Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts

Mertens, Ann C.; Cotter, Kelly L.; Foster, Barbara; Zebrack, Brad; Hudson, Melissa M.; Eshelman, Debra A.; Loftis, Lauren; Sozio, Margaret S.; Oeffinger, Kevin C.

doi:10.1016/j.healthpol.2003.12.008

Cited by 96 publications

(90 citation statements)

References 35 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Adolescent and young adult access to psychotherapeutic and/or pharmacological treatments for clinical distress, and even medical treatment for late effects and other health problems, is limited by possession of health insurance. Combined with other factors that preclude childhood survivors from accessing or utilizing follow-up care (e.g., geographic mobility, belief that they do not need follow-up care) [50,51], many survivors who may be in need do not benefit from biomedical and psychopharmacological interventions. Indeed, evidence suggests that many long-term survivors of childhood cancer do not receive adequate or appropriate long-term follow-up care [52][53][54].…”

Section: Discussionmentioning

confidence: 99%

The perceived impact of cancer on quality of life for post-treatment survivors of childhood cancer

Zebrack

Landier

2011

Qual Life Res

View full text Add to dashboard Cite

show abstract

Section: Discussionmentioning

confidence: 99%

The perceived impact of cancer on quality of life for post-treatment survivors of childhood cancer

Zebrack

Landier

2011

Qual Life Res

View full text Add to dashboard Cite

show abstract

“…Given that survivors of childhood cancer have an increased risk for secondary cancers, cardiovascular disease, osteoporosis, and diabetes, these findings initially give pause and then provide evidence that lifestyle interventions may indeed hold particular promise for this vulnerable population. The need to promote and encourage healthy behaviors and lifestyles among survivors of childhood cancer was recently identified by a delphi panel of healthy policy experts, 43 and also is documented in risk-based guidelines for survivors of pediatric cancer established by the Children's Oncology Group. 44 The time has come to aggressively address this need with interventions that are acceptable and bear optimal potential for success.…”

Section: Asmentioning

confidence: 99%

Survivors of childhood cancer and their guardians

Demark‐Wahnefried

Werner

Clipp

et al. 2005

Cancer

144

143

View full text Add to dashboard Cite

BACKGROUNDSurvivors of childhood cancer are at increased risk for osteoporosis, cardiovascular disease, and second malignancies—conditions for which modifiable risk factors are recognized and lifestyle interventions have shown benefit. Although some data regarding health behaviors of this population exist, receptivity to health promotion is largely unknown.METHODSA survey was mailed to 380 survivors (age range, 11–33 years) of childhood leukemia, lymphoma, or central nervous system carcinomas (and guardians of survivors < 18 years old) to elicit data on exercise, dietary intake of calcium, fat, and fruits and vegetables, smoking status, readiness to pursue lifestyle change, quality of life, and interest in various health interventions.RESULTSResponses from 209 survivors (a 55% response rate) suggested that most did not meet guidelines for fruit and vegetable consumption (79%), calcium intake (68%), or exercise (52%), 42% were overweight/obese, and 84% consumed > 30% of calories from fat. Older (> 18 years) compared with younger (< 18 years) survivors were more likely to smoke (17% vs. 1%), to be obese (21.6% vs. 14.6%), and to have suboptimal calcium intakes (75.6% vs. 57.6%). No differences in lifestyle behaviors were observed between cancer groups. Compared with interventions aimed at weight control, improving self‐esteem, or smoking cessation, the highest levels of interest were found consistently for interventions aimed at getting in shape and eating healthy. Survivors preferred mailed interventions to those delivered in‐person, by telephone counselors, or via computers.CONCLUSIONSSurvivors of childhood cancer practiced several suboptimal health behaviors. Health promotion interventions aimed at areas of interest and delivered through acceptable channels have the potential to improve long‐term health and function of this vulnerable population. Cancer 2005. © 2005 American Cancer Society.

show abstract

“…1,2 For example, although Hodgkin's Disease (HD) carries a cure rate of over 90%, 3 female HD survivors are at an exceedingly high risk for breast cancer secondary to having received chest irradiation. 4,5 Relative risks for breast cancer in these women are 30 to 50 times greater than risk for women who have not had Hodgkins 6,7 and it has been estimated that up to 30% of HD survivors will be diagnosed with breast cancer by age 40.…”

mentioning

confidence: 99%

Perceptions of breast cancer risk and cancer screening: A qualitative study of Young, female Hodgkin’s Disease survivors

et al. 2007

View full text Add to dashboard Cite

show abstract

Improving health care for adult survivors of childhood cancer: recommendations from a delphi panel of health policy experts

Cited by 96 publications

References 35 publications

The perceived impact of cancer on quality of life for post-treatment survivors of childhood cancer

The perceived impact of cancer on quality of life for post-treatment survivors of childhood cancer

Survivors of childhood cancer and their guardians

Perceptions of breast cancer risk and cancer screening: A qualitative study of Young, female Hodgkin’s Disease survivors

Contact Info

Product

Resources

About