Impact of Research About the Early Development of Children With Intellectual Disability: A Science Mapping Analysis

Schuengel, Carlo; Rest, M.M. van; Stanford, Catherine; Hastings, Richard P.

doi:10.3389/feduc.2019.00041

Cited by 9 publications

(7 citation statements)

References 22 publications

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“…In the literature search, we used specific search terms and exclusion and inclusion criteria that formed the basis of our results; thus, they should be interpreted with caution. Our results included fewer terms than previous bibliometric studies (Schuengel et al, 2019; Stopar & Bartol, 2019; Zyoud et al, 2018), as we used strict inclusion and exclusion criteria to guarantee that the included studies covered psychological well-being topics among children with a visual impairment and would not include articles that were irrelevant to our topic. In addition, less methodological terms were found than expected, possibly because in some articles, the methodological terms were not mentioned in the abstract or the same term was listed under different names, and hence these terms were not visible on the map.…”

Section: Discussionmentioning

confidence: 99%

“…Thus, the aim of this study was to address this knowledge gap by providing a visual overview of common research topics (subject terms) and methods (methodological terms) used to examine these issues. Bibliometric mapping has been used in reviews to visualise trends in various research fields (Schuengel et al, 2019; Stopar & Bartol, 2019; Zyoud et al, 2018) and to create a visual overview of terms that are commonly included in studies on a specific subject or population (van Eck & Waltman, 2011). One popular functionality of this method is text mining, which is a feature used to construct and visualise co-occurrences of important terms extracted from a selected body of literature (see Krauskopf, 2018; Moscoso et al, 2018; Sweileh et al, 2016; Yu et al, 2018).…”

Section: Introductionmentioning

confidence: 99%

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Bibliometric mapping of psychological well-being among children with a visual impairment

Kuld¹,

Kef

Sterkenburg

2020

British Journal of Visual Impairment

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Children with a visual impairment experience lower psychological well-being than normative populations. While research on this subject is abundant, an overview is lacking of the methods used and topics commonly studied, to guide future research. The aim was to provide a visual overview of common topics included in psychological well-being research from 2000 to 2018 among children with a visual impairment. We created a bibliometric map with the VOSviewer programme using the text mining functionality to construct and visualise co-occurrences of relevant terms from the titles and abstracts in the included literature. The results show that common subjective terms are behaviour, relationships, attachment and parenting, cerebral visual impairment, cerebral palsy, autism spectrum disorder, and intellectual disability. The common methodological terms include literature and randomized control trials, with the latter restricted to specific terms such as parenting. The conclusions and implications are that the results give insight into the subject terms studied in past years and provide a roadmap for future research in the fields of visual impairment and psychological well-being of children. The topics needing more research are rare disorders, siblings, assistive technology, romantic relationships, bullying, and the frequent cooccurrences of visual impairment with autism spectrum disorders and intellectual disability.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Bibliometric mapping of psychological well-being among children with a visual impairment

Kuld¹,

Kef

Sterkenburg

2020

British Journal of Visual Impairment

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“…Developmental challenges for children with an intellectual disability, and inequalities affecting their families, emerge early in life (certainly by ages 3-5 years), and so early intervention and support is important as both an individual family and larger policy priority. 20 In addition to parental well-being, what parents do with their child with intellectual disability and the relationships they build with them have been shown to be crucial for the development of children with intellectual disability (as they are for all children). The parent-child relationship quality at age 3 years, for example, predicted behaviour problems when children with intellectual disability were aged 5 years.…”

Section: Chapter 1 Backgroundmentioning

confidence: 99%

Early positive approaches to support for families of young children with intellectual disability: the E-PAtS feasibility RCT

