Impact of bereavement care and pregnancy loss services on families: Findings and recommendations from Irish inquiry reports

Helps, Änne; O’Donoghue, Keelin; O'Byrne, Laura; Greene, Richard A.; Leitão, Sara

doi:10.1016/j.midw.2020.102841

Cited by 23 publications

(11 citation statements)

References 25 publications

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“…The negative and positive psychosocial aspects of responses to grief presented in this study reinforce the need for psychosocial care for women experiencing infertility grief before, during, and after treatment. This can have significant impacts on their short- and long-term psychological recovery [ 46 ].…”

Section: Discussionmentioning

confidence: 99%

Psychosocial Aspects of Gestational Grief in Women Undergoing Infertility Treatment: A Systematic Review of Qualitative and Quantitative Evidence

Castro

Mendonça

Tacon

et al. 2021

IJERPH

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Women undergoing assisted reproduction treatment without being able to become pregnant, and experiencing pregnancy loss after assisted reproduction, are triggering factors for prolonged grief and mourning. This review aims to investigate the psychosocial aspects of gestational grief among women who have undergone infertility treatment. We searched the databases of MEDLINE/PubMed, EMBASE, CINAHL, Scopus, ScienceDirect, and Lilacs for works published up to 5 March 2021. The outcomes analyzed were negative and positive psychosocial responses to gestational grief among women suffering from infertility and undergoing assisted human reproduction treatment. Eleven studies were included, which yielded 316 women experiencing infertility who were undergoing treatment. The most frequently reported negative psychosocial manifestations of grief response were depression (6/11, 54.5%), despair or loss of hope/guilt/anger (5/11, 45.5%), anxiety (4/11, 36.4%), frustration (3/11, 27.3%), and anguish/shock/suicidal thoughts/isolation (2/11, 18.2%). Positive psychosocial manifestations included the hope of becoming pregnant (4/6, 66.6%) and acceptance of infertility after attempting infertility treatment (2/6, 33.3%). We identified several negative and positive psychosocial responses to gestational grief in women experiencing infertility. Psychological support before, during, and after assisted human reproduction treatment is crucial for the management of psychosocial aspects that characterize the grief process of women experiencing infertility who become pregnant and who lose their pregnancy. Our results may help raise awareness of the area of grief among infertile women and promote policy development for the mental health of bereaved women.

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Section: Discussionmentioning

confidence: 99%

Psychosocial Aspects of Gestational Grief in Women Undergoing Infertility Treatment: A Systematic Review of Qualitative and Quantitative Evidence

Castro

Mendonça

Tacon

et al. 2021

IJERPH

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“…Over recent years the evidence supporting continuity of care in maternity contexts is well documented in the literature [134][135][136] and is increasingly seen in government policy and strategies across healthcare disciplines [137][138][139][140]. Further, there has been an increasing focus on baby loss in maternity care and a recognition of the need for specialist bereavement midwives and services [141][142][143]. These developments, although still in their infancy in terms of service development, have the potential to benefit all parents who lose a baby, including those who have experienced TOPFA.…”

