Improving transplant education in the dialysis setting: the “explore transplant” initiative

Waterman, Amy D.; Hyland, Shelley S.; Goalby, Christina J.; Robbins, Mark L.; Dinkel, Katrina M.

doi:10.1002/dat.20452

Cited by 29 publications

(48 citation statements)

References 28 publications

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“…To overcome these barriers, training sessions led by transplant experts designed to improve dialysis providers' transplant knowledge and capacity to educate their own patients about LDKT and provide them with education to disseminate to their own patients may be helpful (41). Further research must determine to what extent this type of training is needed and how it can be most effective.…”

Section: Dialysis Providers Should Be Trained To Educate Their Own Pamentioning

confidence: 99%

Living Donor Kidney Transplantation

Waterman¹,

Morgievich²,

Cohen³

et al. 2015

Clinical Journal of the American Society of Nephrology

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Living donor kidney transplantation (LDKT) offers better quality of life and clinical outcomes, including patient survival, compared with remaining on dialysis or receiving a deceased donor kidney transplant. Although LDKT education within transplant centers for both potential recipients and living donors is very important, outreach and education to kidney patients in settings other than transplant centers and to the general public is also critical to increase access to this highly beneficial treatment. In June 2014, the American Society of Transplantation's Live Donor Community of Practice, with the support of 10 additional sponsors, convened a consensus conference to determine best practices in LDKT, including a workgroup focused on developing a set of recommendations for optimizing outreach and LDKT education outside of transplant centers. Members of this workgroup performed a structured literature review, conducted teleconference meetings, and met in person at the 2-day conference. Their efforts resulted in consensus around the following recommendations. First, preemptive transplantation should be promoted through increased LDKT education by primary care physicians and community nephrologists. Second, dialysis providers should be trained to educate their own patients about LDKT and deceased donor kidney transplantation. Third, partnerships between community organizations, organ procurement organizations, religious organizations, and transplant centers should be fostered to support transplantation. Fourth, use of technology should be improved or expanded to better educate kidney patients and their support networks. Fifth, LDKT education and outreach should be improved for kidney patients in rural areas. Finally, a consensus-driven, evidencebased public message about LDKT should be developed. Discussion of the effect and potential for implementation around each recommendation is featured, particularly regarding reducing racial and socioeconomic disparities in access to LDKT. To accomplish these recommendations, the entire community of professionals and organizations serving kidney patients must work collaboratively toward ensuring accurate, comprehensive, and up-to-date LDKT education for all patients, thereby reducing barriers to LDKT access and increasing LDKT rates.

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Section: Dialysis Providers Should Be Trained To Educate Their Own Pamentioning

confidence: 99%

Living Donor Kidney Transplantation

Waterman¹,

Morgievich²,

Cohen³

et al. 2015

Clinical Journal of the American Society of Nephrology

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“…Transplant education tailored to the patients’ disease stage, 22 level of readiness to get a transplant, 23 or life circumstances 24 may more successfully assist ESRD patients in making an informed decision about their treatment. One study 24 compared the implementation of a home-based kidney transplant education program with the standard education provided at a transplant center.…”

Section: Literature Reviewmentioning

confidence: 99%

“…23 Explore Transplant increased dialysis patients’ knowledge of transplant, positive attitudes toward transplant, and the frequency with which they called a transplant center to begin transplant evaluation. 27 More research is needed to determine the type of tailored strategies and the number of sessions that are most effective in this specific population.…”

Section: Literature Reviewmentioning

confidence: 99%

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Applying Best Practices to Designing Patient Education for Patients with End-Stage Renal Disease Pursuing Kidney Transplant

et al. 2015

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Despite the known benefits of kidney transplant, less than 30% of the 615000 patients living with end-stage renal disease (ESRD) in the United States have received a transplant. More than 100000 people are presently on the transplant waiting list. Although the shortage of kidneys for transplant remains a critical factor in explaining lower transplant rates, another important and modifiable factor is patients’ lack of comprehensive education about transplant. The purpose of this article is to provide an overview of known best practices from the broader literature that can be used as an evidence base to design improved education for ESRD patients pursuing a kidney transplant. Best practices in chronic disease education generally reveal that education that is individually tailored, understandable for patients with low health literacy, and culturally competent is most beneficial. Effective education helps patients navigate the complex health care process successfully. Recommendations for how to incorporate these best practices into transplant education design are described. Providing more ESRD patients with transplant education that encompasses these best practices may improve their ability to make informed health care decisions and increase the numbers of patients interested in pursuing transplant.

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“…Comparative- and cost-effectiveness analyses must be performed to determine which educational strategies can provide effective education with lower resource investment. Further, dissemination and implementation studies of currently evidence-based pro- grams [37, 42•, 45, 46, 66] are needed to determine if their effects are maintained when the programs are scaled to reach many thousands of patients, and to identify additional or unexpected barriers that may arise with large-scale implementation.…”

Section: Resultsmentioning

confidence: 99%

Educating Prospective Kidney Transplant Recipients and Living Donors about Living Donation: Practical and Theoretical Recommendations for Increasing Living Donation Rates

2016

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A promising strategy for increasing living donor kidney transplant (LDKT) rates is improving education about living donation for both prospective kidney transplant recipients and living donors to help overcome the proven knowledge, psychological, and socioeconomic barriers to LDKT. A recent Consensus Conference on Best Practices in Live Kidney Donation recommended that comprehensive LDKT education be made available to patients at all stages of chronic kidney disease (CKD). However, in considering how to implement this recommendation across different healthcare learning environments, the current lack of available guidance regarding how to design, deliver, and measure the efficacy of LDKT education programs is notable. In the current article, we provide an overview of how one behavior change theory, the Transtheoretical Model of Behavior Change, can guide the delivery of LDKT education for patients at various stages of CKD and readiness for LDKT. We also discuss the importance of creating educational programs for both potential kidney transplant recipients and living donors, and identify key priorities for educational research to reduce racial disparities in LDKT and increase LDKT rates.

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Improving transplant education in the dialysis setting: the “explore transplant” initiative

Cited by 29 publications

References 28 publications

Living Donor Kidney Transplantation

Living Donor Kidney Transplantation

Applying Best Practices to Designing Patient Education for Patients with End-Stage Renal Disease Pursuing Kidney Transplant

Educating Prospective Kidney Transplant Recipients and Living Donors about Living Donation: Practical and Theoretical Recommendations for Increasing Living Donation Rates

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