Identity cues and dementia in nursing home intervention

Vézina, Aline; Robichaud, Léon; Voyer, Philippe; Pelletier, Daniel

doi:10.3233/wor-2011-1201

Cited by 5 publications

(4 citation statements)

References 39 publications

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“…This comprised 17 evidence reviews (not Namaste Care) [ 34 – 50 ], 59 primary studies (not Namaste Care) [ 33 , 51 – 109 ] and eight Namaste Care studies [ 8 , 10 , 12 , 27 – 31 ]. The 59 primary papers included 24 Randomised controlled trials [ 59 , 60 , 64 , 65 , 70 , 78 , 79 , 81 – 83 , 87 , 89 , 90 , 92 – 97 , 99 , 104 , 106 – 108 ], five non randomized controlled studies [ 67 , 74 , 88 , 100 , 110 ], three before/after studies [ 43 , 62 , 95 ], ten observational studies [ 52 – 58 , 66 , 68 , 109 ] and ten qualitative studies [ 71 , 72 , 76 , 77 , 80 , 84 , 85 , 101 – 103 ]. The rest included a variety of study designs including pilot studies and cross over studies.…”

Section: Resultsmentioning

confidence: 99%

Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

et al. 2018

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BackgroundSeventy percent of people with advanced dementia live and die in care homes. Multisensory approaches, such as Namaste Care, have been developed to improve the quality of life and dying for people with advanced dementia but little is known about effectiveness or optimum delivery. The aim of this review was to develop an explanatory account of how the Namaste Care intervention might work, on what outcomes, and in what circumstances.MethodsThis is a realist review involving scoping of the literature and stakeholder interviews to develop theoretical explanations of how interventions might work, systematic searches of the evidence to test and develop the theories, and their validation with a purposive sample of stakeholders. Twenty stakeholders - user/patient representatives, dementia care providers, care home staff, researchers -took part in interviews and/or workshops.ResultsWe included 85 papers. Eight focused on Namaste Care and the remainder on other types of sensory interventions such as music therapy or massage. We identified three context-mechanism-outcome configurations which together provide an explanatory account of what needs to be in place for Namaste Care to work for people living with advanced dementia. This includes: providing structured access to social and physical stimulation, equipping care home staff to cope effectively with complex behaviours and variable responses, and providing a framework for person-centred care. A key overarching theme concerned the importance of activities that enabled the development of moments of connection for people with advanced dementia.ConclusionsThis realist review provides a coherent account of how Namaste Care, and other multisensory interventions might work. It provides practitioners and researchers with a framework to judge the feasibility and likely success of Namaste Care in long term settings. Key for staff and residents is that the intervention triggers feelings of familiarity, reassurance, engagement and connection.Study registrationThis study is registered as PROSPERO CRD42016047512Electronic supplementary materialThe online version of this article (10.1186/s12877-018-0995-9) contains supplementary material, which is available to authorized users.

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Section: Resultsmentioning

confidence: 99%

Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

et al. 2018

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“…Participants in our study described that their help to the relatives at the Moonlight changed to more hands-on care as the dementia progressed, which is in coherence with studies showing that family carers often continue to help the resident in the nursing home (Davies & Nolan 2006, Cohen et al 2014. Family members helped staff to get acquainted with their relative as a person (Vezina et al 2011), thereby helping them preserve his or her identity (Riedl et al 2013). Staff at the nursing home also described that they tried to see the person behind the disease (Ericson-Lidman et al 2013).…”

Section: Discussionmentioning

confidence: 99%

“…Family members helped staff to get acquainted with their relative as a person (Vezina et al . ), thereby helping them preserve his or her identity (Riedl et al . ).…”

Section: Discussionmentioning

confidence: 99%

Being a close family member of a person with dementia living in a nursing home

Cronfalk

Ternestedt

Norberg

2017

Journal of Clinical Nursing

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“…Having family caregivers recognized as partners in the care of the person with dementia can facilitate adaptation to the new situation in the nursing home [ 21 ]. Identity cues seem to play a central role in communication and constitute important information that the family caregivers can share with health care personnel with regard to a patient living with dementia [ 22 ].…”

Section: Introductionmentioning

confidence: 99%

Dignity in people with frontotemporal dementia and similar disorders — a qualitative study of the perspective of family caregivers

Sagbakken

Nåden

Ulstein

et al. 2017

BMC Health Serv Res

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BackgroundFrontotemporal dementia (FTD) constitutes on average 10–15% of dementia in younger persons (≤65 years old), but can also affect older people. These patients demonstrate a decline in social conduct, and/or language aphasias, apathy, and loss of insight that is gradual and progressive. Preservation of dignity seems to be highly relevant both before and after admission to different types of institutionalized care, but the research is scant. From the perspective of close relatives, this study aims to develop knowledge related to dignified or undignified care of patients with FTD and similar conditions.MethodsA qualitative, descriptive, and explorative design were employed to address the aims of this study. We interviewed nine relatives of people with FTD and similar conditions living in nursing homes, and two relatives of people living at home but attending day center 5 days a week.ResultsRelatives described the transition from being a close relative to someone who had little influence or knowledge of what constituted the care and the daily life of their loved ones. According to relatives’ descriptions, patients are deprived of dignity in various ways: through limited interaction with peers and close relatives, limited confirmation of identity through staff who know them well, lack of possibilities for making autonomous decisions or entertaining meaningful roles or activities. Examples provided from the day care centres show how dignity is maintained through identity-strengthening activities conducted in different places, under various kinds of supervision and care, and together with people representing different roles and functions.ConclusionsMaintaining a link with the world outside the institution, through closer cooperation between the institution and family members, and/or by the use of day care centres, seems to facilitate prevention of many of the factors that may threaten dignified care.

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Identity cues and dementia in nursing home intervention

Cited by 5 publications

References 39 publications

Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

Improving living and dying for people with advanced dementia living in care homes: a realist review of Namaste Care and other multisensory interventions

Being a close family member of a person with dementia living in a nursing home

Dignity in people with frontotemporal dementia and similar disorders — a qualitative study of the perspective of family caregivers

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