Increasing access to psychosocial oncology services means becoming more person-centered and situation-responsive

Loiselle, Carmen G.; Brown, Tyler L.

doi:10.1007/s00520-020-05659-8

Cited by 8 publications

(17 citation statements)

References 14 publications

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“…Interactions with healthcare while coping with cancer have signi cant rami cations not only for patients' and signi cant others' experiences but also their health-related outcomes (Loiselle et al, 2019). An in-depth understanding of what cancer care users, rather than institutions, may perceive as most relevant and timely is vital (Bridge et al, 2019;Loiselle et al, 2019;Loiselle & Brown, 2020). By conducting a thematic analysis based on structure, processes, utilization, and satisfaction domains, various patient experience factors emerged.…”

Section: Discussionmentioning

confidence: 99%

“…As exempli ed above, a true person-centred and personalized care approach must periodically query patients about their experiences, preferences and unmet needs. Our own work is a step in that direction (Loiselle & Brown, 2020;Loiselle, 2019;Loiselle et al, 2019) and future research should continue to gather patient-reported cancer care processes and outcomes, including unaddressed symptoms, urgent care issues, unexplained wait times, and care (dis)continuity. In addition, the Covid-19 pandemic has put undue stress on patient experiences as institutions have shifted dramatically to emphasize infection control over cancer control (Coalition Priorité Cancer Québec, 2020).…”

Section: Implications For Future Researchmentioning

confidence: 99%

“…As such, the cancer experience is highly dynamic, involving various interactions, events and transitions across the cancer trajectory. These experiences can be optimized through reliance on situation-responsive and personalized person-centred care (PCC) approaches (Loiselle & Brown, 2020). De ned as respectful, active, and tailored approaches that meet patients' needs, values, and ideals, PCC serves as a primary determinant of overall quality of care, including more positive interactions with healthcare professionals and optimal health-related outcomes (Loiselle et al, 2019;Grover et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

“…Interactions with healthcare (the focus of this paper) encompass several facets, including the structure, processes, and outcomes related to cancer care services. Access to and patient satisfaction with these services is most informative (Loiselle & Brown, 2020;Loiselle et al, 2019). The following applies the CEMF to the voluntary reported experiences of those having received cancer care.…”

Section: Introductionmentioning

confidence: 99%

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Patient feedback on their cancer care experiences analyzed using the Cancer Experience Measurement Framework

Bourque

Loiselle

2022

Preprint

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Background: Recent advances in research on patient experiences with cancer underscore the importance of proactively seeking feedback from users of cancer care services. Methods: The present study administered the Ambulatory Oncology Patient Satisfaction Survey (AOPSS) with 7,885 questionnaire packets mailed out to potential participants. 3,279 completed surveys were returned and 692 of these contained feedback to an open-ended question about patients’ perceptions of the cancer care they had received within the last 6 months since diagnosis. Results: Using the Cancer Experience Measurement Framework (CEMF) to guide the in-depth thematic analysis of patient feedback, 19 key themes emerged, some of which include: treatment setting, time, location, service availability, perceived appropriateness, personnel or specialists involved, patient preferences, information/education, continuity/transition of care, coordination of care, access to care, wait times, access to emergency rooms, and intensive care unit visits. Conclusions: Findings suggest that patient’s dissatisfaction is heightened in settings high in perceived disorganization. Participants suggest that improving wait times in both ambulatory and emergency settings, in addition to ensuring smooth access and coordination of care both intra- and inter-organization cancer care services across the illness trajectory is necessary for creating a more person-centred care experience. These findings are timely as they underscore how informative patient voices are to ensure that cancer settings provide quality, timely, and personalized care that patients have come to expect.

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Section: Discussionmentioning

confidence: 99%

Section: Implications For Future Researchmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Patient feedback on their cancer care experiences analyzed using the Cancer Experience Measurement Framework

Bourque

Loiselle

2022

Preprint

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“…Better knowledge is needed on cancer patients' preferences regarding the organization of PC. This will enable patient-centered care, which emphasizes individual patient preferences, needs and values (Epstein and Peters, 2009;Loiselle and Brown, 2020). Therefore, the aim of this qualitative study was to gain more understanding of the preferences regarding the organization of PC among cancer patients who received PC in the past, and the barriers and facilitators they experienced to receive PC.…”

