Immediate and long-term relationship between severe maternal morbidity and health-related quality of life: a prospective double cohort comparison study

Norhayati, Mohd Noor; Hussain, Nik Hazlina Nik; Aniza, Abd Aziz

doi:10.1186/s12889-016-3524-9

Cited by 9 publications

(12 citation statements)

References 33 publications

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“…From the results of this study, we can infer that women with severe maternal morbidity episodes, especially if life-threatening and coexistent with some chronic medical condition, who underwent caesarean section and were at the extremes of reproductive age, are at an increased risk of having a worse perception of quality of life, although some recent studies were not able to confirm such findings [ 47 ]. Particularly under these conditions, these women need special care.…”

Section: Discussionmentioning

confidence: 89%

Quality of Life after an Episode of Severe Maternal Morbidity: Evidence from a Cohort Study in Brazil

Angelini

Pacagnella

Parpinelli

et al. 2018

BioMed Research International

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Objective To assess quality of life (QOL) in women who experienced a severe maternal morbidity (SMM) event and associated factors, in comparison to those who did not. Study Design Retrospective cohort study performed at the maternity of the University of Campinas in Brazil, including 801 women with or without SMM, within 6 months to 5 years after delivery. Women were interviewed by phone and data were electronically stored, using the Brazilian version of the SF36 to assess women's self-perception of quality of life. To analyze a possible relationship between SMM and perceived impairment in quality of life, χ2 and Fisher's Exact tests were used. Multiple analysis using Generalized Linear Models was applied to identify factors independently associated with the general health score. The main outcome measures were general and domain-specific SF36 scores on quality of life. Results Maternal morbidity conditions were associated with lower scores of patient perceptions of quality of life in the following domains: physical functioning, role-limiting physical, pain, and general health status. A lower level of school education, not having a partner, caesarean section, and history of previous clinical conditions were associated with a worse perception of general health and quality of life. Conclusion Health professionals should know the association between life conditions, previous chronic health conditions, and SMM for women during prenatal care to beyond 42 weeks postpartum. Longitudinal and interdisciplinary actions should be put into practice to provide healthcare for these women, with special emphasis on the effective reduction in health inequities.

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Section: Discussionmentioning

confidence: 89%

Quality of Life after an Episode of Severe Maternal Morbidity: Evidence from a Cohort Study in Brazil

Angelini

Pacagnella

Parpinelli

et al. 2018

BioMed Research International

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“…We do, however, believe that earlier interviews would have been ethically questionable and we might have found women too physically and emotionally distressed. 37 The large number of women which we missed because they were cared still outside their home confirms this concern. Lastly, we only interviewed women, while interviewing healthcare providers or family members might have added additional perspectives.…”

Section: Discussionmentioning

confidence: 76%

How communication can help women who experience a maternal near-miss: a qualitative study from Tanzania

et al. 2021

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ObjectivesThis study aimed to explore experiences of communication as an element of quality of care, among women surviving a maternal near-miss event, thus women who nearly died but survived haemorrhage, or pre-eclampsia complication during pregnancy, childbirth or within 42 days of termination of pregnancy.DesignA descriptive, phenomenological, qualitative study using semistructured interviews with women who survived a maternal near-miss in Southern Tanzania.SettingThe participants were recruited from two selected hospitals in Mtwara Region, where women sought child birth care and developed near-miss condition.ParticipantsParticipants for this study were women who experienced and survived a maternal near-miss event and who had lived in the study area for at least 1 year. Women were recruited using an adapted version of the WHO criteria for maternal near-miss.Data collectionWe identified 16 women and were able to conduct 10 in-depth interviews with women at their homes, 4 weeks after they were discharged. The interviews were audiorecorded and transcribed and translated word for word from Kiswahili. Thematic analysis was used to identify emerging themes.ResultsThree major themes evolved: (1) Being informed about the care and interaction, (2) Being engaged and encouraged and (3) Being afraid to ask questions. The study highlighted that good communication with women during the provision of care helped women feel grateful, supported and cared for. Women who were unconscious during care were often not informed later of what happened. This created some negative feelings and anxiety.ConclusionThis study highlights the importance of communication, and of being informed of what happened and why. Empathetic communication with sufficient explanation on what happened and why created trust among women—a positive finding which should encourage the development of consistent approaches to strengthen healthcare provider communication skills.

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“…A flow diagram summarizing the 46 included studies and PROMs evaluated in this review is provided in the Figure . 18 , 19 , 20 , 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 35 , 36 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 , 45 , 46 , 47 , 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 , 59 , 60 , 61 , 62 , 63 There were 1277 postpartum studies registered with ClincalTrials.gov, none of which were validation studies for any of the identified PROMs. Three PROMs from the previous scoping review were excluded (1 required free-text responses, and 2 evaluated multiple domains primarily associated with sexual function rather than overall postpartum recovery).…”

Section: Resultsmentioning

confidence: 99%

“…Missingness of data from completed PROMs was reported in only 2 of the included studies. 29 , 46 Response rates were not reported in 14 of the included studies. Five studies reported response rates but did not include information regarding numbers of women approached to participate in the study.…”

Section: Resultsmentioning

confidence: 99%

Use of Patient-Reported Outcome Measures to Assess Outpatient Postpartum Recovery

et al. 2021

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IMPORTANCE Outpatient postpartum recovery is an underexplored area of obstetrics. There is currently no consensus regarding which patient-reported outcome measure (PROM) clinicians and researchers should use to evaluate postpartum recovery. OBJECTIVE To evaluate PROMs of outpatient postpartum recovery using Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) guidelines. EVIDENCE REVIEW An initial literature search performed in July 2019 identified postpartum recovery PROMs and validation studies. A secondary search in July 2020 identified additional validation studies. Both searches were performed using 4 databases (Web of Science, Embase, PubMed, and CINAHL), with no date limiters. Studies with PROMs evaluating more than 3 proposed outpatient postpartum recovery domains were considered. Studies were included if they assessed any psychometric measurement property of the included PROMs in the outpatient postpartum setting. The PROMs were assessed for the following 8 psychometric measurement properties, as defined by COSMIN: content validity, structural validity, internal consistency, cross-cultural validity and measurement invariance, reliability, measurement error, hypothesis testing, and responsiveness. Psychometric measurement properties were evaluated in each included study using the COSMIN criteria by assessing (1) the quality of the methods (very good, adequate, doubtful, inadequate, or not assessed); (2) overall rating of results (sufficient, insufficient, inconsistent, or indeterminate); (3) level of evidence assessed using the Grading of Recommendations, Assessment, Development and Evaluations assessment tool; and (4) level of recommendation, which included class A

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Immediate and long-term relationship between severe maternal morbidity and health-related quality of life: a prospective double cohort comparison study

Cited by 9 publications

References 33 publications

Quality of Life after an Episode of Severe Maternal Morbidity: Evidence from a Cohort Study in Brazil

Quality of Life after an Episode of Severe Maternal Morbidity: Evidence from a Cohort Study in Brazil

How communication can help women who experience a maternal near-miss: a qualitative study from Tanzania

Use of Patient-Reported Outcome Measures to Assess Outpatient Postpartum Recovery

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