Impact of Caring for a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of the Literature

Pousada, Modesta; Guillamón, Noemí; Encuentra, Eulàlia Hernández; Muñoz, Elena; Redolar, Diego; Boixadós, Mercè; Gómez-Zúñiga, Beni

doi:10.1007/s10882-013-9332-6

Cited by 107 publications

(114 citation statements)

References 60 publications

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“…In line with previous research, mothers of children with cerebral palsy and other neurological disabilities tend to report poorer quality of life than mothers of typically developing children [3,9,10]. An extensive review of 46 studies on mothers of children with cerebral palsy highlights the consistency of this finding within the literature [3] with only two studies failing to find such an effect [9,11]. Nonetheless, many of these mothers continue to report quality of life within the normal range.…”

Section: Introductionsupporting

confidence: 85%

Parent and family impact of raising a child with perinatal stroke

et al. 2014

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BackgroundPerinatal stroke is a leading cause of early brain injury, cerebral palsy, and lifelong neurological morbidity. No study to date has examined the impact of raising a child with perinatal stroke on parents and families. However, a large breadth of research suggests that parents, especially mothers, may be at increased risk for psychological concerns. The primary aim of this study was to examine the impact of raising a child with perinatal stroke on mothers’ wellbeing. A secondary aim was to examine how caring for a child with perinatal stroke differentially affects mothers and fathers.MethodsIn Study I, a matched case-control design was used to compare the wellbeing of mothers of children with perinatal stroke and mothers of children with typical development. In Study II, a matched case-control design was used to compare mother-father dyads. Participants completed validated measures of anxiety and depression, stress, quality of life and family functioning, marital satisfaction, and marital distress. Parents of children with perinatal stroke also completed a recently validated measure of the psychosocial impact of perinatal stroke including guilt and blame outcomes. Disease severity was categorized by parents, validated by the Pediatric Stroke Outcome Measure (PSOM), and compared across the above outcomes in Study I.ResultsA total of 112 mothers participated in Study I (n = 56 per group; mean child age = 7.42 years), and 56 parents participated in Study II (n = 28 per group; mean child age = 8.25 years). In Study I, parent assessment of disease severity was correlated with PSOM scores (γ = 0.75, p < .001) and associated with parent outcomes. Mothers of children with mild conditions were indistinguishable from controls on the outcome measures. However, mothers of children with moderate/severe conditions had poorer outcomes on measures of depression, marital satisfaction, quality of life, and family functioning. In Study II, mothers and fathers had similar outcomes except mothers demonstrated a greater burden of guilt and higher levels of anxiety.ConclusionsAlthough most mothers of children with perinatal stroke adapt well, mothers of children with moderate/severe conditions appear to be at higher risk for psychological concerns.

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Section: Introductionsupporting

confidence: 85%

Parent and family impact of raising a child with perinatal stroke

et al. 2014

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“…In sum, these studies are heterogeneous in approach, report contradictory findings and neglect contextual and environmental factors (Olsson & Hwang ; Pousada et al . ).…”

Section: Introductionmentioning

confidence: 97%

‘Shutting the World Out’: An Interpretative Phenomenological Analysis Exploring the Paternal Experience of Parenting a Young Adult with a Developmental Disability

Thackeray

Eatough

2016

Research Intellect Disabil

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“…Eligible studies were fully published randomized trials (in any language) with the majority of participants being overweight (as defined in each study) children and adolescents (ages [2][3][4][5][6][7][8][9][10][11][12][13][14][15][16][17][18] and assessing the effect of lifestyle and pharmacological interventions on obesity outcomes. 18(p4602) The eligible interventions…”

Section: Robertson-maltmentioning

confidence: 99%

Evidence-Based Health Care in Pediatrics

Robertson‐Malt

2014

Nursing Clinics of North America

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Impact of Caring for a Child with Cerebral Palsy on the Quality of Life of Parents: A Systematic Review of the Literature

Cited by 107 publications

References 60 publications

Parent and family impact of raising a child with perinatal stroke

Parent and family impact of raising a child with perinatal stroke

‘Shutting the World Out’: An Interpretative Phenomenological Analysis Exploring the Paternal Experience of Parenting a Young Adult with a Developmental Disability

Evidence-Based Health Care in Pediatrics

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