Section: Practice Implicationsmentioning

confidence: 99%

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Heaney¹,

Tomlinson

Aventin³

2022

BMC Pregnancy Childbirth

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Background Improved technology and advances in clinical testing have resulted in increased detection rates of congenital anomalies during pregnancy, resulting in more parents being confronted with the possibility of terminating a pregnancy for this reason. There is a large body of research on the psychological experience and impact of terminating a pregnancy for fetal anomaly. However, there remains a lack of evidence on the holistic healthcare experience of parents in this situation. To develop a comprehensive understanding of the healthcare experiences and needs of parents, this systematic review sought to summarise and appraise the literature on parents’ experiences following a termination of pregnancy for fetal anomaly. Review question What are the healthcare experiences and needs of parents who undergo a termination of pregnancy following an antenatal diagnosis of a fetal anomaly? Methods A systematic review was undertaken with searches completed across six multi-disciplinary electronic databases (Medline, Embase, PsycINFO, CINAHL, Web of Science, and Cochrane). Eligible articles were qualitative, quantitative or mixed methods studies, published between January 2010 and August 2021, reporting the results of primary data on the healthcare experiences or healthcare needs in relation to termination of pregnancy for fetal anomaly for either, or both parents. Findings were synthesised using Thematic Analysis. Results A total of 30 articles were selected for inclusion in this review of which 24 were qualitative, five quantitative and one mixed-methods. Five overarching themes emerged from the synthesis of findings: (1) Contextual impact on access to and perception of care, (2) Organisation of care, (3) Information to inform decision making, (4) Compassionate care, and (5) Partner experience. Conclusion Compassionate healthcare professionals who provide non-judgemental and sensitive care can impact positively on parents’ satisfaction with the care they receive. A well organised and co-ordinated healthcare system is needed to provide an effective and high-quality service. Trial Registration: PROSPERO registration number: CRD42020175970.

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“…While these ndings are not dissimilar to the experiences of every pregnant woman (Eds. Over recent years there has been an increasing focus on baby loss in maternity care and a recognition of the need for specialist bereavement midwives and services (Abramson, 2019; All-Party Parliamentary Group on Baby Loss, 2016; Helps et al, 2020). This development has the potential to bene t all parents who lose a baby whatever the circumstances, including TOPFA.…”

Section: Trusting and Compassionate Relationshipsmentioning

confidence: 99%

Termination of Pregnancy for Fetal Anomaly: A Systematic Review of the Healthcare Experiences and Needs of Parents

Heaney

Tomlinson

Aventin

2021

Preprint

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BackgroundImproved technology and advances in clinical testing have resulted in increased detection rates of congenital anomalies during pregnancy, resulting in more parents being confronted with the possibility of terminating a pregnancy for this reason. There is a large body of research on the psychological experience and impact of terminating a pregnancy for fetal anomaly. However, there remains a lack of evidence on the holistic healthcare experience of parents in this situation. To develop a comprehensive understanding of the healthcare experience and needs of parents, this systematic review sought to summarise and appraise the literature on parents’ experiences following a termination of pregnancy for fetal anomaly.Review Question:What are the healthcare experiences and needs of parents who undergo a termination of pregnancy following an antenatal diagnosis of a fetal anomaly?MethodsA systematic review was undertaken with searches completed across six multi-disciplinary electronic databases (Medline, Embase, PsycINFO, CINAHL, Web of Science, and Cochrane). Eligible records were qualitative, quantitative or mixed methods studies, published between January 2010 and August 2021, reporting the results of primary data on the healthcare experiences or healthcare needs in relation to termination of pregnancy for fetal anomaly for either or both parents. Findings were synthesised using Thematic Analysis.ResultsA total of 30 records were selected for inclusion in this review of which 24 were qualitative, five quantitative and one mixed-methods. Five overarching themes emerged from the synthesis of findings: (1) Context of Care, (2) Person-centred Care, (3) Compassionate Care, (4) Co-ordinated Care, and (5) Inclusive Care.ConclusionCompassionate healthcare professionals who provide non-judgemental and sensitive care can impact positively on parents’ satisfaction with the care they receive. A well organised and co-ordinated healthcare system is needed to provide an effective and high-quality service.Registration:PROSPERO registration number: CRD42020175970

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Impact of bereavement care and pregnancy loss services on families: Findings and recommendations from Irish inquiry reports

Cited by 23 publications

References 25 publications

Psychosocial Aspects of Gestational Grief in Women Undergoing Infertility Treatment: A Systematic Review of Qualitative and Quantitative Evidence

Psychosocial Aspects of Gestational Grief in Women Undergoing Infertility Treatment: A Systematic Review of Qualitative and Quantitative Evidence

Termination of pregnancy for fetal anomaly: a systematic review of the healthcare experiences and needs of parents

Termination of Pregnancy for Fetal Anomaly: A Systematic Review of the Healthcare Experiences and Needs of Parents

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