Impact of endometriosis on quality of life and mental health: pelvic pain makes the difference

Facchin, Federica; Barbara, Giussy; Saita, Emanuela; Mosconi, Paola; Roberto, Anna; Fedele, Luigi; Vercellini, Paolo

doi:10.3109/0167482x.2015.1074173

Cited by 304 publications

(274 citation statements)

References 41 publications

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“…For example, no studies have systematically investigated how and why endometriosis differently affects women, such that not all of them are distressed. It is known that women with painful endometriosis may have poorer mental health and quality of life as compared with those who do not have pain (Facchin et al 2015;Pope et al 2015). However, more research is needed to develop a comprehensive explanatory theory of the psychological impact of endometriosis.…”

Section: Introductionmentioning

confidence: 99%

“…Endometriosis is painful in most women (up to 80%; Bulletti et al 2010), who may experience different types of pain, such as dysmenorrhea (pain at menstruation), dyspareunia (pain at intercourse), dyschezia (pain at defecation), and chronic pelvic pain. Painful endometriosis is associated with depression, anxiety, and impaired quality of life (Facchin et al 2015;Pope et al 2015).…”

Section: Introductionmentioning

confidence: 99%

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“Free butterflies will come out of these deep wounds”: A grounded theory of how endometriosis affects women’s psychological health

et al. 2017

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This study aimed to develop a grounded theory of how endometriosis affects psychological health. Open interviews were conducted with 74 patients. The Hospital Anxiety and Depression Scale (HADS) was administered to all women, who were divided into distressed vs. non-distressed. At the core of our grounded theory was the notion of disruption due to the common features of living with endometriosis. Experiencing disruption (vs. restoring continuity) involved higher distress and was associated with a long pathway to diagnosis, bad doctor-patient relationships, poor physical health, lack of support, negative sense of female identity, and identification of life with endometriosis.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“Free butterflies will come out of these deep wounds”: A grounded theory of how endometriosis affects women’s psychological health

et al. 2017

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“…As a chronic gynecological condition often associated with pelvic pain -either cyclic and temporary (such as dysmenorrhea, dyspareunia, and dyschezia), or chronic [1,2] -endometriosis negatively affects women's quality of life and psychological health [3][4][5]. Painful endometriosis involves remarkable limitations in everyday activities, including education and work [6][7][8].…”

Section: Introductionmentioning

confidence: 99%

Preliminary insights on the relation between endometriosis, pelvic pain, and employment

Facchin

Buggio

Ottolini

et al. 2018

Gynecol Obstet Invest

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Aims: The economic burden of endometriosis and pelvic pain involves direct and indirect healthcare costs due to work loss and decreased productivity. However, the relation between endometriosis, pelvic pain, and employment remains underinvestigated. This study aimed at providing preliminary insights into this topic. Methods: We compared the employment status (having vs. not having a job) in 298 consecutive endometriosis patients and in 332 women without a history of endometriosis (control group). We also examined the association between pelvic pain and employment status. Results: Women with endometriosis were less likely to be employed compared to women without endometriosis (OR 0.508; 95% CI 0.284–0.908; p = 0.022). Women with symptomatic endometriosis were less likely to be employed relative to controls (OR 0.345; 95% CI 0.184–0.650; p = 0.001), as well as to asymptomatic endometriosis patients (OR 0.362; 95% CI 0.167–0.785; p = 0.01). No significant differences emerged between asymptomatic endometriosis and the control group (p > 0.05). Greater severity of dysmenorrhea, dyspareunia, chronic pelvic pain, and dyschezia was found in unemployed endometriosis patients (vs. employed endometriosis participants). Conclusion: Endometriosis symptoms may significantly affect women’s professional life, with important socioeconomic, legal, and political implications. Community-based participatory research is encouraged.

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“…Facchin et al (2015) found that women with pelvic pain and endometriosis had poorer quality of life and more depression than other women. Women often feel isolated and can lack support socially from friends and family who may just perceive that they have 'period pain'.…”

Section: Impact On Women's Lives (Physical Psychological Social Rementioning

confidence: 99%

Endometriosis: The role practice nurses can play

Norton

Holloway

2016

Practice Nursing

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Endometriosis is a condition that affects around 1 in 10 women in the UK. Despite this prevalence, diagnosis is often delayed. Wendy Norton and Debby Holloway explain the role of the practice nurse in supporting women with this condition Endometriosis is a chronic condition where endometrial tissue forms lesions outside the uterus, resulting in internal bleeding, inflammation, fibrosis, and adhesion formation. It is estimated that as many as one in 10 women in the UK have this painful condition. The signs and symptoms of endometriosis vary in their severity and presentation, increasing difficulties with diagnosis. Earlier diagnosis and support may help women to manage the condition and its impact on their day-to-day lives. Endometriosis has physical, psychological and sexual health impacts on women's—and their partners'—lives. Practice nurses are ideally placed to support women with endometriosis.

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Impact of endometriosis on quality of life and mental health: pelvic pain makes the difference

Abstract: Pain significantly affects women's experience of endometriosis. The medical treatment of endometriosis with pain may not be sufficient and psychological intervention is recommended.

Cited by 304 publications

References 41 publications

“Free butterflies will come out of these deep wounds”: A grounded theory of how endometriosis affects women’s psychological health

“Free butterflies will come out of these deep wounds”: A grounded theory of how endometriosis affects women’s psychological health

Preliminary insights on the relation between endometriosis, pelvic pain, and employment

Endometriosis: The role practice nurses can play

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