Illness perceptions and quality of life in families with child with atopic dermatitis

Siafaka, Vassiliki; Zioga, Aikaterini; Evrenoglou, Theodoros; Mavridis, Dimitris; Tsabouri, Sophia

doi:10.1016/j.aller.2020.03.003

Cited by 12 publications

(10 citation statements)

References 37 publications

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“…Siafaka ve ark. [21] AD tanılı 75 çocuk ve annelerinin dahil edildiği çalışmada AD'nin yaşam kalitesi üzerinde orta düzeyde etkili olduğu, bunun da hastalığın şiddeti ve kronikliği ile ilgili olduğu bulunmuştur. Al Shobaili [22] yaptığı 447 AD tanılı pediatrik hastanın ailelerinin incelendiği çalışmada yaşam kalite düzeylerinde %96,6 oranında olumsuz etkilenme olduğu ve SCORAD şiddeti ile pozitif korelasyon gösterdiği gösterilmiştir.…”

Section: Discussionunclassified

Atopik dermatit tanılı çocukların aile bireylerinde yaşam ve uyku kalitesinin değerlendirilmesi

SARİ¹,

SOYSAL²,

Türkeli³

2022

Pamukkale Medical Journal

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ÖzAmaç: Atopik dermatit (AD) sıklıkla infant ve çocukluk döneminde görülen, iyileşme ve alevlenme ataklarıyla kronik seyir gösteren, yoğun kaşıntılı inflamatuar bir deri hastalığıdır. Diğer kronik hastalıklarda olduğu gibi AD hastalarında hasta bakımı ve tedavi süreci uzun süre almaktadır. Bu da hasta bireyler kadar hasta bireylerin ailelerinin yaşam kalitesini ve uykusunu önemli ölçüde etkileyebilmektedir. Hem hastaların hem ailelerin yaşam kalitesini bozmaktadır. Bu çalışmada 6 ay-6 yaş arasındaki AD tanılı çocukların annelerinin yaşam ve uyku kalitesi ile 2-4 yaş arası sağlıklı kardeşlerinin yaşam kalitesinin değerlendirilmesi amaçlandı. Gereç ve yöntem: Çocuk alerji ve immünoloji polikliniğine Aralık 2019-Şubat 2020 tarihleri arasında başvuran 6 ay-6 yaş aralığındaki AD tanılı 50 hastanın anneleri ve 2-4 yaş arasındaki kardeşleri ile 6 ay-6 yaş aralığındaki sağlıklı 50 çocuğun anneleri ve 2-4 yaş arasındaki kardeşleri çalışmaya kontrol grubu olarak dahil edildi. AD tanısı Hanifin-Rajka kriterlerine göre konuldu. Hastalık şiddeti SCORAD İndeksi ile değerlendirildi. Pediatrik Yaşam Kalitesi Ölçeği olan PedsQL TM Versiyon 4.0 Kısa Form 15, aile etki ölçeği ebeveyn raporu ( PedsQL TM Family impact Module ) ve Pittsburgh Uyku Kalitesi İndeksi (PUKİ) anneler tarafından dolduruldu. Bulgular: Atopik dermatit tanılı çocukların annelerinin aile etki ölçeği toplam skoru kontrol grubuna göre anlamlı düşük bulundu. Atopik dermatitli çocukların kardeşlerinin yaşam kalitesi skoru kontrol grubuna göre anlamlı düşük saptandı. Annelerin PUKİ puanlarına bakıldığında alışılmış uyku etkinliği ve uykuya yardımcı ilaç kullanımı dışında tüm parametrelerde her iki grup arasında istatistiksel anlamlı fark saptandı. Sonuç: Atopik dermatitli olguların aile bireylerinin yaşam kalitesinin düştüğü, uyku kalitesinin bozulduğu sonuçlarına varılmakla birlikte, daha sağlıklı veriler elde edilebilmesi için daha geniş katılımlı ve çok merkezli destekleyici çalışmalara ihtiyaç olduğu kanısındayız.

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Section: Discussionunclassified

Atopik dermatit tanılı çocukların aile bireylerinde yaşam ve uyku kalitesinin değerlendirilmesi

SARİ¹,

SOYSAL²,

Türkeli³

2022

Pamukkale Medical Journal

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“…Особливої уваги та актуальності набуває проблема оцінки якості життя дітей, які страждають від дерматологічних захворювань. Естетичні аспекти, клінічні симптоми значно порушують звичний дитині спосіб життя та можуть спричиняти серйозні порушення емоційної та соціальної сфери не лише самої дитини, але і її родини в цілому [4,15,16].…”

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“…Ці впливи поки що не відображені в існуючих критеріях тяжкості захворювань шкіри і можуть включати в себе психологічні стреси, стан розгубленості, відчуття провини, сорому, а також психологічний дискомфорт. Із часом вплив цих факторів може приводити до помітного зменшення стабільності в емоцій ному стані, соціальному благополуччі, успіш ності в навчанні та працездатності на роботі, а також в особистому житті [2,4,6,13,15]. У хво рого виникає гіперергічне сприйняття елемен тів шкірного висипу, що створює відчутні перешкоди в щоденному житті, наприклад, при купанні, одяганні, заняттях спортом, доз віллі, навчанні і роботі, а також веде до зміни зовнішнього вигляду.…”

