Illness perception of adolescents with well-controlled type 1 diabetes mellitus

Jonker, Deborah; Deacon, Elmarí; Rensburg, Esmé van; Segal, David

doi:10.1177/2055102918799968

Cited by 14 publications

(28 citation statements)

References 40 publications

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“…Self-perception about their health is a strong facilitator that emerged from this study. In the case of chronic diseases, illness perceptions can shape a positive framework that promotes selfcare (47). Fear of complications due to poorly controlled diabetes motivates study participants to adhere to their therapeutic regimens.…”

Section: Discussionmentioning

confidence: 99%

Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan

et al. 2020

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Objective: This study aimed to qualitatively explore perspectives, practices, and barriers to self-care practices (eating habits, physical activity, self-monitoring of blood glucose, and medicine intake behavior) in urban Pakistani adults with type 2 diabetes mellitus (T2DM).Methods: Pakistani adults with T2DM were recruited from the outpatient departments of two hospitals in Lahore. Semistructured interviews were conducted and audiorecorded until thematic saturation was reached. Two researchers thematically analyzed the data independently using NVivo® software with differences resolved by a third researcher.Results: Thirty-two Pakistani adults (aged 35–75 years, 62% female) participated in the study. Six themes were identified from qualitative analysis: role of family and friends, role of doctors and healthcare, patients' understanding about diabetes, complication of diabetes and other comorbidities, burden of self care, and life circumstances. A variable experience was observed with education and healthcare. Counseling by healthcare providers, family support, and fear of diabetes-associated complications are the key enablers that encourage study participants to adhere to diabetes-related self-care practices. Major barriers to self care are financial constraints, physical limitations, extreme weather conditions, social gatherings, loving food, forgetfulness, needle phobia, and a hectic job.Conclusion: Respondents identified many barriers to diabetes self care, particularly related to life situations and diabetes knowledge. Family support and education by healthcare providers were key influencers to self-care practices among Pakistani people with diabetes.

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Section: Discussionmentioning

confidence: 99%

Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan

et al. 2020

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“…In other pediatric illnesses (eg, diabetes, asthma, sickle cell), illness perceptions have been associated with medication adherence, 16,17 quality of life, [18][19][20] and self-management of illness. 21,22 In contrast, the literature on illness perceptions in children and adolescent with CKD and kidney transplant is sparse.…”

Section: Illne Ss Percep Ti On Smentioning

confidence: 99%

“…Illness perceptions include patient evaluations of their illness through cognitive and emotional experiences and have been associated with positive and adaptive health outcomes. In other pediatric illnesses (eg, diabetes, asthma, sickle cell), illness perceptions have been associated with medication adherence, 16,17 quality of life, 18‐20 and self‐management of illness 21,22 . In contrast, the literature on illness perceptions in children and adolescent with CKD and kidney transplant is sparse.…”

Section: Illness Perceptionsmentioning

confidence: 99%

Illness perceptions and beliefs about medication: impact on health‐related quality of life in adolescent kidney transplant recipients

Zelikovsky

Nelson

2021

Pediatric Transplantation

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There are approximately 10,000 children and adolescents living with CKD in the United States, with a prevalence of 124.2 males and 90.6 females per million. 1 Symptoms of CKD include fatigue, swelling, increased urination, decreased concentration, yellowing/ dryness of the skin, and a shorter stature. Effects of CKD include waste buildup, anemia, high blood pressure, and nerve damage. 1 Kidney transplantation is the optimal intervention and a preferable alternative to dialysis treatment; however, organ transplantation is

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“…Additionally to the type of health care support received, 10 further identified barriers that prevent adherence to diabetes care plans amongst adolescents with T1D include lack of parental support, 10 , 11 demographic factors such as race and age, 3 attitudes, 2 fatigue and peer pressure, 4 coping styles 12 and illness perception. 13 , 14 …”

Section: Introductionmentioning

confidence: 99%

“…Thus, illness perception plays a key role in the management of T1D. Limited research, mostly quantitative in nature, has been conducted around the illness perception of T1D 14 , 18 , 22 , 24 ; however, a lacuna remains in research on the qualitative illness perception of adolescents with diabetes in the South African context. Exploring the illness perception amongst adolescents at risk of poor glycaemic control in South Africa will lead to improved understanding of T1D and thus aid in the management of diabetes in this age group.…”

Section: Introductionmentioning

confidence: 99%

‘It kinda sucks’: Illness perception of a group of South African adolescents with type 1 diabetes mellitus

Lesage

Deacon

Rensburg

et al. 2021

Afr. j. prim. health care fam. med.

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Background: Living with diabetes is challenging, especially for adolescents at risk of poor glycaemic control. Understanding the illness perceptions of this group is important to be able to develop interventions for this growing population in need.Aim: This study explored the illness perception amongst adolescents living with type 1 diabetes (T1D) and how these perceptions interacted with the management of T1D.Setting: This study was conducted at a medical centre providing care for adolescents living with T1D in Parktown, South Africa.Methods: A qualitative, explorative design with semi-structured interviews was followed. A non-random purposive sampling method was utilised. The illness perception amongst eight adolescents, aged 12–18 years, at risk of poor glycaemic control, was analysed through thematic analysis.Results: Two subthemes related to illness perception were generated, namely (1) illness perception of T1D is negative and (2) living with T1D leads to a sense of being different. Furthermore, two subthemes were generated in relation to how illness perceptions interacted with diabetes management, namely (3) management of T1D is challenging and (4) management of T1D is motivated by fear.Conclusion: This group of adolescents with at-risk glycaemic control believed that T1D is difficult to manage, leading to a largely negative perception of the disease. This study contributes to the body of literature on adolescents where illness perception may play a role in adhering to diabetes care plans. This research may give additional insights into the awareness of illness perception in designing successful interventions.

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Illness perception of adolescents with well-controlled type 1 diabetes mellitus

Cited by 14 publications

References 40 publications

Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan

Type 2 Diabetes Patients' Perspectives, Experiences, and Barriers Toward Diabetes-Related Self-Care: A Qualitative Study From Pakistan

Illness perceptions and beliefs about medication: impact on health‐related quality of life in adolescent kidney transplant recipients

‘It kinda sucks’: Illness perception of a group of South African adolescents with type 1 diabetes mellitus

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