Improving hospital care for young children in the context of HIV/AIDS and poverty

Richter, Linda; Chandan, Upjeet; Rochat, Tamsen

doi:10.1177/1367493509336680

Cited by 10 publications

(11 citation statements)

References 29 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Richter et al13 conducted an observational qualitative study of the palliative care needs of children with HIV in KwaZulu-Natal, South Africa. Using videotapes of hospitalized children with HIV/AIDS, they documented routine health care practices, caregiver visits, and challenges to the children’s care.…”

Section: Resultsmentioning

confidence: 99%

Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature

Wilkins¹,

Dallas²,

Fanone³

et al. 2013

HIV

View full text Add to dashboard Cite

Improvement in treatment has led to decreased death in youth with human immunodeficiency virus (HIV) in developed countries. Despite this, youth with HIV are still at risk for increased mortality and morbidity compared with their uninfected counterparts. In developing countries, high numbers of youth die from acquired immune deficiency syndrome (AIDS)-related illnesses due to lack of access to consistent antiretroviral treatment. As a result, pediatric palliative care is a relevant topic for those providing care to youth with HIV. A systematic review was conducted to gather information regarding the status of the literature related to pediatric palliative care and medical decision-making for youth with HIV. The relevant literature published between January 2002 and June 2012 was identified through searches conducted using PubMed, CINAHL, Scopus, and PSYCInfo databases and a series of key words. Articles were reviewed by thematic analysis using the pillars of palliative care set out by the National Consensus Project. Twenty-one articles were retained after review and are summarized by theme. In general, few empirically based studies evaluating palliative care and medical decision-making in youth with HIV were identified. Articles identified focused primarily on physical aspects of care, with less attention paid to psychological, social, ethical, and cultural aspects of care. We recommend that future research focuses on broadening the evaluation of pediatric palliative care among youth with HIV by directly evaluating the psychological, social, ethical, and cultural aspects of care and investigating the needs of all involved stakeholders.

show abstract

Section: Resultsmentioning

confidence: 99%

Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature

Wilkins¹,

Dallas²,

Fanone³

et al. 2013

HIV

View full text Add to dashboard Cite

show abstract

“…However, the findings are likely to resonate with other areas of southern Africa with similar problems. While some South African research exists to guide the use of play in health settings and the provision of psycho-social support for children [12,16,41,42], very little research has examined children's own experience of health care services. The existing evidence base is limited to a few, mostly qualitative studies in Europe, Australia and North America [11,19,33,43].…”

Section: Discussionmentioning

confidence: 99%

Mothers’ and health workers’ perceptions of participation in a child-friendly health initiative in rural South Africa

Mkwanazi¹,

Rochat²,

Coetzee³

et al. 2013

Health

Self Cite

View full text Add to dashboard Cite

Background: Primary health care clinics promote health in addition to treating illness, but are often perceived as unfriendly and frightening places for children. This research aimed to improve child-friendliness in primary health care settings in a rural, high HIV prevalence area in South Africa. Methods: As part of a larger intervention ("Amagugu" Intervention) health staff in nine primary health care clinics were trained in a child-friendliness approach. 281 enrolled mothers were invited to attend clinic with their primary school-aged children and assessed childfriendliness via structured questionnaires administered by independent assessors; a subgroup also participated in in-depth interviews. Post intervention, focus groups were conducted with 87 primary health staff to determine their experiences of providing child-friendly services. Results: Mothers rated 65% of clerks and 70% of nurses as "very friendly". Qualitative data showed that heavy clinical loads, limited human resources and inadequate infrastructure were perceived as barriers to child-friendliness, while good clinic leadership and appropriate resources facilitated child-friendliness. Post intervention most health workers reported that child-friendly health promotion activities were rewarding. Conclusions: Providing child-friendliness training and support to primary health care facilities in low-resource settings is feasible, acceptable and yielded encouraging results.

show abstract

“…This is compounded by nurse training, skills, and support that are not always equivalent to the demands of care. As a means of coping, nursing staff often become emotionally withdrawn, less compassionate, and burntout [8]. Such detached stance cannot only directly compromise the quality of child care, but can often lead to depletion in nurses' resources to communicate with caregivers about their children's conditions and to support caregivers' participation in their children's care.…”

Section: Introductionmentioning

confidence: 99%

“…Under these strained conditions, children's medical, nutritional as well as their social and emotional needs may be neglected. Children move between states of fretful sleep, distressed crying, and withdrawn immobility [8]; as a result of being understimulated in interaction with unresponsive caregivers, children may become socially withdrawn, feed poorly, and recover unevenly.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Evaluation of a Brief Intervention to Improve the Nursing Care of Young Children in a High HIV and AIDS Setting

Richter

Rochat

Hsiao

et al. 2012

Nursing Research and Practice

View full text Add to dashboard Cite

The HIV epidemic in South Africa is putting great strain on health services, including the inpatient care of young children. Caregivers and young children (107 pairs) and 17 nurses participated in an intervention to improve the care of young children in hospital in a high HIV and AIDS setting. The intervention addressed caregiver expectations about admission and treatment, responsive feeding, coping with infant pain and distress, assistance with medical procedures, and preparation for discharge and home care. Following a preparatory and piloting phase, measures of nurse burnout, caregiver physical and emotional well-being, and caregiver-child interaction were made before and after intervention. No changes were found between before and after intervention on assessments of caregiver wellbeing. However, mothers in the postintervention phase rated nurses as more supportive; mother-child interaction during feeding was more relaxed and engaged, and babies were less socially withdrawn. While the intervention proved useful in improving certain outcomes for children and their caregivers, it did not address challenging hospital and ward administration or support needed by caregivers at home following discharge. To address the latter need, the intervention has been extended into the community through home-based palliative care and support.

show abstract

Improving hospital care for young children in the context of HIV/AIDS and poverty

Cited by 10 publications

References 29 publications

Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature

Pediatric palliative care for youth with HIV/AIDS: systematic review of the literature

Mothers’ and health workers’ perceptions of participation in a child-friendly health initiative in rural South Africa

Evaluation of a Brief Intervention to Improve the Nursing Care of Young Children in a High HIV and AIDS Setting

Contact Info

Product

Resources

About