Improving Quality of Life and Career Attitudes of Youth With Disabilities

Wolf-Branigin, Michael; Schuyler, Vincent E.; White, Patience H.

doi:10.1177/1049731506295623

Cited by 29 publications

(13 citation statements)

References 26 publications

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“…Consistent evidence shows that people with disabilities are under-represented in the workforce despite their willingness and ability to work [2,3]. Having a disability is a key barrier to obtaining paid employment [4][5][6][7] due to a wide variety of factors such as stigma and discrimination [8,9], inadequate transportation and support, low self-esteem, inaccessible jobs and non-accommodating environments [8][9][10]. As a result of the challenges in finding employment, people with disabilities are consistently found either unemployed or working in low paying and low status jobs [6,11,12].…”

Section: Introductionmentioning

confidence: 99%

An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers, and job counselors

Lindsay

McDougall

Menna-Dack

et al. 2014

Disability and Rehabilitation

100

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Clinicians working with youth should promote the development of skills that can lead to improved self-confidence and communication skills for youth. Encourage the development of extracurricular activities and social networking to build these skills and to make contacts for finding employment. Clinicians should support youth with disabilities and their parents in practicing independence skills (such as self-care, self-advocacy and navigating public transportation) they need prior to seeking employment. Vocational rehabilitation professionals should educate youth on how to disclose their condition to a potential employer, how to ask for ask for accommodations and how to market their abilities. Clinicians should help to link youth with disabilities to volunteer opportunities and to employers. Advocate for disability awareness training for employers regarding how to accommodate people with disabilities and the potential they offer in the workplace.

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Section: Introductionmentioning

confidence: 99%

An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers, and job counselors

Lindsay

McDougall

Menna-Dack

et al. 2014

Disability and Rehabilitation

100

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“…Several clinical studies have found this age to be an appropriate time to initiate the process to most successfully affect the transition's outcome. [27][28][29] Children and youth with special health care needs and their families may benefit from discussions regarding adult transitioning that begin earlier than 12 years of age, depending on specific patient circumstances. Expectations for vocation, independent living, guardianship, reproduction, life expectancy, and other topics should be discussed at the earliest possible opportunity with parents and/or other appropriate caregivers if it is determined that the child's transition process will be different from that of children without special health care needs.…”

Section: Medical Home Interaction For Patients > 12 Years Of Agementioning

confidence: 99%

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Cooley¹,

Sagerman²,

et al. 2011

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Optimal health care is achieved when each person, at every age, receives medically and developmentally appropriate care. The goal of a planned health care transition is to maximize lifelong functioning and well-being for all youth, including those who have special health care needs and those who do not. This process includes ensuring that high-quality, developmentally appropriate health care services are available in an uninterrupted manner as the person moves from adolescence to adulthood. A well-timed transition from child- to adult-oriented health care is specific to each person and ideally occurs between the ages of 18 and 21 years. Coordination of patient, family, and provider responsibilities enables youth to optimize their ability to assume adult roles and activities. This clinical report represents expert opinion and consensus on the practice-based implementation of transition for all youth beginning in early adolescence. It provides a structure for training and continuing education to further understanding of the nature of adolescent transition and how best to support it. Primary care physicians, nurse practitioners, and physician assistants, as well as medical subspecialists, are encouraged to adopt these materials and make this process specific to their settings and populations.

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“…The control group was exposed to the following: Session 1 required the adolescent and family complete a developmental history (Barkley) survey 28 ; Session 2 consisted of a discussion on health and safety, such as wearing a helmet, exercise (Bright Futures) 29 ; and Session 3 consisted of a school and career planning interview (Adolescent Employment Readiness Center). 30 Each of the three intervention and three control sessions were immediately followed by a Satisfaction Questionnaire administered by a research assistant.…”

Section: Session 3 the Five Wishesmentioning

confidence: 99%

Development, Feasibility, and Acceptability of the Family/Adolescent-Centered (FACE) Advance Care Planning Intervention for Adolescents with HIV

Lyon

Garvie²,

Briggs³

et al. 2009

Journal of Palliative Medicine

137

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Objectives: To develop, adapt, and ensure feasibility, acceptability, and safety of the Family=Adolescent-Centered (FACE) Advance Care Planning intervention. Patients and Methods: Two-group, randomized, controlled trial in two hospital-based outpatient clinics in Washington, D.C. and Memphis, Tennessee, from 2006 to 2008 was conducted. Participants (n ¼ 38 dyads) included medically stable adolescents aged 14 to 21 years with HIV=AIDS and surrogates=families over age 20. Three 60-to 90-minute sessions were conducted via a semistructured family interview with a trained=certified interviewer. Intervention received: (1) Lyon Advance Care Planning Survey; (2) Respecting Choices interview; and (3) Five Wishes. Control received (1) Developmental History, (2) Health Tips, and (3) Future Plans. Feasibility was measured by percent enrollment, attendance, retention, and completeness of data. Acceptability and safety were measured by Satisfaction Questionnaire, using longitudinal regression analysis. Results: Adolescents' mean age was 16 years; 40% were males; 92% were black; HIV transmission rate was 68% perinatal and 32% sexually acquired; 42% were asymptomatic; 29% were symptomatic; and 29% had a diagnosis of AIDS. Intervention adolescents were more likely to rate sessions positively ( p ¼ 0.002) and less likely to rate sessions negatively ( p ¼ 0.011) than controls. Guardians=surrogates were more likely to rate the sessions positively ( p ¼ 0.041) and demonstrated no difference in rating sessions negatively ( p ¼ 0.779) than controls. Conclusions: Existing advance care planning models can be adapted for age, disease, and culture. Adolescents with HIV=AIDS were satisfied with an advance care planning approach that facilitated discussion about their end-of-life wishes with their families. Families acknowledged a life-threatening condition and were willing to initiate end-of-life conversations when their adolescents were medically stable.

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Improving Quality of Life and Career Attitudes of Youth With Disabilities

Cited by 29 publications

References 26 publications

An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers, and job counselors

An ecological approach to understanding barriers to employment for youth with disabilities compared to their typically developing peers: views of youth, employers, and job counselors

Supporting the Health Care Transition From Adolescence to Adulthood in the Medical Home

Development, Feasibility, and Acceptability of the Family/Adolescent-Centered (FACE) Advance Care Planning Intervention for Adolescents with HIV

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