Indigenous Ways of Knowing: Implications for Participatory Research and Community

Cochran, Patricia; Marshall, Catherine; Garcia-Downing, Carmen; Kendall, Elizabeth; Cook, Doris M.; McCubbin, Laurie D.; Gover, Reva Mariah S

doi:10.2105/ajph.2006.093641

Cited by 398 publications

(342 citation statements)

References 8 publications

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“…As illustrated by Cochran et al (2008), how knowledge is acquired is as important, if not more important, than the knowledge gained, especially in efforts to eliminate or reduce health disparities. Therefore, community involvement and cultural consultation are utilized throughout program and curriculum development and implementation to assure that traditional learning styles are being implemented accurately and appropriately.…”

Section: Discussionmentioning

confidence: 99%

Teen Pregnancy Prevention Program Recommendations from Urban and Reservation Northern Plains American Indian Community Members

McMahon

Hanson

Griese

et al. 2015

American Journal of Sexuality Education

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Despite declines over the past few decades, the United States has one of the highest rates of teen pregnancy compared to other industrialized nations. American Indian youth have experienced higher rates of teen pregnancy compared to the overall population for decades. Although it's known that community and cultural adaptation enhance program effectiveness, few teen pregnancy prevention programs have published on recommendations for adapting these programs to address the specific needs of Northern Plains American Indian youth. We employed a mixed-methods analysis of 24 focus groups and 20 interviews with a combined total of 185 urban and reservation-based American Indian youth and elders, local health care providers, and local school personnel to detail recommendations for the cultural adaptation, content, and implementation of a teen pregnancy prevention program specific to this population.Gender differences and urban /reservation site differences in the types of recommendations offered and the potential reasons for these differences are discussed. This is an Open Access article. Non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly attributed, cited, and is not altered, transformed, or built upon in any way, is permitted. The moral rights of the named author(s) have been asserted. KEYWORDS American Indian, teen pregnancy prevention, program recommendations 218 Teen Pregnancy Prevention Program Recommendations 219 INTRODUCTIONAlthough adolescents of all races and ethnicities engage in behaviors such as unprotected sex and substance use that increase their risk for sexually transmitted infections (STIs) and teen pregnancies (Eaton et al., 2012), American Indian/Alaska Native (AI/AN) youth experience disproportionately higher rates of teen pregnancy compared with the overall population (de Ravello, Jones, Tulloch, Taylor, & Doshi, 2014). Furthermore, while the birth rate for U.S. teens aged 15-19 has dropped in 18 of the past 20 years, changes in the annual birth rates for AI/AN teens have been less consistent over the past two decades and have remained notably higher than those of non-Hispanic Whites and Asian/Pacific Islanders (Solomon-Fears, 2013). For example, in 2012, the birth rates for AI/AN teens was 34.9 per 1,000 live births while the national rate reached a historic low of 29.4 and the rate for non-Hispanic White teens was lower yet at 20.5 (Martin, Hamilton, Osterman, Curtin, & Mathew, 2013). AMERICAN INDIAN/ALASKA NATIVE SEXUAL RISK BEHAVIORSPrevious findings regarding adolescent sexual behavior also reveal that a greater proportion of urban AI/AN youth engage in sex at younger ages and are less often using any method of contraception compared to the overall population (de Ravello et al., 2014). Specifically, in a study examining the reproductive health and behaviors of urban AI/AN girls through data gathered from the 2002 National Survey of Family Growth (Rutman, Taualii, Ned, & Tetrick, 2012), findings revealed that approximately 33% of urban AI/...

