Imprisoned in the Cultural Stereotypes of Overactive Bladder

Siu, Judy Yuen‐man

doi:10.1097/nnr.0000000000000177

Cited by 4 publications

(2 citation statements)

References 35 publications

(34 reference statements)

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“… 22 23 25–27 The maladjustment of sick roles was associated with poor adherence to treatment, which might accelerate disease progression. 28–30 In addition, Frone et al 31 found that role conflicts were related to increased levels of depression, poor physical health and heavy alcohol consumption. Gignac et al 26 found that people with arthritis have to deal with symptoms such as pain and fatigue during work time.…”

Section: Introductionmentioning

confidence: 99%

Work–health–personal life conflicts in naive patients with chronic hepatitis B receiving initial treatment in China: a qualitative study

et al. 2020

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ObjectivesPeople with chronic hepatitis B (CHB) perform sick roles, work roles and personal roles simultaneously. At times, role conflicts arise because of failure to meet the expectations of different roles. Role conflicts may increase dissatisfaction in work and family and impair their physical and mental health. This study aimed to explore the perceptions of role conflicts of treatment-naive patients with CHB in work, personal and sick roles, together with ameliorating factors in the Chinese cultural context.DesignA qualitative descriptive study. Semistructured interviews were used to collect the experience of work–health–personal life conflicts (WHPLCs), and a brief questionnaire was used to collect demographic and clinical information. SPSS V.21.0 was used for descriptive analysis and Dedoose (V.7.5.9) was used to code and analyse interview transcripts. This study selected six cities with different socioeconomic levels in Zhejiang Province, China. Then, researchers chose one tertiary hospital from each city as the study site, so a total of six tertiary hospitals were involved.ParticipantsWe recruited 32 patients with CHB (59.38% male) who had just started antiviral therapy for no more than three months. Participants were within the age range of 19-57 years, and the average age was 36.03 (SD=9.56) years.ResultsParticipants noted that having CHB influenced their daily life and intersected with work and personal roles, therefore causing role conflicts. Role conflicts focused on three types: time-based conflicts, strain-based conflicts and behaviour-based conflicts. The contextual factors contributing to role conflicts were identified, including personal characteristics, financial strain, traditional social roles and work environment.ConclusionsThese findings enhance our understanding of the WHPLCs experience of treatment-naive patients with CHB in China. Our findings suggest that multidimensional role conflicts should be taken into account in the intervention design and psychological counselling to improve role balance and well-being among patients with CHB.

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Section: Introductionmentioning

confidence: 99%

Work–health–personal life conflicts in naive patients with chronic hepatitis B receiving initial treatment in China: a qualitative study

et al. 2020

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“…It is only rational that one does not commit resources in terms of time and money in accessing care that is of doubtful utility. If LUTS are generally trivialized as part of aging in men, or attributed to some other factors [29], then men will fail to appreciate the utility in accessing medical care for LUTS being experienced. This stance needs to be actively corrected through enlightenment programmes since increasing level of formal education and higher exposure to health information are significantly associated with seeking medical care earlier for LUTS [30].…”

Section: Discussionmentioning

confidence: 99%

Lower urinary tract symptoms in men: challenges to early hospital presentation in a resource-poor health system

2020

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Background The point at which men seek medical care for lower urinary tract symptoms (LUTS) varies between individuals. Presentation to hospital with complications beyond LUTS appears prevalent in our setting. The aim of this survey is to assess from the community perspective in southeast Nigeria, the challenges to early presentation for medical evaluation for LUTS by men. Methods A questionnaire-based cross-sectional survey of randomly-selected men ≥40 years. The questionnaire captured respondent’s age; presence, duration and severity of LUTS; access to health information; wealth-index; and when (and why) medical care for LUTS was sought. Analysis was with SPSS® version 20. Results In all, responses from 1319 men (mean age 54.2 ± 10.2 years) are analysed. Of these, 267 report LUTS: 58.4% (156) report moderate to severe LUTS and 51.7% (138) are yet to seek medical care. As regards seeking medical care, all the men reporting LUTS of 3 months, 35.7% of 126 men reporting moderate LUTS, and 20.0% of 30 men reporting severe LUTS are yet to seek medical care. LUTS being non-bothersome (not financial constraint) is the most prevalent reason for not seeking medical care early. Delay is encouraged by limited access to health information (OR 3.10; p < 0.001), but discouraged by literacy (OR 0.86; p < 0.001) and aging (OR 0.93; p = 0.002). Conclusion From the community perspective, the prevalent challenge to seeking medical care for LUTS early is absence of bother. Empowering men through formal education and researched health information will influence positively the time that LUTS in men is appreciated as bothersome.

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“There is a lot of shame that comes with this”: A qualitative study of patient experiences of isolation, embarrassment, and stigma associated with overactive bladder

Brodsky,

Sitto,

Wittmann

et al. 2024

Neurourology and Urodynamics

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AimsBeyond causing physical discomfort, overactive bladder (OAB) is distressing to patients across a variety of psychosocial domains. In this qualitative component of a larger mixed methods study, we explore patients' lived experience with OAB to understand how this condition impacts individuals on a personal and social level, as well as their experiences interacting with the health care system.MethodsA total of 20 patients and 12 physicians completed a questionnaire and semi‐structured interview. The interview guide, developed in an iterative fashion by the authors, included questions about treatment decision making as well as experiences living with or treating OAB; this manuscript focuses on the questions probing lived experiences and interactions between patients and physicians. The interviews were recorded, transcribed and inductively coded and analyzed according to the principles of interpretive description to develop themes.ResultsAnalysis of patient and physician interviews yielded five key themes: isolation due to OAB diagnosis, social stigma associated with noticeable OAB symptoms, embarrassment from interactions with the health care system, feeling invalidated and dismissed by physicians, and OAB patients as a “vulnerable” population with “desperation” for cure.ConclusionsOAB causes patients marked distress beyond their physical symptoms; it causes feelings of isolation from friends and family and makes them feel embarrassed to discuss their condition with loved ones and physicians alike. Efforts to destigmatize OAB, validate patient experiences, and improve access to OAB care may help diminish the psychosocial burden of OAB.

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Imprisoned in the Cultural Stereotypes of Overactive Bladder

Abstract: Cultural stereotypes of OAB significantly influenced sick role adaptation, which affected illness experiences of persons with OAB. These cultural stereotypes were associated with behavioral responses that led to difficulties in coping with OAB.

Cited by 4 publications

References 35 publications

Work–health–personal life conflicts in naive patients with chronic hepatitis B receiving initial treatment in China: a qualitative study

Work–health–personal life conflicts in naive patients with chronic hepatitis B receiving initial treatment in China: a qualitative study

Lower urinary tract symptoms in men: challenges to early hospital presentation in a resource-poor health system

“There is a lot of shame that comes with this”: A qualitative study of patient experiences of isolation, embarrassment, and stigma associated with overactive bladder

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