Section: Discussionmentioning

confidence: 99%

Organizing Psycho-Oncological Care for Cancer Patients: The Patient’s Perspective

et al. 2021

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BackgroundCancer patients often suffer from psychological distress during or after cancer treatment, but the use of psycho-oncological care among cancer patients is limited. One of the reasons might be that the way psycho-oncological care is organized, does not fit patients’ preferences. This study aimed to obtain detailed insight into cancer patients’ preferences regarding the organization of psycho-oncological care.Methods18 semi-structured interviews were conducted among cancer patients. Patients completed psycho-oncological treatment between 2015 and 2020 at the psychology department in a general hospital or a center specialized in psychological cancer care in the Netherlands. The interview comprised questions related to preferences regarding the institute where to receive treatment, the psychologist who provides treatment, and the type of treatment, as well as questions related to experienced barriers and facilitators to receive psycho-oncological care. Interviews were digitally recorded and transcribed verbatim. Data were analyzed individually by two coders into key issues and themes.ResultsRegarding the institute, easy accessibility and prompt availability of psychol-oncological care were considered important. Regarding the psychologist, most participants had a strong preference to be treated by a psychologist specialized in cancer or other somatic diseases. Individual face-to-face therapy was preferred above other types of treatment. Several barriers were mentioned to receive psycho-oncological treatment, among which poor accessibility to psycho-oncological care, lack of knowledge on the possibilities for psycho-oncological treatment, and stigma. Most frequently mentioned facilitators were being assertive to ask for help, having a good relationship with the healthcare professional, and the integration of psycho-oncological support within medical cancer care.ConclusionFrom the patient’s perspective, the organization of psycho-oncological care for cancer patients should focus on easy accessibility and availability, delivered by specialized psychologists, and integration in medical cancer care. Online and group therapy are acceptable, but individual face-to-face therapy is preferred. It is warranted to increase awareness on psycho-oncological care targeting both patients and healthcare providers.

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Enhancing access to sustainable cancer supportive modalities: the roles of interactive health communication and trained volunteers

Attieh

Loiselle

2021

Journal of Psychosocial Oncology Research &Amp; Practice

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Background: Addressing the unmet needs of individuals with cancer in a timely manner is imperative for true implementation of person-centered care. Interactive health communication (ie, people's interactions with health information technologies) and more sustainable forms of support (eg, trained volunteers), are increasingly recognized as promising means to address the many barriers to accessing cancer-related support. This pilot study is timely as it tested an accessible cancer supportive approach that included e-handouts on 25 cancer distress-related topics and supportive phone calls by trained volunteers. The study objectives were to document participants' preferences for the types of support offered, assess changes in distress pre and post, and determine the usability of the approach. Methods: Individuals with various types and stages of cancer (N = 88), diagnosed within the past 6 months were recruited from a university-affiliated cancer center in Montreal, Quebec, Canada. Participants completed the Cancer Support Community Distress measure at baseline, and they were prompted to request different types of support. Participants completed a follow-up questionnaire including the distress measure one to four weeks post support provision. Results: Of the 88 participants who filled out baseline questionnaires, 68 completed the follow up measures. Of the former, 76% (n = 67) made at least one request (e-handouts/phone calls/or both). The most frequently requested e-handout addressed pain/physical discomfort (37 requests) and phone calls were requested mostly for sleep problems (8 requests). Participants who requested both support modalities reported significantly lower distress [F (3,64) = 3.52, P = .02] at follow-up compared to those who made no requests. Ninety-two percent of participants who requested e-handouts reported that other patients would benefit from these. Participants who requested phone calls agreed or strongly agreed that volunteers were knowledgeable. The usability score was excellent (mean = 85.5/100; SD = 16.36). Conclusion: Preliminary findings indicate that this supportive approach is promising. Future work would document the differential contributions of supportive modalities that compare, for instance, professional versus lay (trained) support.

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Increasing access to psychosocial oncology services means becoming more person-centered and situation-responsive

Cited by 8 publications

References 14 publications

Patient feedback on their cancer care experiences analyzed using the Cancer Experience Measurement Framework

Patient feedback on their cancer care experiences analyzed using the Cancer Experience Measurement Framework

Organizing Psycho-Oncological Care for Cancer Patients: The Patient’s Perspective

Enhancing access to sustainable cancer supportive modalities: the roles of interactive health communication and trained volunteers

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