Impaired Motor Competence in School-aged Children With Complex Congenital Heart Disease

Holm, Inger; Fredriksen, Per Morten; Fosdahl, Merete Aarsland; Olstad, Marte; Vøllestad, Nina Køpke

doi:10.1001/archpedi.161.10.945

Cited by 77 publications

(80 citation statements)

References 30 publications

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“…165 In a study of school-aged children who underwent surgical intervention for complex CHD within the first year of life, 42.5% had motor problems compared with 7% of agematched healthy control subjects. 166 The risk of having any degree of motor difficulty was 6 times greater than that of healthy control subjects, and the risk of severe motor impairment was 11 times greater than for control subjects. 166 More than half of all children who experienced an arterial ischemic stroke in the perioperative period had persistent sensory or motor impairments, with hemiparesis being the most common finding.…”

Section: Fine and Gross Motor Skillsmentioning

confidence: 91%

“…166 The risk of having any degree of motor difficulty was 6 times greater than that of healthy control subjects, and the risk of severe motor impairment was 11 times greater than for control subjects. 166 More than half of all children who experienced an arterial ischemic stroke in the perioperative period had persistent sensory or motor impairments, with hemiparesis being the most common finding. 78 These studies suggest that some degree of fine or gross motor impairment is common in survivors with complex CHD.…”

Section: Fine and Gross Motor Skillsmentioning

confidence: 91%

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Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management

Marino¹,

Lipkin²,

Newburger³

et al. 2012

Circulation

1,249

1,156

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Background— The goal of this statement was to review the available literature on surveillance, screening, evaluation, and management strategies and put forward a scientific statement that would comprehensively review the literature and create recommendations to optimize neurodevelopmental outcome in the pediatric congenital heart disease (CHD) population. Methods and Results— A writing group appointed by the American Heart Association and American Academy of Pediatrics reviewed the available literature addressing developmental disorder and disability and developmental delay in the CHD population, with specific attention given to surveillance, screening, evaluation, and management strategies. MEDLINE and Google Scholar database searches from 1966 to 2011 were performed for English-language articles cross-referencing CHD with pertinent search terms. The reference lists of identified articles were also searched. The American College of Cardiology/American Heart Association classification of recommendations and levels of evidence for practice guidelines were used. A management algorithm was devised that stratified children with CHD on the basis of established risk factors. For those deemed to be at high risk for developmental disorder or disabilities or for developmental delay, formal, periodic developmental and medical evaluations are recommended. A CHD algorithm for surveillance, screening, evaluation, reevaluation, and management of developmental disorder or disability has been constructed to serve as a supplement to the 2006 American Academy of Pediatrics statement on developmental surveillance and screening. The proposed algorithm is designed to be carried out within the context of the medical home. This scientific statement is meant for medical providers within the medical home who care for patients with CHD. Conclusions— Children with CHD are at increased risk of developmental disorder or disabilities or developmental delay. Periodic developmental surveillance, screening, evaluation, and reevaluation throughout childhood may enhance identification of significant deficits, allowing for appropriate therapies and education to enhance later academic, behavioral, psychosocial, and adaptive functioning.

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Section: Fine and Gross Motor Skillsmentioning

confidence: 91%

Section: Fine and Gross Motor Skillsmentioning

confidence: 91%

Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management

Marino¹,

Lipkin²,

Newburger³

et al. 2012

Circulation

1,249

1,156

View full text Add to dashboard Cite

show abstract

“…Although outcomes from cardiopulmonary exercise testing are linked to mortality, health-related fitness measures (Table 1) are associated with measures of health and daily living of more immediate concern to patients, including functional independence, quality of life, mobility disability, [36][37][38] and features of the metabolic syndrome. 36 Protocols for assessment of exercise capacity, 39 motor skill, 40,41 and health-related fitness 37,[42][43][44] are well established. From a clinical perspective, the initial focus should be habitual activity behavior.…”

