Implementation of paediatric intensive care unit diaries: Feasibility and opinions of parents and healthcare providers

Gawronski, Orsola; Sansone, Vincenza; Cancani, Federica; Nardo, Matteo Di; Rossi, Angela Garcia; Gagliardi, Chiara; Ranieri, Cristiana De; Satta, Tiziana; Dall’Oglio, Immacolata; Tiozzo, Emanuela; Alvaro, Rosaria; Raponi, Massimiliano; Cecchetti, Corrado

doi:10.1016/j.aucc.2022.01.011

Cited by 10 publications

(17 citation statements)

References 46 publications

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“…Several studies have examined the practices PICU providers use to mitigate patient pain and fear, though grief has not yet been explored. These strategies include mental imagery to distract from physical pain [ 84 ] and ICU diaries to reduce patient and family distress [ 85 , 86 , 87 ]. Unfortunately, high PICU workload and limited provider familiarity with these practices have been identified as barriers to implementing such strategies [ 84 , 86 ].…”

Section: Resultsmentioning

confidence: 99%

“…We recommend ICU diaries be used as a tool for nurses, family members, and patients to share emotions, communicate support, and document the patient’s hospitalization, thereby restoring any gaps in memory [ 133 ]. More widespread use of this tool is indicated based on previous research supporting its feasibility and perceived benefit in pediatric populations [ 85 , 86 , 87 ] as well as reductions in anxiety, depression, quality of life concerns, and PMTS in adult ICU patients and their families [ 134 ]. We also strongly recommend provision of psychoeducation materials to parents about PICS and how to support child coping.…”

Section: Discussionmentioning

confidence: 99%

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Is Pediatric Intensive Care Trauma-Informed? A Review of Principles and Evidence

et al. 2022

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Pediatric critical illness and injury, along with the experience of recovering from critical illness are among the most potentially traumatic experiences for children and their families. Additionally, children often come to the Pediatric Intensive Care Unit (PICU) with pre-existing trauma that may sensitize them to PICU-related distress. Trauma-informed care (TIC) in the PICU, while under-examined, has the potential to enhance quality of care, mitigate trauma-related symptoms, encourage positive coping, and provide anticipatory guidance for the recovery process. This narrative review paper first describes the need for TIC in the PICU and then introduces the principles of TIC as outlined by the American Academy of Pediatrics: awareness, readiness, detection and assessment, management, and integration. Current clinical practices within PICU settings are reviewed according to each TIC principle. Discussion about opportunities for further development of TIC programs to improve patient care and advance knowledge is also included.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Is Pediatric Intensive Care Trauma-Informed? A Review of Principles and Evidence

et al. 2022

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“…All 16 studies were published between 2001 and 2022. All of these studies were conducted in North America or Europe (Eight from the United States [19][20][21][22][23][24][25][26], three from Italy [27][28][29], two from the United Kingdom [30,31], two from Denmark [32,33], and one from Austria (34)). There were seven qualitative studies (20,21,23,29,(32)(33)(34), three observational studies (22,24,27), two randomized control trials (19,26), one scoping review (28), one systematic review (31), one survey (30), and one quality improvement project (25).…”

Section: Resultsmentioning

confidence: 99%

“…All of these studies were conducted in North America or Europe (Eight from the United States [19–26], three from Italy [27–29], two from the United Kingdom [30, 31], two from Denmark [32, 33], and one from Austria (34)). There were seven qualitative studies (20, 21, 23, 29, 32–34), three observational studies (22, 24, 27), two randomized control trials (19, 26), one scoping review (28), one systematic review (31), one survey (30), and one quality improvement project (25). Among the 16 studies, five studies discussed the impact and use of journals or diaries for parents with infants warded in the NICU (19–21, 26, 34), whereas another nine focused on the use of diaries in the PICU (22–25, 27, 29, 30, 32, 33).…”

Section: Resultsmentioning

confidence: 99%

The Use and Impact of Diaries in PICUs and Neonatal ICUs: A Scoping Review

Low

Kirk

Mok

et al. 2022

Pediatric Critical Care Medicine

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OBJECTIVE: Several studies have investigated the impact of diaries in adult ICUs, which have been used as a tool to support recall and reduce post-traumatic stress disorder in patients and their families. We conducted a scoping review to determine the definition of ICU diaries, and the extent, range, and nature of research conducted on NICU and PICU diaries, describe their use and impact, as well as identify gaps in knowledge and areas for future research.

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“…In general, the pediatric intensive care unit (PICU) is an area within a hospital that specializes in critically ill patients, particularly infants, children, teenagers, and young adults. Complex technologies and equipment, especially mechanical ventilators and patient monitoring systems, are frequently used in the PICU [ 5 ]. Hospitalization of a child in a PICU is an emotional and stressful experience for parents because of the intensive care experience and constant monitoring [ 4 ].…”

Section: Introductionmentioning

confidence: 99%

Differences in the perceptions of partnership between nurses and mothers of children in a pediatric intensive care unit in South Korea: a qualitative study

Park¹,

Oh²

2022

Child Health Nurs Res

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Purpose: The purpose of this study was to investigate how pediatric intensive care unit (PICU) nurses and the mothers of hospitalized children perceived their partnership and identify the detailed differences in the common domains of partnership between them.Methods: A qualitative descriptive design with semi-structured and open-ended interviews was used. Interviews with mothers of hospitalized children and nurses in the PICU were conducted at a national university hospital in South Korea.Results: Five integrated categories were identified concerning nurses' and mothers' perceptions of partnership. Five common domains were derived by merging the partnership categories perceived by each PICU mother and nurse: expectation of trust, sharing and communication, participation in care, equality in the relationship, and coordination of opinion However, there were significant differences in the composition of the categories of these common domains.Conclusion: These results may facilitate more effective partnerships between parents and PICU nurses. Efforts should be taken to promote the formation of trust between nurses and parents and create an environment that is conductive to regular open communication in particular, steps should be taken to reduce gaps in awareness concerning this partnership and information sharing, nursing methods, and decision-making.

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Implementation of paediatric intensive care unit diaries: Feasibility and opinions of parents and healthcare providers

Cited by 10 publications

References 46 publications

Is Pediatric Intensive Care Trauma-Informed? A Review of Principles and Evidence

Is Pediatric Intensive Care Trauma-Informed? A Review of Principles and Evidence

The Use and Impact of Diaries in PICUs and Neonatal ICUs: A Scoping Review

Differences in the perceptions of partnership between nurses and mothers of children in a pediatric intensive care unit in South Korea: a qualitative study

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