et al. 2022

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Background Parents of children with intellectual disability are 1.5–2 times more likely than other parents to report mental health difficulties. There is a lack of clinically effective and cost-effective group well-being interventions designed for family carers of young children with intellectual disability. Aim To examine the feasibility of a randomised controlled trial of the clinical effectiveness and cost-effectiveness of the Early Positive Approaches to Support (E-PAtS) intervention. Design A feasibility study (including randomisation of families into a two-arm trial), questionnaires to assess the feasibility of proposed outcome measures (including resource use and health-related quality of life) and practitioner/family carer interviews. An additional question was included in an online UK survey of families, conducted by the research team to assess usual practice, and a survey of provider organisations. Setting Families recruited from community contexts (i.e. third sector, local authority services, special schools) and self-referral. The E-PAtS intervention was delivered by trained community-based providers. Participants Families with at least one child aged 1.5–5 years with an intellectual disability. At least one parent had to have English-language ability (spoken) for E-PAtS programme participation and participants had to provide informed consent. Interventions E-PAtS intervention – two caregivers from each family invited to eight 2.5-hour group sessions with usual practice. Usual practice – other support provided to the family, including other parenting support. Objectives To assess randomisation willingness/feasibility, recruitment of providers/parents, retention, usual practice, adherence, fidelity and feasibility of proposed outcome measures (including the Warwick–Edinburgh Mental Well-Being Scale as the proposed primary outcome measure, and parent anxiety/depression, parenting, family functioning/relationships, child behavioural/emotional problems and adaptive skills, child and parent quality of life, and family services receipt as the proposed secondary outcome measures). Results Seventy-four families (95 carers) were recruited from three sites (with 37 families allocated to the intervention). From referrals, the recruitment rate was 65% (95% confidence interval 56% to 74%). Seventy-two per cent of families were retained at the 12-month follow-up (95% confidence interval 60% to 81%). Exploratory regression analysis showed that the mean Warwick–Edinburgh Mental Well-Being Scale well-being score was 3.96 points higher in the intervention group (95% confidence interval –1.39 to 9.32 points) at 12 months post randomisation. High levels of data completeness were achieved on returned questionnaires. Interviews (n = 25) confirmed that (1) recruitment, randomisation processes and the intervention were acceptable to family carers, E-PAtS facilitators and community staff; (2) E-PAtS delivery were consistent with the logic model; and (3) researchers requesting consent in future for routine data would be acceptable. Recorded E-PAtS sessions demonstrated good fidelity (96% of components present). Adherence (i.e. at least one carer from the family attending five out of eight E-PAtS sessions) was 76%. Health-related quality-of-life and services receipt data were gathered successfully. An online UK survey to assess usual practice (n = 673) showed that 10% of families of young children with intellectual disability received any intervention over 12 months. A provider survey (n = 15) indicated willingness to take part in future research. Limitations Obtaining session recordings for fidelity was difficult. Recruitment processes need to be reviewed to improve diversity and strategies are needed to improve primary outcome completion. Conclusions Study processes were feasible. The E-PAtS intervention was well received and outcomes for families were positive. A barrier to future organisation participation is funding for intervention costs. A definitive trial to test the clinical effectiveness and cost-effectiveness of E-PAtS would be feasible. Trial registration Current Controlled Trials ISRCTN70419473. Funding This project was funded by the National Institute for Health Research (NIHR) Public Health Research programme and will be published in full in Public Health Research; Vol. 10, No. 2. See the NIHR Journals Library website for further project information.

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“…According to the World Health Organization, the number of children with physical and mental disabilities accounts for about 3% of the total number of children, as there are about 200 million children with disabilities worldwide [1][2][3][4][5].…”

Section: Introductionmentioning

confidence: 99%

Childhood Disability Issues Based on Mandatory Clinical Examinations in Azerbaijan in 2014-2019

Mustafayeva¹

2021

Ukr. ž. med. bìol. sportu

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According to the World Health Organization, the number of children with physical and mental disabilities accounts for about 3% of the total number of children, as there are about 200 million children with disabilities worldwide. The purpose of the study was to present an analysis of childhood disability in Azerbaijan based on official statistics of mandatory medical examinations conducted in 2014-2019, with calculated prevalence, dynamics, and structure of general and primary disability by age groups. Materials and methods. The study showed that between 2014 and 2019, the number of children with disabilities in Azerbaijan increased by 14% (10,119 people). As for the total structure of the child population, the number of children with disabilities fluctuates between 2.4 and 2.7%. The child disability prevalence rate increased from 246.7 per 10,000 children of the said age in 2014 to 278.3 in 2019. Results. Analysis by age groups shows that the proportion of 0-13-year-olds and 14-17-year-olds in 2014 through 2019 remains unchanged, namely 86% and 14%, respectively. Among children with disabilities, the number of boys (52-54%) exceeds that of girls (46-48%). The age structure of primary childhood disability is dominated by children aged 8-13 years (32%). The decrease of primary disability rates for the period under study occurs throughout all age groups except for the age group of 8-13 years old. The number of children with disabilities aged 0-3 years decreased by 22.7%, 4-7 years by 30%, and 14-17 years by 17.8% during 2014-2019 period. The analysis of primary disability dynamics shows 22% decrease in the total number of children with disabilities registered with medical and social expert assessment institutions for the first time; the largest drop occurred in the categories of circulatory diseases (7-fold), tuberculosis, and respiratory diseases (3-fold). During the research period, an increase of primary disability occurred in diseases of the endocrine system (by 21%), congenital anomalies (malformations) (by 28%), psychiatric/behavioral disorders (by 41%), and diseases of the ear and its appendages (by 34%). Conclusion. The structure of primary morbidity categories causing primary disability in children is dominated by the following major groups of diseases: disorders of the nervous system (G00-G99) accounting for between 9% and 18% in 2014-2019; congenital anomalies (malformations), deformations, and chromosomal disorders (Q00-Q99) accounting for 11-17%, and psychiatric/behavioral disorders (F00-F99) that accounted for 11-18% of the total number of children with disabilities registered with medical and social expert assessment institutions for the first time

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Impact of Research About the Early Development of Children With Intellectual Disability: A Science Mapping Analysis

Cited by 9 publications

References 22 publications

Bibliometric mapping of psychological well-being among children with a visual impairment

Bibliometric mapping of psychological well-being among children with a visual impairment

Early positive approaches to support for families of young children with intellectual disability: the E-PAtS feasibility RCT

Childhood Disability Issues Based on Mandatory Clinical Examinations in Azerbaijan in 2014-2019

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