Abstract:This study provides support for illness adjustment and coping models that emphasize the role of parent factors in driving child adjustment outcomes and is encouraging for future parent-focused intervention research.
“…There is some evidence of different socioemotional strategies than can be implemented in onco-pediatric services (Fedele et al, 2013;Kazak, 2005;Marsland et al, 2013;Mehranfar et al, 2012;Wakefield et al, 2015). Unfortunately, there is even more evidence of the need of effective socioemotional attention in this services (Abu-Saad Huijer et al, 2013;Castillo-Martínez et al, 2009;DeasySpinetta, 1993;Litzelman et al, 2011;Pek et al, 2010), findings to which this work is added.…”
Section: Discussionmentioning
confidence: 86%
“…The family plays an important role for the child and adolescent adjustment to its cancer treatment, finding that family cohesion is a main resource for the management of the disease and treatment adherence (Santos, Crespo, Canavarro, & Kazak, 2015). This justify why most of the existing interventions are designed for caregivers and relatives of children and adolescents with cancer (Fedele et al, 2013;Kazak, 2005;Marsland et al, 2013;Mehranfar et al, 2012;Wakefield et al, 2015). These efforts are not to be dismissed, considering that the parents' pressure and stress directly influence the children and adolescents' clinic characteristics and QOL (Litzelman et al, 2011).…”
Section: Discussionmentioning
confidence: 99%
“…It is necessary to increase the studies about the effectivity of socioemotional interventions in children and adolescents with cancer and their families (Kazak, 2005), considering that there are only few scientific papers about it (Fedele et al, 2013;Marsland et al, 2013;Mehranfar, Younesi, & Banihashem, 2012;Wakefield et al, 2015). In our context, despite the relevance of this variable, the research about QOF in pediatric oncology is scarce (Arias-Gómez et al, 1996;Castillo-Martínez, Juárez-Villegas, Palomo-Colli, Medina-Sansón, & Zapata-Tarrés, 2009) increasing the exiting challenges.…”
The evaluation of quality of life in children and adolescents with cancer has become an increasing necessity, because of the different areas of the patient's and its families lives that get affected by this disease. The aim of this research was to determine the association between quality of life and sociodemographic variables in children and adolescents with cancer and their families. We developed a transversal and analytic study that included a sample of fifty-nine patients from four to 16 years old, along with its parents. The participants answered the KINDL survey in its children, adolescents, and parents versions (α = 0.77). The results indicated that the lower scores of quality of life were in the socioemotional areas, particularly in school. We observed an affectation to quality of life that increases with age. Additionally, differences in the perception of quality of life of the patients and parents were found. This study provides scientific evidence about the necessity to develop personalized and opportune socioemotional interventions for the pediatric oncology services.
“…There is some evidence of different socioemotional strategies than can be implemented in onco-pediatric services (Fedele et al, 2013;Kazak, 2005;Marsland et al, 2013;Mehranfar et al, 2012;Wakefield et al, 2015). Unfortunately, there is even more evidence of the need of effective socioemotional attention in this services (Abu-Saad Huijer et al, 2013;Castillo-Martínez et al, 2009;DeasySpinetta, 1993;Litzelman et al, 2011;Pek et al, 2010), findings to which this work is added.…”
Section: Discussionmentioning
confidence: 86%
“…The family plays an important role for the child and adolescent adjustment to its cancer treatment, finding that family cohesion is a main resource for the management of the disease and treatment adherence (Santos, Crespo, Canavarro, & Kazak, 2015). This justify why most of the existing interventions are designed for caregivers and relatives of children and adolescents with cancer (Fedele et al, 2013;Kazak, 2005;Marsland et al, 2013;Mehranfar et al, 2012;Wakefield et al, 2015). These efforts are not to be dismissed, considering that the parents' pressure and stress directly influence the children and adolescents' clinic characteristics and QOL (Litzelman et al, 2011).…”
Section: Discussionmentioning
confidence: 99%
“…It is necessary to increase the studies about the effectivity of socioemotional interventions in children and adolescents with cancer and their families (Kazak, 2005), considering that there are only few scientific papers about it (Fedele et al, 2013;Marsland et al, 2013;Mehranfar, Younesi, & Banihashem, 2012;Wakefield et al, 2015). In our context, despite the relevance of this variable, the research about QOF in pediatric oncology is scarce (Arias-Gómez et al, 1996;Castillo-Martínez, Juárez-Villegas, Palomo-Colli, Medina-Sansón, & Zapata-Tarrés, 2009) increasing the exiting challenges.…”
The evaluation of quality of life in children and adolescents with cancer has become an increasing necessity, because of the different areas of the patient's and its families lives that get affected by this disease. The aim of this research was to determine the association between quality of life and sociodemographic variables in children and adolescents with cancer and their families. We developed a transversal and analytic study that included a sample of fifty-nine patients from four to 16 years old, along with its parents. The participants answered the KINDL survey in its children, adolescents, and parents versions (α = 0.77). The results indicated that the lower scores of quality of life were in the socioemotional areas, particularly in school. We observed an affectation to quality of life that increases with age. Additionally, differences in the perception of quality of life of the patients and parents were found. This study provides scientific evidence about the necessity to develop personalized and opportune socioemotional interventions for the pediatric oncology services.
“…Eleven studies that were excluded in the update of this review (Bellin 2013; Borhani 2011; Chen 2013; Fedele 2013; Groß 2013; Gulewitsch 2012; Katz 2014; Kurowski 2013; Lyon 2013; Murphy 2012; Van der Veek 2013). One previously included study Grey 2011 was excluded in this update as it combined two sets of trial data, one of which is already included independently (Grey 2011).…”
“…To date there have been few studies examining the efficacy of psychological interventions of parents of seriously ill children. However, a small number of studies conducted with parents of children with cancer and cardiac disease in the early period following diagnosis have reported promising results for reducing parental distress (Burke et al, 2014;Sahler et al, 2002Sahler et al, , 2005 and enhancing child adjustment (Fedele et al, 2013). Given the impact of early traumatic responses on parent and family functioning and child recovery and outcome, the findings of this review indicate that families affected by SCII need psychosocial intervention in the acute phase post the child's diagnosis to reduce the risk of potential long term mental health problems.…”
A systematic review of the literature investigating the early traumatic stress responses in parents of children diagnosed with a serious illness/injury. A literature review was conducted (September 2013) using Medline, PsycINFO, and CINAHL databases. Twenty-four studies related to parents of children hospitalized due to diagnosis of cancer, type 1 diabetes, meningococcal disease, trauma or serious injury, preterm birth and other serious illnesses requiring admission to intensive care were included. Parents were assessed for early traumatic stress symptoms within 3 months of their child's diagnosis/hospitalization. Prevalence rates of acute stress disorder in parents ranged from 12 to 63%. Prevalence of posttraumatic stress disorder ranged from 8 to 68%. Variability was related to methodological factors including differences in study design, timing of assessments, measurement tools, and scoring protocols. Psychosocial factors rather than medical factors predicted parent distress. This review integrates and compares early traumatic reactions in parents with children suffering a range of serious illnesses. Findings suggest a high prevalence of acute and posttraumatic stress symptoms in parents. Methodological inconsistencies made comparison of early traumatic stress prevalence rates difficult. Risk factors associated with traumatic stress symptoms were identified.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.