Identifying and predicting subgroups of information needs among cancer patients: an initial study using latent class analysis

Neumann, Melanie; Wirtz, Markus; Ernstmann, Nicole; Ommen, Oliver; Längler, Alfred; Edelhäuser, Friedrich; Scheffer, Christian; Tauschel, Diethard; Pfaff, Holger

doi:10.1007/s00520-010-0939-1

Cited by 75 publications

(83 citation statements)

References 39 publications

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“…The authors found that patients who lacked social support and lived isolated had more unmet needs. Another study used different questionnaires to identify and predict information needs among 326 patients suffering from different cancers, including CRC [22]. The main focus was to identify subgroups in more need of information.…”

Section: Discussionmentioning

confidence: 99%

Patients’ Perception of Information and Health-Related Quality of Life 1 Month After Discharge for Colorectal Cancer Surgery

et al. 2014

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The aim of this study was to investigate how patients perceive information and their health-related quality of life 1 month after discharge for colorectal cancer surgery. The aim was also to compare these results with the first 2 weeks at home and to identify factors related to the perception of information. One hundred patients from three surgical clinics in the south of Sweden were included in this study. Perception of information was assessed with EORTC QLQ-INFO25, health-related quality of life with QLQ-C30 and QLQ-CR38, classification of physical status with American Society of Anaesthesiologists (ASA) and sense of coherence with SOC-13. Patients in this study did not receive enough information, and this had not changed significantly since the first 2 weeks at home. Only one subscale about disease information (p = 0.01) had improved since the first 2 weeks at home, while health-related quality of life had improved significantly during the same period. Poorer physical status and living alone were related to a perception of having received less information after discharge. Patients did not receive sufficient information to prepare them for the period at home after discharge, and their perception of information remained during the first month at home. Patients with a poorer preoperative physical status and who live alone constitute a vulnerable group in need of more information at discharge. This enhances the need to individualize the information and to offer multiple ways of accessing information after discharge.

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Section: Discussionmentioning

confidence: 99%

Patients’ Perception of Information and Health-Related Quality of Life 1 Month After Discharge for Colorectal Cancer Surgery

et al. 2014

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“…31.4 % had no unmet information needs, 40 % had unfulfilled psychosocial information requirements, approx. 16 % exclusively had a need for medical information and 13.6 % required only psychosocial information [21]. The study situation is not entirely conclusive with regard to the information requirements of multimorbid breast cancer patients.…”

Section: Zusammenfassungmentioning

confidence: 70%

“…To collect psychosocial information requirements, the patients are asked whether they would have liked to have received more information on the subjects of health behaviour, work, everyday life, illness and treatment. The CAPIN scale (cancer patient information needs) by Neumann et al was adapted to our questionnaire for this purpose [21]. The in-formation requirements regarding health behaviour were measured with seven items, work with six items, everyday life with four items, illness with three items and treatment with three items.…”

Section: Instrumentmentioning

confidence: 99%

“…Here, the interpersonal level plays a significant role -the patients who receive information from medical professionals are the most satisfied [29]. An excellent staff-patient relationship is shown to be an important predictor of there being no unfulfilled requirements [21]. Due to the large sample size of over 4000 participants and the high response rate and additional clinical data from hospital staff, the data is of high quality.…”

Section: Concomitant Illnesses (N)mentioning

confidence: 99%

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Psychosocial Information Requirements for Multimorbid Breast Cancer Patients in Breast Centres in North Rhine Westphalia

Schmitz

Ernstmann

2015

Geburtshilfe Frauenheilkd

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“…The CPQ-BC also includes questions about unfulfilled psychosocial information needs, based on the CAPIN scale ("cancer patient information needs") developed by Neumann et al [21]. A selection of the questions, which have largely remained the same over the years, is presented below (l " Fig.…”

Section: Psychosocial Information Requirementsmentioning

confidence: 99%

Ten Years of Patient Surveys in Accredited Breast Centers in North Rhine-Westphalia

Kowalski

Pfaff

2016

Geburtshilfe Frauenheilkd

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Einleitung: Patientenbefragungen sind ein etabliertes Instrument zur Qualitätssicherung in Versorgungseinrichtungen. In diesem Artikel werden die Gestaltung und Weiterentwicklung der jährlichen Befragung von Brustkrebspatientinnen in nordrhein-westfälischen Brustzentren sowie ausgewählte Ergebnisse über den Verlauf von 10 Jahren diskutiert. Material und Methoden: Seit 2006 befragt das Institut für Medizinsoziologie, Versorgungsforschung und Rehabilitationswissenschaft (IMVR) der Universität zu Köln jährlich Patientinnen und Patienten mit primärem Mammakarzinom, die zwischen Februar und Juli jeden Jahres in einem von der Ärztekammer Westfalen-Lippe zertifizierten nordrhein-westfälischen Brustzentrum operiert worden sind, mit dem Kölner Patientenfragebogen für Brustkrebs. Der eingesetzte Fragebogen sowie die Ergebnisrückmeldung an die Brustzentren zur kontinuierlichen Verbesserung wurden in 2014 grundlegend überarbeitet. Ausgewählte Ergebnisse werden über den Zeitverlauf deskriptiv analysiert. Ergebnisse: Nach dem Befragungszeitraum von 10 Jahren lassen sich Aussagen zur Versorgungsrealität in den Brustzentren anhand von Daten zu 40 000 Patientinnen treffen. In einigen Bereichen sind über den Zeitverlauf positive Entwicklungen zu erkennen. Schlussfolgerungen: Das Befragungsvorgehen, der Kölner Patientenfragebogen für Brustkrebs 2.0 sowie die benchmarkorientierte Art der Ergebnisrückmeldung geben Impulse zum organisationalen Lernen in den Brustzentren. Das Konzept könnte auch in anderen Versorgungseinrichtungen zum Lernen und zu einer verbesserten Versorgung anregen.

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Identifying and predicting subgroups of information needs among cancer patients: an initial study using latent class analysis

Cited by 75 publications

References 39 publications

Patients’ Perception of Information and Health-Related Quality of Life 1 Month After Discharge for Colorectal Cancer Surgery

Patients’ Perception of Information and Health-Related Quality of Life 1 Month After Discharge for Colorectal Cancer Surgery

Psychosocial Information Requirements for Multimorbid Breast Cancer Patients in Breast Centres in North Rhine Westphalia

Ten Years of Patient Surveys in Accredited Breast Centers in North Rhine-Westphalia

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