Impact of an information booklet on satisfaction and decision-making about BRCA genetic testing

Mancini, Julien; Noguès, Catherine; Adenis, Claude; Berthet, Pascaline; Bonadona, Valérie; Chompret, Agnès; Coupier, Isabelle; Eisinger, François; Fricker, Jean-Pierre; Gauthier‐Villars, Marion; Lasset, Christine; Lortholary, Alain; Nguyen, Tan Dat; Vennin, Philippe; Sobol, Hagay; Stoppa‐Lyonnet, Dominique; Julian‐Reynier, Claire

doi:10.1016/j.ejca.2005.10.029

Cited by 42 publications

(42 citation statements)

References 26 publications

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“…Moreover, although auditory presentation of information is often recommended as a nonprint strategy to use with lowliteracy patients, drawbacks include the associations of lower education and lower literacy with reduced auditory information processing and verbal memory (13,14). Supplementing discussion with printed information may improve understanding of health instructions (15) and processing of information for medical decision making (16).…”

Section: Unmet Behavioral Activation Criteriamentioning

confidence: 99%

Evaluation of Diabetes and Cardiovascular Disease Print Patient Education Materials for Use With Low–Health Literate Populations

Hill-Briggs

Smith

2008

Diabetes Care

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OBJECTIVE -Populations with the lowest literacy and health literacy in the U.S. are also among those disproportionately burdened by diabetes and its complications. Yet, suitability of publicly available diabetes and cardiovascular (CVD) patient education materials for these patients is not clear. We evaluated selected American Diabetes Association (ADA) and American Heart Association (AHA) print education materials for accessibility and usability characteristics.RESEARCH DESIGN AND METHODS -English-language, print patient education brochures addressing lifestyle/behavioral management of diabetes and CVD were obtained from the ADA (n ϭ 21) and the AHA (n ϭ 19). Materials were evaluated using 32 criteria, 23 addressing literacy demand and 9 addressing behavioral activation, compiled from authoritative sources on development of low-literacy consumer health information.RESULTS -Of the 32 criteria identified by two or more sources, ADA materials consistently met 11 (34%) and AHA materials consistently met 8 (25%). Criteria most frequently achieved were text case, use of cues (e.g., bullets) to emphasize key points, design of graphics/illustrations, some provision of "how to" information, and positive depiction of cultural images. The least consistently achieved criteria were reading grade, word usage (e.g., scientific jargon), sentence length, font size, line length, white space, visual organization, limited scope, clear and specific (e.g., step-by-step) behavioral recommendations, and demonstration of audience relevance and cultural appropriateness.CONCLUSIONS -Materials consistently met few criteria for usability by patients with low literacy, limited prior medical knowledge, and/or limited resource availability. Use of available criteria and methods for increasing reach of print education materials to these underserved patient populations is indicated.

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Section: Unmet Behavioral Activation Criteriamentioning

confidence: 99%

Evaluation of Diabetes and Cardiovascular Disease Print Patient Education Materials for Use With Low–Health Literate Populations

Hill-Briggs

Smith

2008

Diabetes Care

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“…Positive results have been reported about the impact of providing women with written educational material on their satisfaction with the use of health services in postpartum contraceptive decisions 20,21 and in genetic testing for breast cancer diagnosis. 22 Another study in anesthesiology, on the contrary, concluded that, when satisfaction was measured by a valid and reliable questionnaire, the introduction of leaflets did not improve patient satisfaction and that the evidence for better patient outcomes after patient education interventions was not convincing. 23 A study about colposcopy indicated that informative leaflets might increase the knowledge and so be useful in obtaining clinical consent to the procedure.…”

Section: Discussionmentioning

confidence: 99%

The impact of detailed explanatory leaflets on patient satisfaction with urodynamic consultation: A double‐blind randomized controlled trial

