Improvements in Hope and Beliefs about Illness Following a Summer Camp for Youth with Chronic Illnesses

Faith, Melissa A.; Mayes, Sunnye; Pratt, Chelsea D.; Carter, Carrick

doi:10.1016/j.pedn.2018.10.016

Cited by 13 publications

(10 citation statements)

References 39 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Less well studied are the promoting and inhibiting factors that influence hope. Few studies have examined hope in the context of pediatric chronic illness [ 8 , 9 , 10 , 11 ]. Therefore, we determined that further formative work was needed in partnership with patients and caregivers to develop a conceptual model to guide our research.…”

Section: Introductionmentioning

confidence: 99%

Getting to Hope: Perspectives from Patients and Caregivers Living with Chronic Childhood Illness

et al. 2021

View full text Add to dashboard Cite

Promoting hope was identified in our prior work as the top priority research question among patients and caregivers with diverse childhood-onset chronic conditions. Here, we aimed to construct a conceptual model to guide future research studies of interventions to improve hope. We conducted eight monthly virtual focus groups and one virtual workshop with patients, caregivers, and researchers to explore key constructs to inform the model. Discussions were facilitated by Patient Co-Investigators. Participants developed a definition of hope and identified promotors and inhibitors that influence the experience of hope. We utilized qualitative methods to analyze findings and organize the promotors and inhibitors of hope within three strata of the socio-ecologic framework: structural, interpersonal, and intrapersonal. Participants identified three types of interventions to promote hope: resources, navigation, and activities to promote social connection. The hope conceptual model can be used to inform the selection of interventions to assess in future research studies aimed at improving hope and the specification of outcome measures to include in hope research studies. Inclusion of the health care system in the model provides direction for identifying strategies for improving the system and places responsibility on the system to do better to promote hope among young patients with chronic illness and their caregivers.

show abstract

Section: Introductionmentioning

confidence: 99%

Getting to Hope: Perspectives from Patients and Caregivers Living with Chronic Childhood Illness

et al. 2021

View full text Add to dashboard Cite

show abstract

“…These results are also consistent with research demonstrating that peer relationships and support are among the positive outcomes of illness-related camps (Bongiovanni et al, 2010; Meltzer et al, 2018). In fact, improving social support constitutes a core objective of interveners in the field, who design camps accordingly (Faith et al, 2019). Using path analysis on cross-sectional data, we found support for a serial mediation model, according to which camp attendance predicted having more friends with CD, which, in turn, predicted higher perceived social support, and which afterwards predicted higher CD-QoL.…”

Section: Discussionmentioning

confidence: 99%

“…In celiac camps, campers often engage in active peer support through intensive socializing and sharing experiences (Faith et al, 2019). Studies found that developing friendships with peers throughout illness-related camps helped campers feel less socially isolated (Hill et al, 2015).…”

Section: The Present Researchmentioning

confidence: 99%

“…One particularly overlooked form of indirect intervention that emphasizes social participation is recreational camps for children and adolescents with CD. Celiac camps enable patients to experience developmentally adequate camp activities in a safe gluten-free environment, an experience that is often denied to them in regular camps (Faith et al, 2019). Studies revealed positive psychosocial outcomes of recreational or therapeutic camps for children with chronic illnesses, including those requiring adherence to a special diet (Barone et al, 2016;Moola et al, 2014;Sendak et al, 2018) Pertaining to CD, research has suggested that taking part in leisure activities has the potential to improve HR-QoL, by helping children to manage the discomfort they experience in the social sphere (de Lorenzo et al, 2012).…”

mentioning

confidence: 99%

See 1 more Smart Citation

The potential benefits of camps for children and adolescents with celiac disease on social support, illness acceptance, and health-related quality of life

Shani

Kraft²,

Müller³

et al. 2020

J Health Psychol

View full text Add to dashboard Cite

Among N = 165 14–22-year-old bearers of celiac disease (CD), the German-based study examined if participation in camps for children with CD is related to higher CD-related quality of life (CD-QoL); N = 48 of the study participants attended at least one camp. Camp participation was found to be related to higher CD-QoL, an effect mediated by having more friends with CD and by perceiving higher social support. Camp participation was also associated with higher illness acceptance and lower anxiety. Results show the potential benefits of recreational activities in CD treatment, to be further examined in experimental research.

show abstract

“…Motivasi untuk mencari solusi yang ditunjukkan oleh individu yang sabar akan diperkuat dengan keyakinan untuk mencapai tujuan. Harapan akan memberikan keyakinan kepada individu untuk mencapai tujuan yang telah ditetapkan (Faith, Mayes, Pratt, & Carter, 2019;Nelissen, 2017).…”

Section: Pendahuluanunclassified

Kesabaran sebagai nilai kebajikan dan efeknya terhadap resiliensi: Peranan moderasi dari disposisi harapan

Rozi

Prasasti

2021

JPS

View full text Add to dashboard Cite

The current study is intended to determine the role of hope in the effect of patience on resilience. This study predicts effects are impatient with the resilience reinforced with high hope disposition. 320 respondents (52% female) participated in this study with an average age of 16.3 (SD = 0.89). The results of this study indicates that hope has a significant role as a moderator in the relationship between patience and resilience. In individuals who have high disposition of hope, the effects of patience to resilience will be stronger. Meanwhile, in individuals who have lower disposition of hope, the effects of patience to resilience becomes insignificant. The results of the study prove that the effect of patience on resilience is strengthened by the high disposition of hope.

show abstract

Improvements in Hope and Beliefs about Illness Following a Summer Camp for Youth with Chronic Illnesses

Cited by 13 publications

References 39 publications

Getting to Hope: Perspectives from Patients and Caregivers Living with Chronic Childhood Illness

Getting to Hope: Perspectives from Patients and Caregivers Living with Chronic Childhood Illness

The potential benefits of camps for children and adolescents with celiac disease on social support, illness acceptance, and health-related quality of life

Kesabaran sebagai nilai kebajikan dan efeknya terhadap resiliensi: Peranan moderasi dari disposisi harapan

Contact Info

Product

Resources

About