Illness-Related Concerns of Mothers of Children With Congenital Heart Disease

Horn, Melissa Van; DeMaso, David R.; Gonzalez–Heydrich, Joseph; Erickson, Julie

doi:10.1097/00004583-200107000-00020

Cited by 40 publications

(43 citation statements)

References 23 publications

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“…Thus, physicians need to be aware of parents' concerns to anticipate and address those concerns. 29 In contrast to parental ratings, the normal self reports by children indicate that either they did not have any behaviour problems, were not sufficiently aware of them, or denied them. The fact that the total group describe a better health satisfaction than the normative sample may suggest that denial mechanisms might have contributed to the positive self report outcome.…”

Section: Discussionmentioning

confidence: 90%

Long term behavioural outcome after neonatal arterial switch operation for transposition of the great arteries

Hövels-Gürich

Konrad

Wiesner

et al. 2002

Archives of Disease in Childhood

141

128

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Aims: To evaluate behavioural outcome and quality of life in children aged 8-14 years after neonatal arterial switch operation for transposition of the great arteries. Methods: Sixty children operated as neonates with combined deep hypothermic circulatory arrest and low flow cardiopulmonary bypass were evaluated at age 7.9-14.3 years by the Child Behaviour Checklist (CBCL) and the Inventory for the Assessment of the Quality of Life in Children and Adolescents (IQCL). Results: Parent reported behavioural outcome on all CBCL problem and competence scores was worse, whereas quality of life on self reported IQCL scores was not reduced compared to the normal population. On multivariate analysis, severe preoperative hypoxia was related to parent reported social problems; peri-and postoperative cardiocirculatory insufficiency was associated with internalising, externalising, attention, and total behavioural problems. Reduced expressive language was associated with total behavioural problems, and poor academic achievement was related to parent reported deficits in school performance. Impaired neurological status and reduced endurance capacity both predicted self reported stress by illness. Conclusions: The neonatal arterial switch operation with combined circulatory arrest and low flow bypass is associated with parent reported long term behavioural impairment, but not with self reported general reduction in quality of life. This discrepancy may be a result of different perception of illness. In our experience, increased risk of long term psychosocial maladjustment after neonatal corrective cardiac surgery is related to the presence of neurological impairment and reduced endurance capacity.

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Section: Discussionmentioning

confidence: 90%

Long term behavioural outcome after neonatal arterial switch operation for transposition of the great arteries

Hövels-Gürich

Konrad

Wiesner

et al. 2002

Archives of Disease in Childhood

141

128

View full text Add to dashboard Cite

show abstract

“…20 Several cross-sectional studies have assessed the role of children's illnesses and their severity on parent's concurrent psychosocial health, although the findings have been contradictory. 15,18,[39][40][41] However, the more recent results, irrespective of study design, seem to support the notion that the severity of children's illnesses may not impact significantly on psychosocial functioning among their parents, 15,18,[39][40][41] contrasting with the relatively older studies suggesting that it may.…”

Section: Determinants Of Psychosocial Morbidity Over Timementioning

confidence: 99%

“…It is suggested that stress levels among PCCHD may vary depending on the stage of treatment, 19 independent of the severity of the defect. 20 Other longitudinal studies have investigated the role of psychosocial resources in the resiliency process, although the findings in this regard are elusive. Although emotional 21 and educative 22 support have been suggested to modify distress and anxiety levels among PCCHD, other resources such as coping and locus of control have not received unequivocal support in the resiliency process.…”

mentioning

confidence: 99%

“…Most samples represent selected groups of parents of children with specific diagnoses 19,23 and age groups, 18,22 and include mothers predominantly. 20, 21 We are not aware of longitudinal data representative of all children with CHD, portraying the situation of both mothers and fathers, or accounting for gender differences. The current study is a contribution in addressing these issues.…”

mentioning

confidence: 99%

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Psychosocial morbidity among parents of children with congenital heart disease: A prospective longitudinal study

2006

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“…Im [3,12,16,25]. Demnach ist "chronic sorrow" ein Konzept, das in der Versorgung der Patientenfamilien stärker aufgegriffen und berücksichtigt werden sollte [17,28].…”

Section: Psychosoziale Krankheitsbelastungenunclassified