Improving communication skill training in patient centered medical practice for enhancing rational use of laboratory tests: The core of bioinformation for leveraging stakeholder engagement in regulatory science

Moura, Josemar de Almeida; Costa, Bruna Carvalho; Faria, R.M.; Soares, Taciana F.; Moura, Eliane Perlatto; Chiappelli, Francesco

doi:10.6026/97320630009718

Cited by 13 publications

(6 citation statements)

References 12 publications

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“…Stakeholder analysis must evolve as systematic, sequential scientific process, subject to a stringent process of construct validation designed to identify and characterize sub-constructs related to stakeholder engagement. Stakeholders’ roles, involvement and function must be quantified, including their (1) actions and position; (2) ability and intent to influence implementation; (3) motivation to participate; and (4) capability to change and adapt as the care situation evolves, and calls for adaptive management [ 2 , 16 - 18 ]. Reliable tools must be developed, as mentioned, to that end, which must be bioethically coherent and contemporaneously validated to quantify stakeholders’ beneficial input.…”

Section: Stakeholders In Translational Medicinementioning

confidence: 99%

Stakeholder engagement analysis - a bioethics dilemma in patient-targeted intervention: patients with temporomandibular joint disorders

et al. 2015

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Modern health care in the field of Medicine, Dentistry and Nursing is grounded in fundamental philosophy and epistemology of translational science. Recently in the U.S major national initiatives have been implemented in the hope of closing the gaps that sometimes exist between the two fundamental components of translational science, the translational research and translational effectiveness. Subsequent to these initiatives, many improvements have been made; however, important bioethical issues and limitations do still exist that need to be addressed. One such issue is the stakeholder engagement and its assessment and validation. Federal, state and local organizations such as PCORI and AHRQ concur that the key to a better understanding of the relationship between translational research and translational effectiveness is the assessment of the extent to which stakeholders are actively engaged in the translational process of healthcare. The stakeholder engagement analysis identifies who the stakeholders are, maps their contribution and involvement, evaluates their priorities and opinions, and accesses their current knowledge base. This analysis however requires conceptualization and validation from the bioethics standpoint. Here, we examine the bioethical dilemma of stakeholder engagement analysis in the context of the person-environment fit (PE-fit) theoretical model. This model is an approach to quantifying stakeholder engagement analysis for the design of patient-targeted interventions. In our previous studies of Alzheimer patients, we have developed, validated and used a simple instrument based on the PE-fit model that can be adapted and utilized in a much less studied pathology as a clinical model that has a wide range of symptoms and manifestations, the temporomandibular joint disorders (TMD). The temporomandibular joint (TMJ) is the jaw joint endowed with sensory and motor innervations that project from within the central nervous system and its dysfunction can be manifested systemically in forms of movement disorders, and related pathological symptomatologies.Currently, there is limited reliable evidence available to fully understand the complexity of the various domains of translational effectiveness, particularly in the context of stakeholder engagement and its assessment, validation as well as the bioethical implications as they pertain to evidence-based, effectivness-focused and patient-centered care.

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Section: Stakeholders In Translational Medicinementioning

confidence: 99%

Stakeholder engagement analysis - a bioethics dilemma in patient-targeted intervention: patients with temporomandibular joint disorders

et al. 2015

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“…This bold objective is attainable as we develop new and improved means of engaging stakeholders [9] in healthcare, from diagnosis to clinical decision-making for treatment. This effort requires sustained dissemination of BEB by tele-healthcare and other web-based modalities [10] in a concerted effort at improving the health literacy of the patients, caregivers and stakeholders [10,11].…”

Section: Resultsmentioning

confidence: 99%

Translational Healthcare Can Prevent Ambulatory Diagnostic Failures

Chiappelli¹

2015

Transl Med (sunnyvale)

