Igniting intersectoral collaboration in chronic disease management: a participatory action research study on epilepsy care in Ireland

Varley, Jarlath; Kiersey, Rachel; Power, Robert; Byrne, John-Paul; Doherty, Colin P.; Saris, Jamie; Lambert, Veronica; Fitzsimons, Mary

doi:10.1080/13561820.2019.1697655

Cited by 7 publications

(7 citation statements)

References 38 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Telehealth appointments may help to timely identify anxiety and depression. Several recent studies have highlighted the feasibility of telehealth appointments in epilepsy care and suggest an added value of interprofessional collaboration [ [38] , [39] , [40] , [41] ].…”

Section: Discussionmentioning

confidence: 99%

Access to healthcare and prevalence of anxiety and depression in persons with epilepsy during the COVID-19 pandemic: A multicountry online survey

Hees¹,

Fodjo²,

Wijtvliet³

et al. 2020

Epilepsy & Behavior

View full text Add to dashboard Cite

Objective The objective of this study was to assess access to healthcare and to estimate the prevalence of depression and anxiety among persons with epilepsy (PWE) during the ongoing coronavirus disease 2019 (COVID-19) pandemic. Methods We conducted a multicountry online survey among PWE. Persons with epilepsy were invited to participate through various social media channels. The Hospital Anxiety and Depression Scale (HADS) and 9-item Patient Health Questionnaire (PHQ-9) scale were used to score anxiety and depression. Logistic regression modeling was used to investigate factors associated with anxiety and depression. Results Three hundred ninety-nine PWE were included (mean age: 38.22 ± 12.09 years), the majority were female (80.2%) and living in high-income countries (83.2%). Two hundred three PWE reported symptoms of a cold since January 2020. Nine (25%) of the 36 PWE tested for COVID were positive. A total of 72 PWE (19.6%) reported problems to obtain antiseizure medication (ASM), which in 25% of cases was directly COVID-related. Of the 399 PWE, 201 (50.4%) screened positive for anxiety according to the HADS; 159 (39.8%) and 187 (46.9%) PWE screened positive for depression based on the HADS and PHQ-9 scale, respectively. Female gender and financial problems were associated with both depression and anxiety. A planned follow-up consultation with the treating physician was associated with a lower risk of depression, whereas difficulties to access ASM treatment increased the odds of depression. In 65/137 (47.4%) PWE with a planned follow-up visit with the treating physician, this consultation was canceled. Conclusions Innovative approaches are needed to ensure continuity in access to ASM treatment. Healthcare workers should ensure continued follow-up, either through inperson or telehealth appointments, to timely identify symptoms of anxiety and depression and act accordingly.

show abstract

Section: Discussionmentioning

confidence: 99%

Access to healthcare and prevalence of anxiety and depression in persons with epilepsy during the COVID-19 pandemic: A multicountry online survey

Hees¹,

Fodjo²,

Wijtvliet³

et al. 2020

Epilepsy & Behavior

View full text Add to dashboard Cite

show abstract

“…The traditional model of chronic disease management involves episodic, reactive, and hospital centric care being delivered to patients via face-to-face encounters [3] . The establishment of the Irish National Care Programme for Epilepsy (NCPE) in 2010 sought to drive clinical service improvements in Ireland through improved patient experience, access to care, and value [4] , [5] .…”

Section: Introductionmentioning

confidence: 99%

LoVE in a time of CoVID: Clinician and patient experience using telemedicine for chronic epilepsy management

