Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative study of survivorship providers

Sadak, Karim Thomas; Neglia, Joseph P.; Freyer, David R.; Harwood, Eileen M.

doi:10.1002/pbc.26587

Cited by 20 publications

(21 citation statements)

References 31 publications

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“…The identification of these perceived barriers may assist in directing resources to improve this transition. In conjunction with previously published research, new and improved models of communication between pediatric and adult providers will be necessary to ensure that these transitions are successful and valuable to adult‐centered providers . This includes streamlined transfer of critical survivor medical history as well as formal transition readiness assessments to standardize the transfer .…”

Section: Discussionmentioning

confidence: 99%

“…In conjunction with previously published research, new and improved models of communication between pediatric and adult providers will be necessary to ensure that these transitions are successful and valuable to adult-centered providers. 8 This includes streamlined transfer of critical survivor medical history as well as formal transition readiness assessments to standardize the transfer. 8 To our knowledge, these findings represent the largest and most current study of transitional care practices for CCS in the United States.…”

Section: Discussionmentioning

confidence: 99%

“…8 This includes streamlined transfer of critical survivor medical history as well as formal transition readiness assessments to standardize the transfer. 8 To our knowledge, these findings represent the largest and most current study of transitional care practices for CCS in the United States.…”

Section: Discussionmentioning

confidence: 99%

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Transitional care practices, services, and delivery in childhood cancer survivor programs: A survey study of U.S. survivorship providers

Sadak

Szalda

Lindgren

et al. 2019

Pediatric Blood & Cancer

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Purpose There are limited reports describing transition of young adult childhood cancer survivors (CCS) from pediatric to adult‐focused survivorship care. The purpose of this study was to characterize current transitional care practices in the United States. Project Description An online survey was sent to one preselected respondent at 163 Children's Oncology Group member institutions in the United States. Data were collected about (i) the availability and type of long‐term follow‐up services for adult CCS and (ii) policies and procedures for transitioning. Logistic regression was used to evaluate factors related to care for CCS. Results The response rate was 60% (97/163). Eighty‐one respondents (84%) represented centers with specialized pediatric‐focused CCS programs. Thirty‐nine percent (38/97) of programs delivered specialized transitional care for adult CCS. Adult‐centered care was delivered in both pediatric (39%, 15/38) and adult oncology clinics (39%, 15/38). The most common perceived transition barriers were lack of available partnering adult providers and adult providers’ lack of knowledge regarding CCS. The larger the program in terms of new diagnoses, the more likely they were to offer formal transitional care (<50 vs >200: odds ratios [OR] 20.0; 95% CI 3.2, 100.0, P = 0.004). Conclusions A variety of models are utilized for delivering care to adult CCS. Our results suggest that interventions to establish effective partnerships with adult providers on appropriate care of CCS may facilitate expanded availability of these services.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Transitional care practices, services, and delivery in childhood cancer survivor programs: A survey study of U.S. survivorship providers

Sadak

Szalda

Lindgren

et al. 2019

Pediatric Blood & Cancer

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“…This could be facilitated through the standardization of SCPs, which currently differ nationally and internationally . The crucial nature of good communication for the effective delivery of evidence‐based care has also been emphasized in recent literature .…”

Section: Discussionmentioning

confidence: 99%

The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews

et al. 2018

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Childhood cancer survivors and their parents have low confidence in primary care physicians' ability to manage their survivorship care. Encouraging engagement in primary care is important to promote holistic follow-up care, continuity of care, and long-term surveillance. Survivors'/parents' confidence in physicians may be improved by better involving primary care physicians throughout treatment and early survivorship, and by introducing the concept of eventual transition to adult and primary services. Although physicians are willing to deliver childhood cancer survivorship care, their confidence in doing so may be improved through better communication with tertiary services and more appropriate training.

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“…Several models of care for LTFU of these patients have been proposed including shared care LTFU programs as a collaboration between general practitioners (GPs) and cancer centers, GP-led models as well as clinic-based models of LTFU by a multidisciplinary team [6,[17][18][19]. Patients' satisfaction with LTFU was mostly dependent on coordination and communication between the involved specialists as well as their expertise concerning late effects and LTFU [18,20]. As the management of therapy-related chronic health conditions often requires multidisciplinary cooperation, we favored a clinic-based model of LTFU [19].…”

Section: Discussionmentioning

confidence: 99%

Multidisciplinary Late Effects Clinics for Childhood Cancer Survivors in Germany - a Two-Center Study

et al. 2018

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Background: Childhood cancer survivors are at risk for therapy-related sequelae and, therefore, require long-term follow-up. At 2 university hospitals in Germany collaborative multidisciplinary late effects clinics were installed to provide specialized care and to evaluate the current health status of these patients in a clinical setting. Patients andMethods: Every patient who visited the late effects clinics at the university hospital in Lübeck and Erlangen over a period of 3 years and met the inclusion criteria was included in the study. Patients' characteristics as well as cancer diagnosis, treatment related factors and the prevalence of chronic health conditions were assessed. Results: 220 patients attended the late effects clinics during the observation period. The median follow-up period was 16 years (range 5-45 years). In total over 64% of the patients were affected by at least 1 chronic health condition, including endocrine disruptions in 19.1% of the patients. Moreover, secondary neoplasms occurred in 9.1% of the study participants. Conclusion: German childhood cancer survivors are affected by multiple therapy-related sequelae. A comprehensive network of late effects clinics should be established to ensure specialized and risk-adapted care for every childhood cancer survivor in Germany.

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Identifying metrics of success for transitional care practices in childhood cancer survivorship: A qualitative study of survivorship providers

Cited by 20 publications

References 31 publications

Transitional care practices, services, and delivery in childhood cancer survivor programs: A survey study of U.S. survivorship providers

Transitional care practices, services, and delivery in childhood cancer survivor programs: A survey study of U.S. survivorship providers

The Role of Primary Care Physicians in Childhood Cancer Survivorship Care: Multiperspective Interviews

Multidisciplinary Late Effects Clinics for Childhood Cancer Survivors in Germany - a Two-Center Study

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