Improving public stigma, sociocultural beliefs, and social identity for people with epilepsy in the Aseer region of Saudi Arabia

Ghaffar, Nawal F. Abdel; Asiri, Reem N.; AL-Eitan, Laith N.; Alamri, Reem S.; Alshyarba, Reem M.; Alrefeidi, Faris A.; Asiri, Ashwag; Alghamdi, Mansour A.

doi:10.1016/j.ebr.2021.100442

Cited by 8 publications

(10 citation statements)

References 59 publications

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“…It was found that the HRQOL of children with epilepsy should be considered beyond the microsystem directly related to the child. Community resources, such as healthcare facilities for disease management, psychosocial interventions, epilepsy-related education, school personnel trained to deal with and handle seizure attacks, and facilities free of physical damage, have been used as external systems to improve HRQOL in children with epilepsy [ 5 , 32 , 35 , 41 , 43 - 50 ].…”

Section: Resultsmentioning

confidence: 99%

Health-related quality of life in children with epilepsy: a concept analysis

Choi¹,

Bang²

2023

Child Health Nurs Res

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Purpose: This study aimed to conduct a concept analysis of health-related quality of life in children with epilepsy to promote conceptual clarification and facilitate mutual understanding of the concept. Methods: Walker and Avant's concept analysis method was adopted.Results: Health-related quality of life in children with epilepsy consists of six attributes: health status, inner strength, close relationships, resource-rich community, social acceptance, and changeability. According to the ecological system paradigm, these attributes are structured into five dimensions: organism, microsystem, macrosystem, exosystem, and chronosystem. These dimensions provide a comprehensive approach to the relationship between children with epilepsy and their environment. Epilepsy and interactions with multilevel ecological systems that are directly and indirectly related to children with epilepsy precede the concept, followed by positive and negative affective responses.Conclusion: The findings of this study may support effective communication in various practice settings, thereby contributing to the health and well-being of children with epilepsy, as well as the development and expansion of interventions to improve their health-related quality of life.

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Section: Resultsmentioning

confidence: 99%

Health-related quality of life in children with epilepsy: a concept analysis

Choi¹,

Bang²

2023

Child Health Nurs Res

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“…Furthermore, 40.1% are convinced that it is due to a spiritual reason. 6 Likewise, according to a study conducted among the Kuwaiti population, 88.3% indicated that putting an object in the patient's mouth to prevent him from biting his tongue during a seizure is appropriate. 20 Furthermore, according to the results of a survey conducted among a sample of people with a high level of education in Tehran, 17% indicated that the will of God was the cause.…”

Section: Discussionmentioning

confidence: 99%

“…[2][3][4] Epilepsy is often related to the misconception, fear, stigma, and myths in the general population and even among healthcare professionals. [5][6][7][8] In many parts of the world, and primarily in low-and middle-income countries, more than 75% of people with active epilepsy are untreated, which is a health and economic burden. 9 Indeed, several psychosocial and cultural factors are important determinants of the clinical course of epilepsy and are often among the main barriers to appropriate care and treatment.…”

Section: Introductionmentioning

confidence: 99%

“The understanding and attitude toward epilepsy in the Souss‐Massa region of Morocco”

Tani

Adali

2023

Epilepsia Open

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“…The results showed that 374 (94.9%) of the students agreed that epilepsy is not contagious, and 215 (54.6%) of the students denied the impact of epilepsy on patients’ marital status, relationships, and fertility. In a survey done by Ghaffar et al 18 in the Aseer region of Saudi Arabia, 95.8% of the participants disputed that epilepsy is a contagious illness. The population’s knowledge regarding epilepsy improved in KSA in the past few years as the percentage of believers in epilepsy as contagious decreased in different regions decreased relatively.…”

Section: Discussionmentioning

confidence: 99%

“…This conclusion is in line with the findings of other studies. 18 , 21 , 22 Approximately 334 (84.8%) respondents believe epilepsy is a disease, while 123 (31.2%) believe epilepsy is a supernatural phenomenon or black magic, indicating a negative attitude toward epilepsy, implying that despite public awareness efforts and modern education, a negative perception of PWE still exists in Saudi Arabia. This situation also exists in other Middle Eastern nations, such as the United Arab Emirates 25 and Iran.…”

Section: Discussionmentioning

confidence: 99%

Epilepsy Stigma Among University Students in Makkah: A Cross-Sectional Study

Alkhotani¹,

Alkhotani²

2022

NDT

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Background Epilepsy is a neurological disorder characterized by a persistent propensity to generate recurring epileptic seizures. Young adults such as university students can bridge the gap and improve attitudes toward patients with epilepsy and reduce stigma. This study aims to assess the knowledge and attitude of university students in the city of Makkah about epilepsy. Methods This cross-sectional descriptive study was carried out at main universities in the Makkah region of Saudi Arabia. The study was conducted after getting approval from Umm Al-Qura University’s ethics and research committee. A total of 394 participants were enrolled in the study, and a stratified random sampling (probability sampling) technique was used to select respondents. Results The study included students with a mean age of 20.9 ± 4.6 (18–28 years), 271 (68.8%) students were females, 374 (94.9%) of the students agreed that epilepsy is not contagious, and 215 (54.6%) refused the impact of epilepsy on patients’ marital status, relationships and fertility, respectively, 213 (54.1%) of the students reported that they feel scared to witness a seizure. About 334 (84.8%) respondents believed that epilepsy is an affliction, and 123 (31.2%) reported that they thought epilepsy was a supernatural phenomenon or black magic. Conclusion The study concluded a satisfactory level of awareness among university students in Makkah related to dealing with patients with epilepsy. Further scientific studies will help build student’s positive attitudes through simulation programs and interventional studies.

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Improving public stigma, sociocultural beliefs, and social identity for people with epilepsy in the Aseer region of Saudi Arabia

Abstract: Highlights An update of the data reported previously in 2016 in Aseer region. The level of education and awareness regarding epilepsy in Aseer region has improved recently. The belief in spiritual and traditional therapies has decreased, considering them as additional options.

Cited by 8 publications

References 59 publications

Health-related quality of life in children with epilepsy: a concept analysis

Health-related quality of life in children with epilepsy: a concept analysis

“The understanding and attitude toward epilepsy in the Souss‐Massa region of Morocco”

Epilepsy Stigma Among University Students in Makkah: A Cross-Sectional Study

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