Hougardy

Vandeweerd

Reda

et al. 2008

Neurourology and Urodynamics

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Aims:To develop and validate a scale that is applicable in Belgium to investigate the aspects of female patients' satisfaction with urodynamic consultation, and to use it to measure the impact of a detailed explanatory leaflet on their satisfaction. Materials and Methods: Question items were obtained from a group consensus (Delphi process). Each item was scored on a five-point Likert scale. The satisfaction scale was administered to two groups of patients attending the clinics for urodynamics. One hundred twenty-nine patients were included in the study and randomized in two groups. One group (n = 60) received a detailed explanatory leaflet about urodynamic consultation and the other did not (n = 69). Responses were subjected to a reliability and principal component analysis (PCA) to achieve data reduction and analysis, and to assess the reliability of the new scale. Relevant items were retained to compare both interventions using regression analysis. Results: A 15-item scale was derived from the Delphi process. Exploratory factor analysis suggested a single factor solution with 11 meaningful items. No significant difference was noted in global scores of satisfaction between the two groups (P = 0.051). Conclusions: A short-form patient satisfaction scale with acceptable validity and reliability was developed and used to measure patient satisfaction with urodynamic consultation in this population of Belgian women. This study did not provide support for the effectiveness of explanatory leaflets in improving satisfaction.

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“…18 Various interventions aimed at increasing patient knowledge have been shown to be effective. [19][20][21][22][23][24][25] That said, there are few educational interventions focusing on hereditary breast cancer that target physicians or trainees. 26 Here, we report an evaluation of an interactive web-based genetics curriculum for PCPs using announced standardized patient (SP) visits.…”

Section: Introductionmentioning

confidence: 99%

Impact of a Randomized Controlled Educational Trial to Improve Physician Practice Behaviors Around Screening for Inherited Breast Cancer

et al. 2014

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BACKGROUND: Many primary care physicians (PCPs) are ill-equipped to provide screening and counseling for inherited breast cancer. OBJECTIVE: To evaluate the outcomes of an interactive web-based genetics curriculum versus text curriculum for primary care physicians. DESIGN: Randomized two-group design. PARTICIPANTS: 121 California and Pennsylvania community physicians. INTERVENTION: Web-based interactive genetics curriculum, evaluated against a control group of physicians who studied genetics review articles. After education, physicians interacted with an announced standardized patient (SP) at risk for inherited breast cancer. MAIN MEASURES: Transcripts of visit discussions were coded for presence or absence of 69 topics relevant to inherited breast cancer. KEY RESULTS: Across all physicians, history-taking, discussions of test result implications, and exploration o f e t h i c a l a n d l e g a l i s s u e s w e r e i n c o m p l e t e . Approximately half of physicians offered a genetic counseling referral (54.6 %), and fewer (43.8 %) recommended testing. Intervention physicians were more likely than controls to explore genetic counseling benefits (78.3 % versus 60.7 %, P= 0.048), encourage genetic counseling before testing (38.3 % versus 21.3 %, P= 0.048), ask about a family history of prostate cancer (25.0 % versus 6.6 %, P= 0.006), and report that a positive result indicated an increased risk of prostate cancer for male relatives (20.0 % versus 1.6 %, P= 0.001). Intervention-group physicians were less likely than controls to ask about Ashkenazi heritage (13.3 % versus 34.4 %, P= 0.01) or to reply that they would get tested when asked, "What would you do?" (33.3 % versus 54.1 %, P= 0.03). CONCLUSIONS: Physicians infrequently performed key counseling behaviors, and this was true regardless of whether they had completed the web-based interactive training or read clinical reviews.

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Impact of an information booklet on satisfaction and decision-making about BRCA genetic testing

Cited by 42 publications

References 26 publications

Evaluation of Diabetes and Cardiovascular Disease Print Patient Education Materials for Use With Low–Health Literate Populations

Evaluation of Diabetes and Cardiovascular Disease Print Patient Education Materials for Use With Low–Health Literate Populations

The impact of detailed explanatory leaflets on patient satisfaction with urodynamic consultation: A double‐blind randomized controlled trial

Impact of a Randomized Controlled Educational Trial to Improve Physician Practice Behaviors Around Screening for Inherited Breast Cancer

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