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Translational medicine, viz. translational healthcare, aims to obtain the best evidence base for improving the health of individuals and to utilize it in specific clinical settings in the community for diagnosis, intervention, policies and education. Diagnostic failures comprise a significant and costly fraction of all healthcare failures in the U.S. and globally with devastating consequences for all stakeholders. One timely and critical question for the continued evolution and establishment of translational healthcare nationally and internationally relates to the role translational healthcare can play in preventing diagnostic failures. Here, we present two clinical situations in dentistry, which have profound and significant systemic sequelae, to exemplify the extent to which the clinical dental sciences are intertwined with the clinical medical sciences. In one case (Ludwig angina cellulitis), the best evidence base obtained through translational effectiveness is discussed as key to preventing diagnostic failures; in the other (disorders of the temporomandibular joint), translational research holds promise as the critical factor in preventing diagnostic failures. Taken together, the case is made that preventable adverse events in healthcare do occur, among which failed diagnoses and misdiagnoses, which can cause serious bodily and financial harm to the patients and stakeholders. Research tools proffered by translational healthcare, if judiciously utilized in the context of GRADE and DECIDE, can serve to prevent ambulatory diagnostic failures. Operationally, we propose that the role of translational healthcare in preventing diagnostic failures must be articulated along the three distinct interrelated domains of (1) engagement of the stakeholders, (2) dissemination and (3) increased health literacy of the best evidence base.

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“…Finally, articles on the personcentered therapy developed by Carl Rogers were excluded because the articles took a therapeutic perspective on PCC, instead of a system-based perspective, which is of interest for this study. The selected literature comprises 29 research papers, 13,27,28,32,[38][39][40][41][42][43][44][45][46][47][48][49][50][51][52][53][54][55][56][57] two health policy documents, 26,58 and one conference abstract. 59 Most studies (n = 27) were published between 2013 and 2021.…”

Section: Descriptive Informationmentioning

confidence: 99%

Conceptualization of patient‐centered care in Latin America: A scoping review

Klimesch,

Martinez‐Pereira,

Topf

et al. 2023

Health Expectations

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IntroductionPatient‐centered care (PCC) has been declared as a desirable goal for health care in Latin American countries, but a coherent definition of what exactly PCC entails for clinical practice is missing. This article's aim was to identify how PCC is conceptualized in Latin American countries.MethodsScientific databases (MEDLINE, EMBASE, PsycINFO, CINAHL, Scielo, Scopus, Web of Science) and webpages of the ministries of health were searched, and experts were contacted for suggestions of literature. References were included if they contained one of a range of a priori defined keywords related to PCC in the title, were published between 2006 and 2021, and were carried out in or concerned Latin America. Definitions of PCC were extracted from the included articles and analyzed using deductive and inductive coding. Deductive coding was based on the integrative model of patient‐centeredness, which unites the definitions of PCC in the international literature (mainly North America and Europe) and proposes 16 dimensions describing PCC.ResultsThirty‐two articles were included in the analysis and about half of them were from Brazil. Numerous similarities were found between the integrative model of patient‐centeredness and the definitions of PCC given in the selected literature. The dimensions of the integrative model of patient‐centeredness that were least and most prominent in the literature were physical support and patient information, respectively. A differentiation between PCC and family‐centered care (FCC) was observed. Definitions of PCC and FCC as well as their cited references were diverse.ConclusionA considerable overlap between the conceptualization of PCC in Latin America and the integrative model of patient‐centeredness has been identified. However, there are substantial differences between countries in Latin America regarding the emphasis of research on PCC versus FCC and diverse conceptualizations of PCC and FCC exist.Patient ContributionThis scoping review takes the patient's perspective based on the integrative model of patient‐centeredness. Due to the study being a review, no patients, neither caregivers, nor members of the public, were involved.

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Improving communication skill training in patient centered medical practice for enhancing rational use of laboratory tests: The core of bioinformation for leveraging stakeholder engagement in regulatory science

Cited by 13 publications

References 12 publications

Stakeholder engagement analysis - a bioethics dilemma in patient-targeted intervention: patients with temporomandibular joint disorders

Stakeholder engagement analysis - a bioethics dilemma in patient-targeted intervention: patients with temporomandibular joint disorders

Translational Healthcare Can Prevent Ambulatory Diagnostic Failures

Conceptualization of patient‐centered care in Latin America: A scoping review

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