Section: Benefits Of Physical Activitymentioning

confidence: 99%

Promotion of Physical Activity for Children and Adults With Congenital Heart Disease

Longmuir¹,

Ferranti²,

Hayman³

et al. 2013

Circulation

237

171

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The American Heart Association recognizes the importance of physically active lifestyles to the health and well-being of children and adults with congenital heart defects. Counseling of patients with congenital heart defects should emphasize the importance of daily physical activity and decreasing sedentary behavior as appropriate for the patient’s clinical status. The suggested practices are based on relevant research regarding the benefits of physical activity for healthy children and adults, because research on physical activity among patients with congenital heart defects is lacking. There is no evidence regarding whether or not there is a need to restrict recreational physical activity among patients with congenital heart defects, apart from those with rhythm disorders. It is important to recognize that most patients with congenital heart defects are relatively sedentary and that the physical and psychosocial health benefits of physical activity are important for this population, which is at risk for exercise intolerance, obesity, and psychosocial morbidities. Therefore, counseling to encourage daily participation in appropriate physical activity should be a core component of every patient encounter.

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“…Children with congenital heart disease (CHD) show reduced motor competence or motor ability (1–4) as well as limitations in fine and gross motor skills (5–7). These skill-based limitations from early infancy are tracked into adulthood with further negative effect on health-related physical fitness (HRPF) and muscle strength (8–11).…”

Section: Introductionmentioning

confidence: 99%

Web-Based Motor Intervention to Increase Health-Related Physical Fitness in Children With Congenital Heart Disease: A Study Protocol

et al. 2018

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Objective: Exercise interventions are underutilized in children with congenital heart disease (CHD) especially when the primary outcome is not peak oxygen uptake. Most of the studies are restricted to a low sample size and proximity of the patients to the study centers. Now eHealth approaches bear a promising but also challenging opportunity to transmit such intervention programs to participants, and check progress and compliance from remote. This study will aim to improve health-related physical fitness (HRPF) with a 24 weeks web-based exercise intervention.Methods and Design: The current study is planned as a randomized control trial (RCT) with a crossover design and the aim to improve functional outcome measures. It also estimates adherence and feasibility in patients with CHD in this web-based exercise/motor intervention over 24 weeks. Primary outcome will be the improvement of HRPF. Secondary outcomes are, functional and structural arterial stiffness measures and health-related quality of life. Thus, 70 children from 10 to 18 years with CHD of moderate and complex severity will be recruited and allocated randomly 1:1 in two study arms after baseline testing for their HRPF, arterial stiffness measures and health-related quality of life. For 24 weeks, participants in the intervention arm will receive three weekly exercise video clips of 20 min each. Every video clip comprises 20 child-oriented exercises which have to be executed for 30 s followed by a recovery period of 30 s. Each session will start with 3–4 warming-up exercises, followed by 10–12 strength and flexibility exercises, and ending with 3–4 min of cool down or stretching tasks. Continuous video clips will be streamed from a web-based e-Learning platform. The participant simply has to imitate the execution and follow some short advices. After each session, a brief online survey will be conducted to assess perceived exertion and feasibility.Discussion: The study will help to determine the efficacy and applicability of a web-based exercise intervention in children with CHD in regard to functional outcome measures. In addition, it will outline the effectiveness of remote monitoring, which provides a cost effective approach to reach patients with CHD that are low in prevalence and often do not live in close proximity to their tertiary center.Trial Registration: https://ClinicalTrials.gov Identifier: NCT03488797.

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Impaired Motor Competence in School-aged Children With Complex Congenital Heart Disease

Cited by 77 publications

References 30 publications

Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management

Neurodevelopmental Outcomes in Children With Congenital Heart Disease: Evaluation and Management

Promotion of Physical Activity for Children and Adults With Congenital Heart Disease

Web-Based Motor Intervention to Increase Health-Related Physical Fitness in Children With Congenital Heart Disease: A Study Protocol

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