Impact of Cadaveric Organ Donation on Taiwanese Donor Families During the First 6 Months After Donation

Shih, Frank Y.; Lai, Ming-Kuen; Lin, Min-Heuy; Lin, Hung-Ru; Tsao, C.-I.; Chou, Ling-Ling; Chu, Shu‐Hsun

doi:10.1097/00006842-200101000-00009

Cited by 38 publications

(42 citation statements)

References 28 publications

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“…Sudden and unexpected death is identified as one of life's most stressful experiences 1 and, in such a complex situation, request for organ donation can be very difficult and traumatic. After a patient's demise, survivors feel overwhelmed with grief and cannot make such a profound decision as to donate an organ.…”

Section: Introductionmentioning

confidence: 99%

Exploring families' experiences of an organ donation request after brain death

et al. 2012

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This qualitative research study with a content analysis approach aimed to explore families' experiences of an organ donation request after brain death. Data were collected through 38 unstructured and in-depth interviews with 14 consenting families and 12 who declined to donate organs. A purposeful sampling process began in October 2009 and ended in October 2010. Data analysis reached 10 categories and two major themes were listed as: (1) serenity in eternal freedom; and (2) resentful grief. The central themes were peace and honor versus doubt and regret. The findings indicated that the families faced with an organ donation request of a brain-dead loved one experienced a lasting effect long after the patient's demise regardless of their decision to donate or refusal to donate. In conclusion, this study highlights the importance of family support and follow-up in an efficient healthcare system aimed at developing trust with the families and providing comfort during and after the final decision.

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Section: Introductionmentioning

confidence: 99%

Exploring families' experiences of an organ donation request after brain death

et al. 2012

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“…Relatives have been studied in relationship to circumstances that may enhance their acceptance of organ donation (5,(8)(9)(10), the stability of their decision (11), the impact of the decision 6 months after donation (12) and families' emotional characteristics and coping strategies (13).…”

Section: Introductionmentioning

confidence: 99%

Traumatic Memories of Relatives Regarding Brain Death, Request for Organ Donation and Interactions with Professionals in the ICU

Kesselring

Kainz

Kiss

2007

American Journal of Transplantation

102

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Little is known about the memories of relatives after they have been confronted with the brain death of a loved one and the request for organ donation. We conducted this study, guided by Grounded Theory, to explore relatives' experiences, their interactions with health care providers and what influenced their memories. We interviewed 40 relatives (31 consenting to and 9 refusing organ donation) of 33 brain-dead individuals. Relatives described their experiences as a difficult process composed of several stages spanning from the initial encounter to the final decision about donation. Long-term memories of bereaved relatives were influenced by the characteristics of their decision-making style (clear vs. ambivalent) and the perceived quality of the interaction with professionals on the intensive care unit. Organ-focused behavior of professionals and an ambivalent decision-making style of relatives appear to be risk factors for traumatic memories.

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“…This study identified the following sources of stress: concern and fear of the deformation of the donor's body, conflicts and family controversies about the decision to donate. Another factor recognized was the incomprehension of other relatives and friends, devaluing the act of donating, with the thought that they did it in exchange for the funeral aid, which results in emotional weariness for the people in charge of the donation as they feel pressured to give explanations (17) .…”

Section: Discussionmentioning

confidence: 99%

Estressores vivenciados pelos familiares no processo de doação de órgãos e tecidos para transplante

Cinque

Bianchi²

2010

Rev. esc. enferm. USP

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Portuguese / English: www.scielo.br/reeusp RESUMO O estudo propõe identificar os estressores vivenciados pelos familiares no processo de doação de órgãos, evidenciar o momento mais desgastante do processo e verificar a associação de variáveis com a experiência vivenciada pelos familiares. A amostra constituiu-se de 16 familiares que realizaram a doação por meio de uma Organização de Procura de Órgãos, na cidade de São Paulo, em 2007. Utilizou-se um instrumento estruturado com questões versando sobre a experiência e avaliação dos familiares no processo de doação. Os principais estressores foram: insatisfação com o atendimento (31,25%); receber a notícia da morte encefálica de forma intranquila (62,50%); e a demora para a liberação do corpo (62,50%), sendo este o momento mais desgastante do processo. Pelo coeficiente phi, verificou-se associação moderada entre as variáveis de interesse com a experiência da família. Conclui-se que o processo de doação é estressante para a família e que a assistência de enfermagem torna-se necessária em cada etapa da doação, oferecendo suporte para diminuir o sofrimento dos familiares. DESCRITORES ABSTRACTThe purpose of the present study is to identify the stressors experienced by family members during the process of organ donation, evince the most distressful moment of the process and verify the association of variable with the family members' experience. The sample consisted of 16 family members that were making the donation through a Organ Search Organization, in São Paulo, in 2007. A structured instrument was used, containing question addressing the family members' experience and their evaluation of the donation process. The main stressors reported were: dissatisfaction with the service (31.25%); receiving a harsh notification about the individual's brain death (62.50%); and the wait to release the body (62.50%), which was considered the most distressful moment of the process. Using the phi coefficient, it was found that there was a moderate association between the variables of interest with the family's experience. In conclusion, the donation process is stressful on the family and nursing care is necessary in each stage of the process to offer support and reduce the distress on the family members. KEY WORDS RESUMENEl estudio propone identificar los estresores experimentados por los familiares en el proceso de donación de órganos, evidenciar el momento más desgastante y verificar la asociación de variables con la experiencia afrontada por los familiares. La muestra se constituyó de 16 familiares que realizaron la donación en una Organización de Bús-queda de Órganos de la ciudad de São Paulo, en 2007. Se utilizó un instrumento estructurado con preguntas referidas a la experiencia y evaluación de los familiares en el proceso de donación. Lo principales estresores fueron: la insatisfacción con la atención (31,25%); recibir la noticia de muerte encefálica en forma impropia (62,50%) y la demora para la liberación del cuerpo (62,50%), siendo éste el momento más desgastante. Por el c...

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Impact of Cadaveric Organ Donation on Taiwanese Donor Families During the First 6 Months After Donation

Cited by 38 publications

References 28 publications

Exploring families' experiences of an organ donation request after brain death

Exploring families' experiences of an organ donation request after brain death

Traumatic Memories of Relatives Regarding Brain Death, Request for Organ Donation and Interactions with Professionals in the ICU

Estressores vivenciados pelos familiares no processo de doação de órgãos e tecidos para transplante

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