Illness perceptions and distress in women at increased risk of breast cancer

Rees, Gwyneth; Fry, Alison; Cull, Ann; Sutton, Stephen

doi:10.1080/08870440412331279764

Cited by 77 publications

(72 citation statements)

References 69 publications

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“…The result for MS and cancer patients in this research also proves that the understanding of illness may change in time. However, from the studies on the revised version of the questionnaire (IPQ-R) we conclude that in terms of illness coherence this stability refers to BC patients (Rees, Fry, Cull, & Sutton, 2004). The inconsistency suggests that one item cannot measure such a complex phenomenon as the subjective understanding of illness and that further study on the short version of the IPQ is necessary, especially with regard to the aspect of understanding the illness.…”

Section: Discussionmentioning

confidence: 99%

Psychometric properties for the Polish version of the Brief Illness Perception Questionnaire (Brief IPQ)

Kossakowska¹,

Stefaniak²

2016

Health Psychology Report

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Background This study presents the Polish validation of the Brief Illness Perception Questionnaire, a nine-item scale which was constructed to assess the cognitive and emotional representations of illness among Polish patients. This tool is derived from the Common-Sense Model of Self-Regulation of Health and Illness. Participants and procedure This study included 923 chronically ill people with the following diseases: eczema (E), bronchial asthma (BA), chronic obstructive pulmonary disease (COPD), rheumatoid arthritis (RA), Hashimoto’s disease (HD), diabetes type II (D), acne (A), glaucoma and cataract (G, C), HIV/AIDS, ischaemic heart disease (IHD), psoriasis (P), breast and stomach cancer (C), and multiple sclerosis (MS). Test–retest reliability was assessed in 358 patients with selected chronic illnesses. Concurrent validity was assessed by correlating Kurtzke’s EDSS and the Brief IPQ in 140 MS patients. Discriminant validity was verified by comparing means for the tool among four groups of patients. Results The Polish version of the Brief IPQ showed good test–retest reliability. The scale also demonstrates good concurrent validity in MS patients. The discriminant validity of the Brief IPQ was supported by its ability to distinguish among different illnesses. Conclusions The Brief IPQ is a good, short and easy to use tool for assessing the perceptions of illness among Polish patients.

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Section: Discussionmentioning

confidence: 99%

Psychometric properties for the Polish version of the Brief Illness Perception Questionnaire (Brief IPQ)

Kossakowska¹,

Stefaniak²

2016

Health Psychology Report

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“…Numerous studies have demonstrated increased anxiety in females with a family history of breast cancer [16,17]. Some studies have also shown that patients with a lower level of education report more breast-cancerspecific distress [18].…”

Section: Discussionmentioning

confidence: 99%

Who's the doctor? Patients' perceptions of the role of the breast radiologist: a lesson for all radiologists

O’Mahony

McCarthy²,

McDermott³

et al. 2012

BJR

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Objective: The aim of this study was to explore patients' perceptions of the role of the radiologist in their care. Methods: The questionnaire used was designed in conjunction with a psychologist who had an interest in oncology, and piloted. The final questionnaires were distributed to patients attending the breast clinic at St James's Hospital, Dublin, Ireland, from 1 March to 1 July 2011. Patients requiring imaging (mammography and/or ultrasound) were asked to complete the same questionnaire again after imaging procedures were performed. Paired t-tests were used to assess for changes in parameters, including ranking of members of the breast care team in order of perceived importance and levels of anxiety pre and post consultation with the radiologist. Results: 306 patients were recruited. 76% of patients thought that radiologists were radiographers and only 14% knew that radiologists were medical doctors. Nearly 40% of patients did not consider that radiologists had a role to play in their care. There was no statistically significant difference in the ranking of team members pre and post consultation. There was a significant improvement in patient anxiety levels after consultation with the breast radiologist, which is likely to be due to the patient learning the outcome of tests performed. Conclusion: There is a lack of awareness amongst patients and amongst our colleagues in paramedical disciplines regarding the roles and responsibilities of the modern radiologist. Advances in knowledge: Radiology must act to increase public awareness so that future changes in the health service will reflect the scope and importance of the speciality.

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“…En cuanto a la representación que se tiene de esta enfermedad, históricamente se ha asociado con la muerte y la putrefacción, nociones que parecen perdurar también hasta la modernidad, lo que sugiere que las relaciones etimológicas establecidas en la historia, permiten indicar que el cáncer hace parte de un dispositivo de categorización que consume y devora el cuerpo 21 . Es claro entonces que la representación social del cáncer no solo está organizada alrededor del dolor y del sufrimiento (22,23) sino también de la muerte (12,24,25) , la mutilación, la incapacidad, el cambio a nivel social y familiar (25) , una enfermedad cruel que acarrea grandes pérdidas, asociada a sentimientos negativos como desesperación y miedo, y a quimioterapia (26) , que desestabiliza el proyecto de vida (5) , un flagelo social (12,24) y que estigmatiza (27)(28)(29) .…”

Section: Representaciones Sociales Del Cáncerunclassified

Representaciones sociales del cáncer y de la quimioterapia

Rodríguez

Palacios‐Espinosa

2013

Psicooncología

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Objective: To review of the literature about social representations of cancer and chemotherapy.Method: For this review was made a search of the literature in specialized databases through keywords combination: theory of social representations, physical illness, cancer and chemotherapy.Results: We found that even in the 21st century, cancer continues to be subject to negative social representations as well as chemotherapy; there is an obvious deficit of research concerning the topic; a professional duty is to encourage research in this topic to promote these representations change both the patient,caregivers and healthcare professionals, providing better care to the cancer patient and consequently a better adaptation to the physical and social changes that involve the disease.Keywords: Social representations, physical illness, cancer, chemotherapy. ResumenObjetivo: Realizar una revisión de la literatura sobre las representaciones sociales del cáncer y de la quimioterapia.Método: Para esta revisión se hizo una bús-queda de la literatura en bases de datos especializadas a través de la combinación de diversas palabras clave como teoría de las representaciones sociales, representaciones sociales de la enfermedad, cáncer y quimioterapia.Resultados: Se encontró que aún en el siglo XXI, el cáncer continúa siendo objeto de representaciones sociales negativas al igual que la quimioterapia; hay un déficit evidente de investigaciones referentes al tema; es un deber profesional incentivar la investigación en este tema para promover el cambio de dichas representaciones tanto en el enfermo como en los cuidadores y profesionales de la salud, propiciando una mejor atención al enfermo de cáncer y en consecuencia una mejor adaptación a los cambios físicos y sociales que implican la enfermedad.Palabras clave: Representaciones sociales, enfermedad física, cáncer, quimioterapia. PLANTEAMIENTO DEL PROBLEMAEl cáncer ha sido históricamente, una entidad que cuya mortalidad ha sido significativa. Aún hoy, en el siglo XXI y pese a la multiplicidad de avances científicos para manejarlo, continúa representando en alguna medida, un símbolo de mortali-

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Illness perceptions and distress in women at increased risk of breast cancer

Cited by 77 publications

References 69 publications

Psychometric properties for the Polish version of the Brief Illness Perception Questionnaire (Brief IPQ)

Psychometric properties for the Polish version of the Brief Illness Perception Questionnaire (Brief IPQ)

Who's the doctor? Patients' perceptions of the role of the breast radiologist: a lesson for all radiologists

Representaciones sociales del cáncer y de la quimioterapia

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