Banks

Corrigan

Grogan

et al. 2021

Epilepsy & Behavior

Self Cite

View full text Add to dashboard Cite

As part of our ongoing interest in patient-and family-centered care in epilepsy, we began, before the onset of the CoVID-19 pandemic, to evaluate the concerns and preferences of those delivering and receiving care via telemedicine. CoVID-19 arrived and acted as an unexpected experiment in nature, catalyzing telemedicine's widespread implementation across many disciplines of medicine. The arrival of CoVID-19 in Ireland gave us the opportunity to record these perceptions pre-and post-CoVID. Data were extracted from the National Epilepsy Electronic Patient Record (EEPR). Power BI Analytics collated data from two epilepsy centers in Dublin. Analysis of data on reasons for using the telephone support line was conducted. A subset of patients and clinicians who attended virtual encounters over both periods were asked for their perception of telemedicine care through a mixed methods survey. Between 23rd December 2019 and 23rd March 2020 (pre-CoVID era), a total of 1180 patients were seen in 1653 clinical encounters. As part of a telemedicine pilot study, 50 of these encounters were scheduled virtual telephone appointments. Twenty eight surveys were completed by clinicians and 18 by patients during that period. From 24th March 2020 to 24th June 2020, 1164 patients were seen in 1693 encounters of which 729 (63%) patients were seen in 748 scheduled virtual encounters. 118 clinician impressions were captured through an online survey and 75 patients or carers completed a telephone survey during the post-CoVID era. There was no backlog of appointments or loss of care continuity forced by the pandemic. Clinicians expressed strong levels of satisfaction, but some doubted the suitability of new patients to the service or candidates for surgery receiving care via telemedicine. Patients reported positive experiences surrounding telephone appointments comparing them favorably to face-to-face encounters. The availability of a shared EEPR demonstrated no loss of care contact for patients with epilepsy. The survey showed that telemedicine is seen as an effective and satisfactory method of delivering chronic outpatient care.

show abstract

“…A similar trend was also observed in the cancer palliative care group. An earlier study has reported that many hospital nurses are unwilling to practice in homecare settings because of their lack of homecare expertise (Varley et al, 2020). Completion of training for specific medical procedures may have enabled nurses to become confident enough to apply their skills in homecare settings.…”

Section: Discussionmentioning

confidence: 99%

“…Similarly, more collaborative visits were conducted across all groups associated with hospitals with a homecare nurse department. Nurses have easier access to and can easily collaborate with colleagues in a hospital, whereas geographical distance separates hospital and homecare and makes it more difficult (Varley et al, 2020).…”

Section: Discussionmentioning

confidence: 99%

Collaborative visits by hospital specialist nurses with homecare nurses: A nationwide, cross-sectional, web-based survey

Masuda

Sakka

Kitamura

et al. 2023

JINR

View full text Add to dashboard Cite

Objective: Hospital-based specialist nurses (clinical nurse specialists and certified nurses) are increasingly conducting patient home visits along with homecare nurses due to the increasing necessity of home care for persons with multiple medical needs. However, not much is known about such visits. Thus, this study examines collaborative visits by specialist nurses. Methods: A web-based questionnaire survey was sent to specialist nurses in Japan specializing in (1) wound care, (2) cancer palliative care, and (3) chronic disease care. Multiple logistic regression analyses were performed to identify the factors involved in collaborative visits, focusing not only on the individual but also on hospital/community characteristics. Results: Data from 1,027 specialist nurses were analyzed. Among them, 45.6%, 21.4%, and 18.3% of wound care, cancer palliative care, and chronic disease nurses, respectively, conducted collaborative visits. For nurses specializing in wound and cancer palliative care, holding managerial positions was associated with providing collaborative visits. Wound care nurses from hospitals in municipalities with fewer hospital beds per capita tended to conduct collaborative visits, whereas cancer palliative nurses in communities with a higher aging rate provided more collaborative visits. For chronic disease nurses, more working hours as specialists, lower participation rates in community-based multidisciplinary gatherings, and working in hospitals with open community consultation services promoted collaborative visits. Conclusions: Hospital and community factors are associated with collaborative visits, suggesting a need for hospital-wide and policy-supported efforts to further increase collaborative visits.

show abstract

Igniting intersectoral collaboration in chronic disease management: a participatory action research study on epilepsy care in Ireland

Cited by 7 publications

References 38 publications

Access to healthcare and prevalence of anxiety and depression in persons with epilepsy during the COVID-19 pandemic: A multicountry online survey

Access to healthcare and prevalence of anxiety and depression in persons with epilepsy during the COVID-19 pandemic: A multicountry online survey

LoVE in a time of CoVID: Clinician and patient experience using telemedicine for chronic epilepsy management

Collaborative visits by hospital specialist nurses with homecare nurses: A nationwide, cross-sectional, web-based survey

Contact Info

Product

Resources

About