Implementation of a Diabetes Transition of Care Program

Little, Jeanne; Odiaga, Janice A.; Minutti, Carla

doi:10.1016/j.pedhc.2016.08.009

Cited by 15 publications

(25 citation statements)

References 18 publications

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“…There are several reported models of support for transition between pediatric and adult care: Structured transition programs that include developmentally tailored diabetes education, case management, and clinical care have demonstrated proof of concept in improving glycemic control and health care utilization among young adults previously with history or risk for lapses in care Programs featuring transition coordinators or “patient navigators” decrease posttransition gaps, improve posttransition clinic attendance, and reduce DKA rates .…”

Section: Transition To Adult Carementioning

confidence: 99%

ISPAD Clinical Practice Consensus Guidelines 2018: The delivery of ambulatory diabetes care to children and adolescents with diabetes

et al. 2018

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Section: Transition To Adult Carementioning

confidence: 99%

ISPAD Clinical Practice Consensus Guidelines 2018: The delivery of ambulatory diabetes care to children and adolescents with diabetes

et al. 2018

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“…The TRAQ 4.1, a disease-neutral measure, was used in six studies with AYA with a single disease population: congenital heart disease/pediatric heart transplantation [3,12,13,15,16], cystic fibrosis [17], and childhood cancer survival [18]; and in three studies with a diverse sample of conditions ranging from four specified conditions [14] to 11 specified conditions [2]. The TRAQ 5.0 was used in five studies with AYA with a single condition, including chronic rheumatology conditions [19], diabetes [22,24], inflammatory bowel disease [23], and spina bifida [25]. The STARx was used with one disease-specific population, eosinophilic esophagitis and gastroenteritis [29].…”

Section: Characteristics Of Study Participants and Sample Sizesmentioning

confidence: 99%

“…This was highlighted as a need for future tool development in the previously published systematic reviews [4][5][6]; however, this continues to be an area for improvement. In this review the following four measures were used longitudinally in a total of seven of the reviewed articles; TRAQ 4.1 [14,16,17] and 5.0 [24,25], STARx [30], and OYOF-TES [54]. Transition is not a one-time event; using a transition readiness measure over time may contribute to personalizing the transition process for AYA [5,25].…”

Section: Best Practice 2: a Measure Using Longitudinal Designmentioning

confidence: 99%

“…Transition is not a one-time event; using a transition readiness measure over time may contribute to personalizing the transition process for AYA [5,25]. Researchers agree that the transition process takes many years [24,25]. Having the ability to assess transition readiness over time will lead to the introduction of interventions specific to an AYA's individual needs [1,24,63].…”

Section: Best Practice 2: a Measure Using Longitudinal Designmentioning

confidence: 99%

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Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review

Parfeniuk

Petrovic

MacIsaac

et al. 2020

Journal of Transition Medicine

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BackgroundTransition from pediatric to adult healthcare for adolescents with chronic health conditions has emerged as a critical period influencing health outcomes. Suitable transition readiness measures are necessary to facilitate effective planning. Currently, there is little consensus about well-validated transition readiness measures. The purpose of this systematic review was to identify best practices in transition readiness measurement for adolescents and young adults with chronic health conditions.Data sourcesAcademic databases searched included PubMed, Cumulative Index to Nursing and Allied Health Literature, Google Scholar and Athabasca University Library’s Discover.Study selectionArticles were included that discussed the development and psychometric properties of transition readiness measures for adolescents and young adults (11–25 years) with chronic health conditions and/or that utilized a previously developed measure.Data extractionThe primary and secondary reviewers extracted data from the selected articles as per the data extraction tool developed for this review.ResultsForty-eight articles, representing 19 tools, were included in the review. Ten of the tools were disease-specific; nine were disease-neutral. According to the Cohen criteria, eight measures were “well-established assessments”. The Transition Readiness Assessment Questionnaire was deemed the best measure of transition readiness available. The literature search included only articles published in peer-reviewed journals; measures nearing completion or awaiting publication were not included. In addition, only English manuscripts were included, many from North America.ConclusionsDespite national practice guidelines and ongoing policy development, there is slow movement towards achieving a gold standard or best-practice measure of transition readiness.

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“…According to the definition first applied by Blum et al, transitional care aims to secure the continuity of health care for adolescent patients diagnosed with chronic diseases moving from child-to adult-centred health care services (Blum et al, 1993). The importance of a welldesigned transition process has already been recognized in the treatment of several chronic diseases, such as type 1 diabetes, cystic fibrosis, congenital heart diseases and chronic inflammatory diseases (Abraham & Kahn, 2014;Gravelle et al, 2015;Little et al, 2017;Talluto, 2018).…”

Section: Introductionmentioning

confidence: 99%

A Cross-Sectional Survey on the Transitional Care of Adolescents with Inflammatory Bowel Disease in Hungary

Erős

Veres

Tárnok

et al. 2020

Journal of Pediatric Nursing

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Since little is known about transitional care practices of adolescents with inflammatory bowel diseases (IBD) in Central-Eastern Europe, we aimed to investigate the currently applied transition practices in Hungary. Design and methods: A nationwide, multicentre survey was conducted with the invitation of 41 pediatric and adult IBD centres in February 2019.We developed a 34-item questionnaire, which included single-and multiple-choice questions related to the current clinical practice of IBD transition. Results: The overall response rate was 31.7% (13/41); answers came predominantly from tertiary centres. Only 15.4% of the respondent centres followed international IBD guidelines. The majority of the IBD centres provided transition support; however, responses revealed a marked heterogeneity of these services. Joint visits were held only in 54% of the clinics. Gastroenterologists and next of kin are not provided education regarding transition across most centres (85 and 92%). Although adolescents received age-specific education, transition readiness was not measured. More IBD nurses and dietitians were employed in adult centres than in pediatric ones. Conclusions: The current survey revealed critical gaps in the Hungarian IBD transition practices. As the beneficial effects of structured IBD transition programmes are recognized in Hungary, there is a growing need for the introduction of new, more effective transition practices. Practice implications: Our results can serve as a basis for planning more effective transition strategies.

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Implementation of a Diabetes Transition of Care Program

Cited by 15 publications

References 18 publications

ISPAD Clinical Practice Consensus Guidelines 2018: The delivery of ambulatory diabetes care to children and adolescents with diabetes

ISPAD Clinical Practice Consensus Guidelines 2018: The delivery of ambulatory diabetes care to children and adolescents with diabetes

Transition readiness measures for adolescents and young adults with chronic health conditions: a systematic review

A Cross-Sectional Survey on the Transitional Care of Adolescents with Inflammatory Bowel Disease in Hungary

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