Improving Family Functioning Following Diagnosis of ASD: A Randomized Trial of a Parent Mentorship Program

Moody, Eric J.; Kaiser, Kristen; Sharp, Devin; Kubicek, Lorraine F.; Rigles, Bethany; Davis, Jonathan M.; McSwegin, Sarah; D'Abreu, Larissa; Rosenberg, Cordelia Robinson

doi:10.1007/s10826-018-1293-z

Cited by 26 publications

(42 citation statements)

References 41 publications

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“…Twelve studies used direct methods (e.g., parent-mediated home-based training, family-centred intervention, parent mentoring program) to involve parents in the interventions [ 41 , 42 , 43 , 45 , 47 , 48 , 49 , 50 , 51 , 52 ].…”

Section: Resultsmentioning

confidence: 99%

“…The majority of studies found that parental QoL improved after the intervention and, crucially, two studies found that parental direct involvement in the intervention was associated with greater parental QoL [ 41 , 43 ]. Specifically, parents of children with ASD showed significantly improved QoL after they participated in a parent-mediated communication-focused intervention [ 45 , 46 ], a family-centred intervention [ 49 ], an ABA-based home program [ 50 ], and the Colorado parent mentoring (CPM) program [ 52 ]. Moreover, parents of children with ASD who participated in a multidisciplinary parent education program reported increased mental, but not physical, QoL [ 43 , 48 ].…”

Section: Resultsmentioning

confidence: 99%

“…The reviewed studies used heterogeneous designs and data collection methods and the majority of the studies had relatively small sample sizes [ 39 , 41 , 42 , 43 , 46 , 49 , 50 , 52 , 53 , 54 ], which limits our ability to draw firm conclusions about the association between parental QoL and involvement in interventions for youth with ASD.…”

Section: Discussionmentioning

confidence: 99%

“…This may be a sign in the shift in perspective that is occurring in interventions for individuals with ASD and an increased awareness by professionals of the role of parents to implement effective interventions [ 46 ]. Parents who were directly involved in the intervention tended to report a higher QoL [ 43 , 45 , 46 , 49 , 50 , 51 , 52 ]. For example, in one study [ 43 ], 22 caregivers of children with ASD participated in an 8-week multidisciplinary education programme, with the intent to learn adaptive strategies and manage the problem behaviours of their child, and consequently to improve the intrafamilial QoL.…”

Section: Discussionmentioning

confidence: 99%

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Parental Quality of Life and Involvement in Intervention for Children or Adolescents with Autism Spectrum Disorders: A Systematic Review

Musetti

Manari

Dioni

et al. 2021

JPM

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Previous research has examined several parental, child-related, and contextual factors associated with parental quality of life (QoL) among parents with a child or an adolescent with autism spectrum disorders (ASD); however, no systematic review has examined the relationship between parental QoL and parental involvement in intervention. To fill this gap, a systematic review was conducted using four electronic databases and checked reference lists of retrieved studies. Records were included in the systematic review if they presented original data, assessed parental QoL, and involvement in intervention for children or adolescents with ASD, were published in peer-reviewed journals between 2000 and 2020, and were written in English. Among the 96 screened full-texts, 17 articles met the eligibility criteria. The selected studies included over 2000 parents of children or adolescents with ASD. Three categories of parental involvement (i.e., none, indirect, direct) were identified, which varied across studies, although most had direct parental involvement. The results from this review show that increased parental involvement in the intervention for children or adolescents with ASD may be one way to promote their QoL. However, further research specifically focused on parental involvement during the intervention for children and adolescents with ASD is warranted.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Parental Quality of Life and Involvement in Intervention for Children or Adolescents with Autism Spectrum Disorders: A Systematic Review