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Section: Discussionmentioning

confidence: 99%

Teen Pregnancy Prevention Program Recommendations from Urban and Reservation Northern Plains American Indian Community Members

McMahon

Hanson

Griese

et al. 2015

American Journal of Sexuality Education

View full text Add to dashboard Cite

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“…The main reasons for these criticisms is that "the purposes and meaning associated with [research on Aboriginal communities] by academics and government agents were usually alien to the Aboriginal people themselves and the outcomes were, as often as not, misguided and harmful" (Castellano, 2004, p. 98). Therefore, research has historically been a source of unease and distress in Aboriginal populations (Arbour & Cook, 2006;Castellano, 2004;Cochran et al, 2008). Some of the criticisms include "lack of involvement of the community in the planning of the project, insensitivity to cultural beliefs, … potential stigma of research results, lack of feedback to the community once a project is completed, commercial ownership of DNA and overall impressions of exploitation of the communities" (Arbour & Cook, 2006).…”

Section: A Review Of Notable Biological Sampling Cases and Issuesmentioning

confidence: 99%

“…The fact that many people believed this story illustrates the negative reputation of academic researchers among many Aboriginal peoples. These cases, and others like it, have been brought to public attention and have prompted some Aboriginal communities to become extremely cautious about research and for some to develop their own research guidelines (Arbour & Cook, 2006;Cochran et al, 2008).…”

Section: A Review Of Notable Biological Sampling Cases and Issuesmentioning

confidence: 99%

Ethics of Biological Sampling Research with Aboriginal Communities in Canada

Nowrouzi¹,

McGregor²,

McDougall³

et al. 2016

GJHS

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Background: The objective of this paper is to identify key ethical issues associated with biological sampling in Aboriginal populations in Canada and to recommend approaches that can be taken to address these issues. Methods:Our work included the review of notable biological sampling cases and issues. We examined several significant cases (Nuu-chah-nult people of British Columbia, Hagahai peoples of Papua New Guinea and the Havasupai tribe of Arizona) on the inappropriate use of biological samples and secondary research in Aboriginal populations by researchers. Results:Considerations for biological sampling in Aboriginal communities with a focus on community-based participatory research involving Aboriginal communities and partners are discussed. Recommendations are provided on issues of researcher reflexivity, ethical considerations, establishing authentic research relationships, ownership of biological material and the use of community-based participatory research involving Aboriginal communities. Conclusions:Despite specific guidelines for Aboriginal research, there remains a need for biological sampling protocols in Aboriginal communities. This will help protect Aboriginal communities from unethical use of their biological materials while advancing biomedical research that could improve health outcomes.

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“…PAR is an effective method of research that engages communities in research and knowledge development. Due to its inherent principles of cultural sensitivity, inclusion, community decision-making, empowerment, respect, and emancipation, PAR is particularly fitting for research with Aboriginal people (Cochran et al, 2008;Maar et al, 2011;Purden, 2005).…”

Section: Participatory Action Research (Par)mentioning

confidence: 99%

Participatory Action Research with a Group of Urban First Nations Grandmothers: Decreasing Inequities through Health Promotion

Ginn

Kulig

2015

iipj

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Inequities experienced by Aboriginal people in Canada due to residual effects of colonization and assimilation are evident; research is needed focusing on positive strategies for health and healing in urban settings. Participatory action research (PAR) is identified as an appropriate method of research for engaging collaboratively with Aboriginal people. This study involved seven First Nations grandmothers in a small urban community in Alberta, Canada. The grandmothers linked personal health with family and community health, and practiced health promotion through maintaining cycles of support between themselves, their families, and communities. These grandmothers recognized their invaluable roles as leaders in health promotion in families and communities. The collective knowledge of Aboriginal grandmothers has potential to affect health inequities on a broader scale.

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Indigenous Ways of Knowing: Implications for Participatory Research and Community

Cited by 398 publications

References 8 publications

Teen Pregnancy Prevention Program Recommendations from Urban and Reservation Northern Plains American Indian Community Members

Teen Pregnancy Prevention Program Recommendations from Urban and Reservation Northern Plains American Indian Community Members

Ethics of Biological Sampling Research with Aboriginal Communities in Canada

Participatory Action Research with a Group of Urban First Nations Grandmothers: Decreasing Inequities through Health Promotion

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