Impact of a Child's Chronic Illness on Maternal Sleep and Daytime Functioning

Meltzer, Lisa J.; Mindell, Jodi A.

doi:10.1001/archinte.166.16.1749

Cited by 145 publications

(160 citation statements)

References 44 publications

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“…12,25 Mood disturbances may result from lack of sleep due to nighttime caregiving duties and worries related to the child's health. 26 Sleep deprivation is also associated with limited day-time functioning, decreased cognitive performance and decreased motor function. 27,28 This could contribute to lower vitality and happiness scores in caregivers of children with SCD.…”

Section: Discussionmentioning

confidence: 99%

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Quality of life of female caregivers of children with sickle cell disease: a survey

Tweel¹,

Hatzmann²,

Ensink³

et al. 2008

Haematologica

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Caring for a child with sickle cell disease poses extra demands on parents, both practically and psychologically, which may influence their quality of life. Since families of children with sickle cell disease in the Netherlands usually belong to immigrant communities with a low socio-economic status, there may be an additional strain on caregivers. The aim of the present study was to evaluate the quality of life of caregivers of children with sickle cell disease. The quality of life of female caregivers of sickle cell disease patients, measured with the TNO-AZL Adult Quality of Life questionnaire, was compared to the norm data of healthy Dutch females (n=700) and female caregivers of healthy children with the same socio-economic status and ethnic background (socio-economic status control group). Groups were compared by the Mann-Whitney U test. Point estimates and 95% confidence intervals of the median difference are presented. The results of questionnaires of 54 caregivers of children with sickle cell disease and 28 caregivers of a control group of the same socio-economic status were analyzed. Caregivers of patients with sickle cell disease had a significantly lower quality of life on all subscales compared to the Dutch norm population. Compared to the control group of the same socio-economic status, the quality of life of caregivers of patients with sickle cell disease was significantly lower on the subscales depressive moods, daily activities and vitality. In this first study reporting on the quality of life of caregivers of children with sickle cell disease, we demonstrate a reduced quality of life in these caregivers compared to the healthy Dutch female population and caregivers of healthy children with the same socio-economic status.Key words: sickle cell disease, quality of life, caregivers. Citation

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Section: Discussionmentioning

confidence: 99%

“…33 As disrupted sleep patterns have an influence on mood, motor and cognitive functioning, 26 improving sleep quality in caregivers of sickle cell patients is a potentially useful intervention. The effectiveness of behavioral sleep intervention has been demonstrated in caregivers of people with cancer.…”

Section: Discussionmentioning

confidence: 99%

Quality of life of female caregivers of children with sickle cell disease: a survey

Tweel¹,

Hatzmann²,

Ensink³

et al. 2008

Haematologica

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“…The constant care and the difficulties in accomplishing regular daily tasks, and the major dependency of the sick person, might induce a physical overload and, mainly, a psychological overload to the caregivers [21]. This overload might be manifested by means of several symptoms, such as depression [22][23][24] [28], anxiety [24; 29], cardiovascular problems [30], stress [19], and sleep disorders [31][32][33][34].…”

Section: The Caregiver In Duchenne Muscular Dystrophymentioning

confidence: 99%

“…The emotional overload present in the work of a CM indicates the relevance of evaluating the individual perception of sleep quality. Some studies have demonstrated impairment in the caregivers´ subjective sleep quality of children with chronic diseases [31,32]. In caregivers of children with asthma, it was noted a higher number of awakenings and reports of light sleep due to the preoccupation and the vigilance of their sons [39].…”

Section: The Sleep Of Caregiving Mothersmentioning

confidence: 99%

Caregivers’ sleep of Duchenne Muscular Dystrophy’s patients: a short review

Kt¹,

Editorial²,

Tufik³

et al. 2017

Transl Brain Rhythmicity

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The task of a caregiver might exert several effects upon his/her physical and psychological health. It should be highlight the role of the caregiving mother (CM) of patients with Duchenne Muscular Dystrophy (DMD). DMD is a genetic-character disease with a prevalence of 1 to every 3,500 boys live births and with high mortality rate. The disease´s progression significantly compromises the quality of life and mainly the patient´s independence, making it indispensible the presence of a caregiver. The overload of physical and emotionoal work, including nocturnal periods, may interfere with the CM´s sleep. CM with a son with DMD demonstrated lower sleep efficiency, higher sleep latency, and reported poor sleep quality. These modifications might negatively interfere with health and quality of life of these CMs. Therefore, the evaluation of sleep pattern and quality in this subjects is most important and essential, being for their own global health, as well as for the patient´s well-being. We point out the need for a major interest from the scientific community and health professionals in better understand the impact of chronic diseases on health and quality of life of caregivers and patients..

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“…In addition to their concern for the child's physical and mental health, mothers are worried about their health and that of their wives, other children and all other family members as well. Many physical (Meltzer and Mindell, 2006;Klassen et al, 2008) (headache, backache, anorexia, digestion disorders, palpitation) and emotional (von Essen et al, 2004;Grinyer, 2006) (senses of weariness, despair, anger, stress, anxiety and depression) problems have been reported by such mothers. Studies even have indicated the existence of the symptoms of the posttraumatic stress syndrome in mothers following treatment (Stuber et al, 1996;Kazak et al, 1997).…”

Section: Introductionmentioning

confidence: 99%

Caring for a Child with Cancer: Impact on Mother's Health

Rafii

Oskouie²,

Shoghi

2014

Asian Pacific Journal of Cancer Prevention

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The life of a mother undergoes a dramatic change after a child is diagnosed with cancer. The present study aimed to determine effects on the everyday life process and health status of mothers with children suffering from leukemia. This qualitative study was based on a grounded theory approach with sixteen mothers. The results indicate that after onset of disease in their children, they marginalized their own health and tied their identities to taking care of the child and keeping the child healthy by ignoring themselves, becoming imprisoned in a taking-care-of-the-child position, and trying very hard for seek balance and stability Enduring physical pressures on the one hand, and constantly attempting to achieve balance and stability in family processes on the other hand, gradually cause exhaustion. It seems that health care providers and nurses should pay much more attention to the health status of this group of mothers.

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Impact of a Child's Chronic Illness on Maternal Sleep and Daytime Functioning

Cited by 145 publications

References 44 publications

Quality of life of female caregivers of children with sickle cell disease: a survey

Quality of life of female caregivers of children with sickle cell disease: a survey

Caregivers’ sleep of Duchenne Muscular Dystrophy’s patients: a short review

Caring for a Child with Cancer: Impact on Mother's Health

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