Musetti

Manari

Dioni

et al. 2021

JPM

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“…En primer lugar, no se consideró el tiempo que los participantes llevaban asistiendo al instituto DINA, como método terapéutico para los niños, y a la escuela de padres, como proceso formativo. Esto es, sin duda, un aspecto importante que se debe considerar ya que, en el trabajo de Ayuda-Pascual et al (2012), se toman 27 familias que pasan por cuatro bloques de ocho horas cada uno, distribuidos en cuatro fines de semana donde se toman diferentes temas relacionados sobre el autismo; después del proceso de formación, se observan tendencias de mejora en la disminución del estrés de los padres y en la valoración de la calidad del tiempo compartido, resultados que han sido confirmados por otras investigaciones (Moody et al, 2019). En segundo lugar, la muestra de niños utilizada corresponde, en su mayoría, a niños con síndrome de Asperger o autismo de alto funcionamiento, y estos presentan mayor desarrollo de conductas adaptativas y un perfil neuropsicológico con más fortalezas, lo cual disminuye el número de horas de cuidado requeridas (Cid- García, 2016;Pérez & Martínez, 2014).…”

Section: Discussionunclassified

Calidad de vida y sobrecarga en cuidadores primarios de población infantil con Trastorno del Espectro Autista de la ciudad de Manizales

Mesa

Reyes

López³

2021

cuad.hispanoam.psicol

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Los cuidadores primarios de niños con autismo muestran menor calidad de vida, mayor sobrecarga y depresión. El objetivo del presente estudio es determinar la relación entre calidad de vida y sobrecarga en cuidadores primarios de niños con trastorno del espectro autista (TEA) que asisten al Instituto para el desarrollo integral del niño autista. La presente investigación es de corte descriptivo, correlacional y transversal. La muestra, intencional y por conveniencia, estuvo conformada por 29 cuidadores primarios de niños y niñas con TEA. El análisis de la información, recolectada mediante la encuesta sociodemográfica, la escala de sobrecarga del cuidador de Zarit, la encuesta PHQ-9 y la encuesta SF-36, se llevó a cabo mediante el software de procesamiento estadístico SPSS, versión 21. No se evidenciaron alteraciones en las tres variables evaluadas. Los resultados se discuten a la luz de la literatura científica sobre el tema, y los hallazgos permitirán generar políticas públicas enfocadas en el cuidador, para diseñar y fortalecer programas de intervención familiar.

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Family resilience and flourishment: Well‐being among children with mental, emotional, and behavioral disorders

Herbell

Breitenstein

Melnyk

et al. 2020

Research in Nursing & Health

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Approximately 20% of children and adolescents in the United States are affected by mental, emotional, and behavioral (MEB) disorders. Child flourishment and family resilience contribute to healthy family development, including the promotion of child MEB wellbeing. Identifying factors that promote child flourishment and family resilience are critical. This study aimed to determine the prevalence and parenting factors associated with family resilience and child flourishment among children aged 6–17 years with MEB disorders. This was a secondary analysis of the 2016–2017 National Survey of Children's Health. The sample consisted of parents and their children (n = 1,900, weighted n = 5,375,670). Data were weighted to be representative of the US population and analyzed using descriptive statistics and linear regression. We found that only 6.3% of children aged 6–17 with an MEB were optimally flourishing. Parental aggravation was negatively associated with child flourishment, and parental coping was positively associated with child flourishment. In total, 66.5% of families with children exhibited resilience. Parental coping and availability of parental emotional support were positively associated with family resilience. Potential interventions that leverage study findings include parent training to increase parental emotional regulation (e.g., increase frustration tolerance, coping skills) and family navigation services to increase parental support (e.g., emotional support, coping skills) through the child's treatment trajectory. Overall, this study provides evidence of a disparity in flourishment in America's youth with MEB disorders, and despite this adversity, families are resilient.

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Improving Family Functioning Following Diagnosis of ASD: A Randomized Trial of a Parent Mentorship Program

Cited by 26 publications

References 41 publications

Parental Quality of Life and Involvement in Intervention for Children or Adolescents with Autism Spectrum Disorders: A Systematic Review

Parental Quality of Life and Involvement in Intervention for Children or Adolescents with Autism Spectrum Disorders: A Systematic Review

Calidad de vida y sobrecarga en cuidadores primarios de población infantil con Trastorno del Espectro Autista de la ciudad de Manizales

Family resilience and flourishment: Well‐being among children with mental, emotional, and behavioral disorders

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