Impact of Educational Program about Iron Chelation Therapy on the Quality of Life for Thalassemic Children

Abstract

Background: Thalassemia is the most common genetic disorder in Egypt, It is measured a fetal disease if proper chelation treatment is not established. The introduction of chelating agents able to removing extreme iron from the body has noticeably increased life expectancy time and improving the in general quality of life. the study aimed to identify the impact of an educational program about iron chelation therapy on the QoL for thalassemic children.Quasi-experimental research design was used , a convenient sample of 50 thalassemic children on chelation therapy, and their family caregiver at the pediatrics outpatient department at the Health Insurance Agency Hospital in Damietta city for 12 months from April 2015 to April 2016. The tools of data collection were an interview questionnaire for knowledge, and the pediatric QoL tool, child and parent versions. The results revealed that there were statistically significant improvement of children's knowledge with P-value = 0.001. Subsequently, statistically significant improvement of children's quality of life at follow up compared with pre-intervention phase. The study recommended repetition of this research on large sample and in various places in Egypt and make the children with Thalassemia the focus of the health care team through designing several educational program and update posters and procures that improving their knowledge and then and then release improve in the quality of life of thalassemic children.

Impact of Lifestyle Modification Module on Adherence to Therapeutic Regimen of Children and Adolescents with Beta Thalassemia Major

“…Previously, this result comes in accordance with thatArmeli et al, (23) found that B-thalassemia education program in Italy appear to have dramatically increased awareness of the disorder. Recently, this finding was in agreement withZaghamir et al (24) reported that there was statistically significant improvement of children's knowledge. Subsequently, statistically significant improvement of children's quality of life at follow up compared with pre-intervention phase.…”

Effect of Self -Determination Theory Based Intervention on Quality of Life Among School Age Children with Thalassemia

“…They reported that educational counseling programs improved the quality of life of patients with thalassemia. In the same context, the study was consistent with El-Said Zaghamir al., (2019) in their study about "Impact of Educational Program about Iron Chelation Therapy on the Quality of Life for Thalassemic Children". This study revealed that there were statistically significant improvement of children's quality of life at follow up compared with pre-intervention phase.…”

Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review

“… (Dehnoalian et al 2017) [ 46 ] Quality of life Iran Quasi-experiment 20 children age 15 to 30 years (mean= 23.06 ± 10.87) Educational Counseling Program Sf-36 Quality of Life Questionnaire Educational counseling programs are proven to improve the quality of life of children with thalassemia Mean ± SD Pre-test= 54.43 ± 5.60 Mean ± SD Post-test= 78.11 ± 17.64 P value= 0.002 10. (El-Said Zaghamir et al 2019) [ 47 ] Quality of life Iran Quasi-experiment 50 children aged 8–18 years (mean= 12.6±3.0) Educational Program about Iron Chelation Therapy Pediatric Quality of Life Inventory Tool The quality of life of children with thalassemia has significantly improved after being given the Educational Program about Iron Chelation intervention Mean Pre-test= 61 Mean Post-test= 76 P value<0.001 …”

“…Another educational program is an educational program about iron chelation therapy with a duration of 45–60 minutes. 47 Participants were explained about program objectives, content, and procedures. The method given in education is through group discussions and presentations of the results of the discussions.…”