bio‐behavioral intervention combining task analysis with skill‐based training to train toothbrushing among children with intellectual disability

Gaunkar

Gadiyar

Kamath

et al. 2021

Special Care in Dentistry

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Individuals with intellectual disability (ID) have special health care needs.Teaching self-care behaviors like toothbrushing helps reduce their dependence on adult caregivers. We present a bio-behavioral intervention combining task analysis with skill-based teaching of toothbrushing behavior aimed to promote autonomy in children with various types of ID. Methods: One hundred twenty children with ID enrolled at a special school in the State were included in the study. After baseline measurements using task analysis, four methods were used to train the children -instruction, three-phase modeling, physical guidance, and descriptive praise. The caregiver was trained and given instructional videos for reinforcement. After 4 weeks, the children were asked to brush their teeth and performance was evaluated. Results: There was increased independence in the performance of toothbrushing behavior, the mild and moderate ID groups showing the most improvement.Steps like oral manipulation of the toothbrush showed the greatest improvement in these groups. The severe ID group showed improvement in certain skills, while requiring assistance for others that demanded dexterity. Conclusion: This intervention can be implemented by special schools and special care dentistry centers to foster autonomy in oral self-care skills in the mild and moderate ID children, and complemented with other methods for severe ID children. K E Y W O R D Sautonomy, biobehavioral approach, intellectual disability, task analysis, toothbrushing 1 INTRODUCTION Intellectual disability (ID)/intellectual developmental disorder (IDD) 1 is an increasing public health challenge. According to the Working Group on Mental Retardation © 2021 Special Care Dentistry Association and Wiley Periodicals LLC by the World Health Organization (WGMR-WHO), ID has been defined as "a group of developmental conditions characterized by significant impairment of cognitive functions, which are associated with limitations of learning, adaptive behavior and skills." 2 Early diagnosis and 588 wileyonlinelibrary.com/journal/scd Spec Care Dentist.

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The oral health-related quality of life for individuals with fetal alcohol spectrum disorder – a cross-sectional study

Khawer,

Da Silva

2023

BMC Oral Health

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Background The oral health status of an individual can dramatically influence quality of life. Most individuals in Canada report having good oral health, however, this is not true for individuals with developmental disabilities such as fetal alcohol spectrum disorder (FASD). The purpose of this study is to compare the oral health-related quality of life (OHRQoL) of individuals with FASD and the general population in Saskatoon, Saskatchewan. Additionally, it aims to suggest ways to improve the oral health status and OHRQoL of these individuals. Methods For this cross-sectional study, the Oral Health Impact Profile-14 (OHIP-14) survey was used to assess the impact that oral health related problems can have on an individual’s quality life. This study used a cross-sectional cohort study design with a survey methodology. The sample population compromised of 154 individuals with FASD along with a separate control group of 154 otherwise healthy adults. Results The results of the study showed that most of the individuals in the FASD group experienced pain in the past month. In both groups, cost was most frequently cited as a barrier to accessing care. The majority of individuals in the control group experienced a low impact across all OHIP-14 domains except for physical disabilities. However, in the FASD group, most individuals experienced higher impact scores in some of the categories including functional limitation, psychological discomfort, psychological disability and handicap. Conclusion The findings clearly demonstrate that there is a discernible effect on an individual’s quality of life if they have poor oral health. In conclusion, further research is required to determine the most effective methods to improve the OHRQoL of individuals with disabilities.

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Individuals with special needs and their families’ oral health-related quality of life

Cited by 13 publications

References 22 publications

Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

Impact of oral conditions of children/adolescents with Down syndrome on their families’ quality of life

A bio‐behavioral intervention combining task analysis with skill‐based training to train toothbrushing among children with intellectual disability

The oral health-related quality of life for individuals with fetal alcohol spectrum disorder – a cross-sectional study

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