Independence: What It Means to Six Disabled People Living in the Community

Rock, Patricia

doi:10.1080/02674648866780021

Cited by 18 publications

(5 citation statements)

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“…Thus, the central ideas, as Zarb (2003) suggested, are: choice, control and full and equal participation. This is what disabled people refer to as 'independence' (Rock, 1988;Brisenden, 1989;Oliver, 1989Oliver, , 1991Lonsdale, 1990;Barnes, 1993;Morris, 1993;Reindal, 1999). To realize the goal of independent living, in addition to personal assistance, information, peer support, advocacy, technical devices and environmental adaptations are also important (Hasler et al, 1999).…”

Section: Introductionmentioning

confidence: 95%

Personal assistance at work: the Visual Assistance Service in Taiwan

Wang

2006

Disability & Society

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Section: Introductionmentioning

confidence: 95%

Personal assistance at work: the Visual Assistance Service in Taiwan

Wang

2006

Disability & Society

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“…Thirdly, empirical studies of people's situated understandings of independence have shown independence to be multidimensional and mutable (Rock, 1988;Mack et al, 1997;Ball et al, 2004;Plath, 2008). It is multidimensional because older and disabled people ascribe multiple meanings to the notion.…”

Section: | Introductionmentioning

confidence: 99%

“…The disability movement has also sought to shift understandings of independence beyond people's competence to conduct activities of daily living unaided (Brisenden, 1986;Rock, 1988;Reindal, 1999). For Brisenden (1986) independence is not doing everything oneself but having control over one's life and choosing how that life is led.…”

Section: | Introductionmentioning

confidence: 99%

Independence and mobility in later life

2012

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This paper explores independence in later life and its relations with mobility, or embodied movements through physical space on the basis of a review of a range of academic literature and in-depth interviews with community-dwelling adults aged 70 and more in the UK. We suggest that independence is a complex and fuzzy notion that is best thought of as a qualitative multiplicity and as an unstable achievement fabricated out of dependencies on bodies, technologies, infrastructures, social networks and other elements. Yet we also find that the study participants understand independent mobility as avoiding lifts provided by next of kin, friends or others for getting around. This is tied to the enactment of particular forms of embodiment and ageist subject positions for older people and implies that older adults are inadvertently complicit in the perpetuation of the connotations of dependency in later life with passivity, burden and undesirability. To counteract these tendencies, we end this paper by elaborating more inclusive and broader conceptualisations of dependence, independence and independent mobility in later life.

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“…A number of reviewers have noted, however, that service-user views have been relatively neglected in assessing services (Emerson, 1985;Allen, 1989;Felce & Perry, 1995;Emerson & Hatton, 1994), despite the early influential work of Edgerton (1967;Edgerton et al, 1988). More recently, the views of service-users have begun to be seen as more central to the issues of service quality and a person's quality of life fly^, 1986; 1989) and a number of studies have employed interviews with people with intellectual disabilities as part of their evaluation of day and/or residential services (Malin, 1983;Conroy & Bradley, 1985;Rock, 1988;Jahoda et al, 1989;Cattermole et al, 1990;Clare & Murphy, 1993;Shanly & Rose, 1993;Cambridge et al, 1994;Jenkins & Grey, 1994;Dockrell, 1995). Only three of these studies (Clare & Murphy, 1993;Jenkins & Grey, 1994;Dockrell, 1995) have considered people with challenging behaviour specifically, however, even though this group is less likely to have any choice about where they live and is more likely to suffer poor or abusive services (Rusch et al, 1986).…”

Section: Introductionmentioning

confidence: 99%

Services for People with Mild Intellectual Disabilities and Challenging Behaviour: Service‐user Views

Murphy

Estien

Clare

1996

Research Intellect Disabil

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Twenty-six people with mild intellectual disabilities and challenging behaviour, who had all been service-users at a specialist, hospital-based unit, were interviewed after they had left the service for an average of four and a half years, about their current quality of life and their memories of the service. O n the whole, people were still living in the community though many had had a large number of placement moves (and some had returned to hospital or prison). The service-usefs overall quality of life in their current placement was as good as that of the general population in the less restrictive environments but fell increasingly short of this standa.rd as the placements became more restrictive. Even in the best placements people's social relationships appeared impaired when compared to the general population. With respect to their memories of the specialist service, it appeared that, despite the time period, service-users had a clear memory of the service, appreciated many aspects of it (such as the help staff provided, the therapy and education), were divided about some aspects (such as having to be in hospital, being detained under the Mental Health Act 2983, taking medication) and had very strongly negative feelings about aspects of the care which directly restricted their liberty (such as the locking of the front door, the use of restraint and seclusion). It is argued that there may be a need to re-think services for service-users with challenging behaviour and mild intellectual disabilities.

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Independence: What It Means to Six Disabled People Living in the Community

Cited by 18 publications

References 1 publication

Personal assistance at work: the Visual Assistance Service in Taiwan

Personal assistance at work: the Visual Assistance Service in Taiwan

Independence and mobility in later life

Services for People with Mild Intellectual Disabilities and Challenging Behaviour: Service‐user Views

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