Increasing research capacity in community organizations: Findings from the Community Research Scholars Initiative

Collins, Cyleste; Dolata, Jacqueline; Pike, Earl C.; Sehgal, Ashwini R.

doi:10.1016/j.evalprogplan.2022.102189

Cited by 6 publications

(6 citation statements)

References 40 publications

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“…For individuals new to CBPR, the Connection phase represents a critical entry point that requires careful attention to the needs and understanding of potential partners. Previous research highlights the multiple capacitydevelopment and support services needed for novice CBPR investigators (Teufel-Shone et al, 2019) (Andrews et al, 2013) (Collins et al, 2023). Our experience, consistent with the literature, emphasizes the need for conscious efforts to support organic relationship formation, networking, and idea exchange well before discussing specific CBPR collaborations (Cleveland, 2014).…”

Section: Discussionsupporting

confidence: 83%

Small CBPR Grants Program

Sheikhattari,

Apata,

Silver

et al. 2023

MUJ

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Community-based participatory research (CBPR) is an effective approach for addressing health disparities by integrating diverse knowledge and expertise from both academic and community partners throughout the research process. However, universities and funding agencies have not done enough to invest in the foundational infrastructure and resources that are necessary for building and maintaining lasting trusting research partnerships and supporting them to generate impactful research projects and solutions. Small CBPR Grants Program is a CBPR-seed-funding program that may be particularly helpful to minority-serving institutions’ and universities’ goal to invest in genuine community-engaged research. The Morgan State University Prevention Sciences Research Center, in collaboration with other community and academic organizations, provided 14 small CBPR awards to new partnerships, and evaluated the success and challenges of the program over a period of three years. To achieve our goal, technical support and training were provided to these partnerships to help with their growth and success. The expected outcomes included trusting relationships and equitable partnerships, as well as publications, presentations, and new proposals and awards to work on mutually identified issues. The program’s results included: continued partnerships beyond the program (in most cases), a founded CBPR Center, and a few secured additional funding. One key to the program’s success was supporting the formation of research partnerships through networking opportunities and information sessions, as well as providing small grants to incentivize the development of innovative concepts and projects. A learning network and local support group were also created to enhance productivity and the overall impact of each project.

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Section: Discussionsupporting

confidence: 83%

Small CBPR Grants Program

Sheikhattari,

Apata,

Silver

et al. 2023

MUJ

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“…Community members need frequent and adequate communication as well as a full understanding of research requirements when they are engaged in research efforts. Research has found community members can be effectively trained to better understand, engage in research, and be amenable to learning [ 39 , 40 ]. Although most of the LHA training included topics on hypertension, much less focused on different types of study designs and distinctions between research approaches.…”

Section: Discussionmentioning

confidence: 99%

“They should’ve talked to us more”: lay health advisors’ experiences with community-engaged hypertension research

Collins,

Shediac-Rizkallah,

Dolata

et al. 2024

Res Involv Engagem

Self Cite

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Background Lay health advisors (LHAs) are increasingly being used to increase patient and public involvement in research, disseminate health information, and work toward preventing health disparities within communities at risk. This research explored LHAs’ experiences with training and recruiting for a hypertension research project which ended due to minimal enrollment. Methods The methodological design was qualitative description. One face-to-face semi-structured focus group was held with eight African American LHAs in Cleveland, Ohio, in the fall of 2019. The focus group was digitally recorded and transcribed by a professional transcriptionist and thematically analyzed. Results Trainees reflected on how much they learned from the training and described feeling passionate and excited about their community work for the project. We identified three key themes from the data: (1) Systemic and Institutional Factors Affected LHAs’ Experiences (subthemes: Unnecessarily Burdensome Requirements and Exploitation of Community Members for Research Gain; (2) Feeling Used Yet Unseen: Exclusion from Decision-Making Processes; (3) Worrying that Project Termination Damaged their Reputation; and (4) Disengaging from Research. We share lessons learned, including the need for LHAs’ expertise to be integrated into research studies, and for projects to establish clear communication and expectations regarding research rigor and requirements. Conclusion Our results have implications for future studies attempting to build equitable and strong academic-community relationships to yield rigorous and useful research to reduce health disparities.

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“…However, in alignment with our ndings, some CBOs may feel unprepared to collect and share data. One study found that research training for CBOs with mentoring, speci c curriculum, and technical support could change the way CBOs contemplate data and research (15). Another study found that there is an increased need from CBOs to provide basic services during public health emergencies, and issues arise, such as organization challenges, staff burnout, and issues with emergency/disaster management, which could hinder data collection and sharing if proper training is not in place before public health emergencies occur(6).…”

Section: Discussionmentioning

confidence: 99%

Improving Data on Homelessness and Health: Partnering with Community-based Organizations

Schoonveld,

Hammond,

et al. 2023

Preprint

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Background: Community-based organizations (CBOs) provide critical services to people experiencing homelessness and played a unique role in data collection throughout the COVID-19 pandemic. Although data from CBOs filled a critical need, many jurisdictions faced challenges with timely and integrated data collection. We gathered expert opinions from CBO leaders on homelessness and health to identify how to support CBO data collection to best inform public health practices. Methods: We conducted purposively sampled semi-structured key informant interviews (KII) with CBO leaders. Questions included populations served, methods for collecting and sharing data, challenges during data collection and sharing, and possible solutions. KII transcripts were examined using thematic analysis. After the KIIs, we convened a technical expert panel (TEP) to review findings and suggest potential opportunities for improving data collection and sharing among CBOs. Results: We conducted 20 key informant interviews representing 16 CBOs. Three thematic areas emerged from the transcripts: challenges in data entry and collection, infrastructure limitations, and challenges to data sharing and partnerships. The 20 TEP members suggested that creating an interagency health and housing a data modernization support center could increase federal coordination, that system interoperability could be improved by creating standards for defining data elements and that more tools are needed to support CBOs to implement best practices. Discussion:TEP subject matter experts provided field-endorsed perspectives to support CBOs who work closely with people experiencing homelessness. Conclusion: Through increased collaboration at all levels and coordinated action, improved data to better support the health of people experiencing homelessness is an achievable goal.

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Increasing research capacity in community organizations: Findings from the Community Research Scholars Initiative

Cited by 6 publications

References 40 publications

Small CBPR Grants Program

Small CBPR Grants Program

“They should’ve talked to us more”: lay health advisors’ experiences with community-engaged hypertension research

Improving Data on Homelessness and Health: Partnering with Community-based Organizations

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