Incorporation of telehealth into a multidisciplinary ALS Clinic: feasibility and acceptability

Geronimo, Andrew; Wright, Courtney; Morris, Anne; Walsh, Susan; Snyder, Bethany; Simmons, Zachary

doi:10.1080/21678421.2017.1338298

Cited by 72 publications

(104 citation statements)

References 25 publications

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“…For patients requiring a longer discussion with the palliative care specialist, we are piloting the option of a palliative care video televisit on a separate date. This has been successfully utilized at our center and others as a means of maintaining care continuity …”

Section: Discussionmentioning

confidence: 99%

Integration of a palliative care specialist in an amyotrophic lateral sclerosis clinic: Observations from one center

et al. 2019

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Palliative care specialists can aid in the care of patients with amyotrophic lateral sclerosis (ALS). In this article, we describe our 1‐year experience incorporating a palliative care specialist into the ALS multidisciplinary team. We describe our integration model, patient selection, and visit content. Of 500 total clinic patients, 74 (14.8%) were seen by the palliative care specialist in 1 year. Referral was most often triggered by advance care planning needs (91%). In the initial visit with the palliative care specialist, topics most frequently covered included goals of care (84%), anxiety/depression (35%), and medical decision‐making about feeding tubes (27%) or tracheostomy (31%). Symptom management comprised a relatively small number of the visits, and duration of visits was limited by patient fatigue. Patients with complex goals of care may benefit from the input of a palliative care specialist, and unique integration models may help to facilitate care delivery. Muscle Nerve 60: 137–140, 2019

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Section: Discussionmentioning

confidence: 99%

Integration of a palliative care specialist in an amyotrophic lateral sclerosis clinic: Observations from one center

et al. 2019

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“…High levels of patient acceptance and satisfaction with telehealth services have been reported, while one study noted patients expressed preference for face‐to‐face visits for discussions of more sensitive psychosocial topics . A recent study by Geronimo and colleagues found high levels of patient satisfaction with video teleconferencing in lieu of face to face visits among persons with ALS . Telehealth monitoring of noninvasive ventilatory support has been associated with decreased emergency room visits and hospital admissions .…”

Section: Specific Telehealth Applications For Neuromuscular or Musculmentioning

confidence: 99%

Telehealth applications for outpatients with neuromuscular or musculoskeletal disorders

Howard

Kaufman

2018

Muscle and Nerve

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Telehealth describes the provision of medical services remotely through technology, and may enhance patient access to specialty care services. Although teleneurology has expanded widely since the introduction of telestroke in 1999, telehealth services for outpatients with neuromuscular or musculoskeletal disorders are less widespread. In this narrative review, we will describe the current technology, applications, outcomes, and limitations of this dynamically growing field. Evidence for telehealth applications related to neuromuscular diseases, palliative care, specialized multidisciplinary services, and musculoskeletal care are reviewed. With growing demand for specialized services and finite resources, telehealth provides a promising avenue to promote access to high-quality care, decrease the cost and burden of travel for patients, and with the expansion of software to personal computing and mobile devices, offer flexible, low-overhead practice opportunities for clinicians. Providers embarking on careers in telehealth should be aware of current legal restrictions impacting care to minimize risk and avoid liability. Muscle Nerve 58: 475-485, 2018.

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“…Similar reasons were expressed by our cohort, although with lesser frequency. Travel and time factors may be resolved by use of telehealth which has been utilised with success in MND …”

Section: Discussionmentioning

confidence: 99%

“…Travel and time factors may be resolved by use of telehealth which has been utilised with success in MND. 9 Transition from paediatric to adult services has been associated with deterioration in health and highlights the potential for disintegration of care for patients with NMD. Many transfer from a networked paediatric team to fragmented adult care.…”

Section: Brief Communicationsmentioning

confidence: 99%

Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital

Anderson

Tay

Denby

et al. 2018

Internal Medicine Journal

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Patients with neuromuscular diseases benefit from coordinated multidisciplinary care to achieve best outcomes. The integration of multi‐specialty healthcare delivered in a single clinic can be challenging for service providers due to cost and resource limitation. Our cross‐sectional survey of 53 adult patients with neuromuscular disease across Queensland revealed only 27% support the introduction of an integrated multidisciplinary clinic. The most cited reason for opposition to a multidisciplinary clinic was a perceived loss of contact with one's usual doctor. Modifying service delivery in neuromuscular disease is a complex undertaking and will need input from numerous stakeholders.

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Incorporation of telehealth into a multidisciplinary ALS Clinic: feasibility and acceptability

Abstract: Telehealth was generally viewed favourably by ALS patients, caregivers, and multidisciplinary team members. Improvements in technology and in methods to provide satisfactory remote care without person-to-person contact should be explored.

Cited by 72 publications

References 25 publications

Integration of a palliative care specialist in an amyotrophic lateral sclerosis clinic: Observations from one center

Integration of a palliative care specialist in an amyotrophic lateral sclerosis clinic: Observations from one center

Telehealth applications for outpatients with neuromuscular or musculoskeletal disorders

Improving service delivery for neuromuscular diseases: a survey of consumers at a tertiary Australian hospital

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