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“…У педіатричних дерма тологічних клініках використовують так зва ний опитувальник педіатричних симптомів, що містить 35 коротких запитань, на які відпо відають батьки. Найчастіше у світі оцінка яко сті життя дітей із дерматозами / дерматитами проводиться за загальноприйнятим опитуваль ником якості життя дітей [4,5,15].…”

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Evaluation of life quality in children with dermatological diseases (literature review)

Mochulska¹

2021

MPU

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Skin diseases have become one of the most relevant problem due to their global prevalence and intensive growth nowadays. Significantly increased the interest in studying of the life quality of patients with acute and chronic dermatological diseases. The life quality of the patient is the most objective characteristic of the impact of the disease on the patient's condition and various areas of his activity. Emotional or social disorders caused by the disease often do not allow the patient to feel full and healthy person even if clinical recovery. The peculiarities of patients' perception of somatic disease significantly affect both on its course and on the effectiveness of therapeutic measures. Skin diseases form an aspect of life quality that can be dangerous for the prognosis. Dermatological diseases can lead to significant limitations in the physical, emotional and social aspects of patients' lives and can interfere with success in learning and at work, as well as in personal life. In dermatology to assess the quality of life of patients are used: general medical scales, special dermatological scales, dermatological scales for certain nosologies. Purpose — to analyze literary datas on the research methods of life quality in children with dermatological diseases. Conclusions. Determining and evaluating indicators of life quality in patients is a valuable and reliable indicator of the general condition, that allows to monitor the effectiveness of treatment depending on the patient's condition and creates an objective picture of the disease. Assessment of quality of life in patients with dermatological diseases makes it possible to understand the essence of the clinical problem, to determine the most rational method of treatment, as well as to assess its expected results by parameters that are at the intersection between the scientific approach and the patient's point of view. No conflict of interest was declared by the author. Key words: assessment of life quality, dermatological diseases, children.

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“…The main symptom of AD is itching, and it can lead to frequent scratching, painful skin, loss of sleep, and skin infections [9] . A recent study in Greece 2020 concluded that quality of life had moderate effect on parents quality of life especially in parent psychological status can lead to anxiety, low mood, frustration and overprotection for child thus lead to unpleasant result in management care [10] . A global review study included United States, Italy and Brazil 2018 showed that although atopic dermatitis is not a fatal disease it can severely affect quality of life in many domains [11] .…”

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Prince sultan military medical city Riyadh, Saudi Arabia quality of life for parents having children with atopic dermatitis in Riyadh 2020 cross-sectional survey

Alhayyan¹,

AlSiad²,

Kofi³

2020

Int. J. Adv. Community Med.

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Background: Atopic dermatitis is the most common chronic inflammatory skin disease in children. Therefore, it has an impact on patients' quality of life (QoL). Families with children having AD are vulnerable to have diversity of physical as well as psychological difficulties, including experiencing extreme fatigue, stress, frustration, and low QoL, particularly when there is slow or no improvement in the condition. Aims/Objectives: We aimed to assess the quality of life (QOL) of parents having children with AD and to determine its predictors. Methods: This was an observational, cross-sectional survey study among families with children suffering from AD. Data was collected by the validated Arabic version of the dermatitis family impact (DFI) questionnaire [19] . The study has been conducted after taking the institutional review board approval at PSMMC. Due to the COVID-19 pandemic, data was collected online by sending an invitation to the parents explaining the aims and objectives of the research through WhatsApp, SMS messages, and social media. Results: A total of 93 parents having a child with atopic dermatitis (only one parent per family) participated in the current study, with a mean (±SD) age of 29.49 (±5.02). The vast majority (97.8%) of the respondents reported that mothers are the ones who take care of the AD child. The mean age of the children was 4.85 (±2.71). The overall mean (±SD) score of the DFI was 16.97(±7.55). The highest impact of having a child with atopic dermatitis was on the expenditures with a mean (±SD) score of 1.91 (±0.84) out of 3. On the other hand, the lowest effect was on the family leisure activities, with a mean score of 1.55 (±0.83). The level of effect of atopic dermatitis on the quality of life of parents having children with atopic dermatitis is severe in 23.66%, moderate in 43.01% of the respondents, and low in 27.96%. The DFI total score differed significantly only by participants' age and marital status. Conclusion: Atopic dermatitis (AD) had a moderate impact on the QOL of parents whose children had AD. Marital status and both parents and child age were the factors that significantly correlated with the parents' QoL.

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Illness perceptions and quality of life in families with child with atopic dermatitis

Cited by 12 publications

References 37 publications

Atopik dermatit tanılı çocukların aile bireylerinde yaşam ve uyku kalitesinin değerlendirilmesi

Atopik dermatit tanılı çocukların aile bireylerinde yaşam ve uyku kalitesinin değerlendirilmesi

Evaluation of life quality in children with dermatological diseases (literature review)

Prince sultan military medical city Riyadh, Saudi Arabia quality of life for parents having children with atopic dermatitis in Riyadh 2020 cross-sectional survey

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