Increasing the Health-Related Quality of Life in Children with Congenital Rubella Syndrome: A Mixed-methods Study
Elisabeth Siti Herini,
Agung Triono,
Kristy Iskandar
et al.
Abstract:Background: Rubella infection during the first trimester of pregnancy is a significant cause of fetal malformation syndrome, known as Congenital Rubella Syndrome (CRS). The most prevalent abnormalities associated with CRS are hearing loss, vision impairment (primarily congenital cataracts), congenital heart disease, and global developmental delay affecting the children's quality of life (QoL). A Community Engagement Program was arranged collaboratively to increase the QoL of children with CRS and enhance paren… Show more
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