Identification of a core set of exercise tests for children and adolescents with cerebral palsy: a Delphi survey of researchers and clinicians

Verschuren, Olaf; Ketelaar, Marjolijn; Keefer, Daniel J.; Wright, Virginia; Butler, Jane; Ada, Louise; Maher, Carol; Reid, Sharon J.; Wright, Marilyn; Dalziel, Blythe; Wiart, Lesley; Fowler, Eileen; Unnithan, Viswanath B.; Maltais, Désirée B.; Berg-Emons, Rita van den; Takken, Tim

doi:10.1111/j.1469-8749.2010.03899.x

Cited by 51 publications

(55 citation statements)

References 45 publications

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“…This technique is a widely used and accepted method for reaching consensus [9]. It is commonly used in health and social sciences research [10] and has been previously used in adolescent health panels [8,11,12]. The Delphi technique is defined as "a group process used to collect the opinions of experts on a particular subject" [13].…”

Section: Methodsmentioning

confidence: 99%

Key Elements for, and Indicators of, a Successful Transition: An International Delphi Study

Surı́s

Akré

2015

Journal of Adolescent Health

213

172

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Section: Methodsmentioning

confidence: 99%

Key Elements for, and Indicators of, a Successful Transition: An International Delphi Study

Surı́s

Akré

2015

Journal of Adolescent Health

213

172

View full text Add to dashboard Cite

“…All experts rated each outcome measure on a 10-point scale for four different topics (i.e., safety, suitability, user friendliness, and overall rating). These four topics were chosen based on their previous use in a comparable Delphi of fitness outcomes for children with cerebral palsy (11). Moreover, the experts were asked for additional information about the clinimetric properties of the listed tests.…”

Section: Methodsmentioning

confidence: 99%

Proposal for a Candidate Core Set of Fitness and Strength Tests for Patients with Childhood or Adult Idiopathic Inflammatory Myopathies

Stap¹,

Rider²,

Alexanderson³

et al. 2015

J Rheumatol

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OBJECTIVES Currently there are no evidence-based recommendations regarding which fitness and strength tests to use for patients with childhood or adult idiopathic inflammatory myopathies (IIM). This hinders clinicians and researchers in choosing the appropriate fitness- or muscle strength-related outcome measures for these patients. Through a Delphi survey, we aimed to identify a candidate core-set of fitness and strength tests for children and adults with IIM. METHODS Fifteen experts participated in a Delphi survey that consisted of five stages to achieve a consensus. Using an extensive search of published literature and through the expertise of the experts, a candidate core-set based on expert opinion and clinimetric properties was developed. Members of the International Myositis Assessment and Clinical Studies Group (IMACS) were invited to review this candidate core-set during the final stage, which led to a final candidate core-set. RESULTS A core-set of fitness- and strength-related outcome measures was identified for children and adults with IIM. For both children and adults, different tests were identified and selected for maximal aerobic fitness, submaximal aerobic fitness, anaerobic fitness, muscle strength tests and muscle function tests. CONCLUSIONS The core-set of fitness and strength-related outcome measures provided by this expert consensus process will assist practitioners and researchers in deciding which tests to use in IIM patients. This will improve the uniformity of fitness and strength tests across studies, thereby facilitating the comparison of study results and therapeutic exercise program outcomes among patients with IIM.

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“…rESultS the study population for the "best test performance and feasibility study" (study 1) comprised 13 children (9 boys, 4 girls), mean age 13.4 (age range 8-17) years. the study population for the "reliability study" (study 2) comprised 24 children (13 boys, 11 girls), mean age 14.8 (age range [8][9][10][11][12][13][14][15][16][17][18][19] years. the children in study 1 were different children from those in study 2. children's age, height, weight, body mass index (BmI), fat-free mass, lesion level (classified according to American Spinal Injury Association (ASIA) guidelines (24)) and ambulation level according to Hoffer adapted by Schoenmakers et al (25) are shown in table I.…”

Section: Reliability Study (Study 2)mentioning

confidence: 99%

Arm cranking versus wheelchair propulsion for testing aerobic fitness in children with spina bifida who are wheelchair dependent

Bloemen

Groot²,

Backx³

et al. 2015

J Rehabil Med

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Objective: To determine the best test performance and feasibility using a Graded Arm Cranking Test vs a Graded Wheelchair Propulsion Test in young people with spina bifida who use a wheelchair, and to determine the reliability of the best test. Design: Validity and reliability study. Subjects: Young people with spina bifida who use a wheelchair. Methods: Physiological responses were measured during a Graded Arm Cranking Test and a Graded Wheelchair Propulsion Test using a heart rate monitor and calibrated mobile gas analysis system (Cortex Metamax). For validity, peak oxygen uptake (VO 2peak ) and peak heart rate (HR peak ) were compared using paired t-tests. For reliability, the intraclass correlation coefficients, standard error of measurement, and standard detectable change were calculated. Results: VO 2peak and HR peak were higher during wheelchair propulsion compared with arm cranking (23.1 vs 19.5 ml/ kg/min, p = 0.11; 165 vs 150 beats/min, p < 0.05). Reliability of wheelchair propulsion showed high intra-class correlation coefficients (ICCs) for both VO 2peak (ICC = 0.93) and HR peak (ICC = 0.90).Conclusion: This pilot study shows higher HR peak and a tendency to higher VO 2peak in young people with spina bifida who are using a wheelchair when tested during wheelchair propulsion compared with arm cranking. Wheelchair propulsion showed good reliability. We recommend performing a wheelchair propulsion test for aerobic fitness testing in this population.

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Identification of a core set of exercise tests for children and adolescents with cerebral palsy: a Delphi survey of researchers and clinicians

Cited by 51 publications

References 45 publications

Key Elements for, and Indicators of, a Successful Transition: An International Delphi Study

Key Elements for, and Indicators of, a Successful Transition: An International Delphi Study

Proposal for a Candidate Core Set of Fitness and Strength Tests for Patients with Childhood or Adult Idiopathic Inflammatory Myopathies

Arm cranking versus wheelchair propulsion for testing aerobic fitness in children with spina bifida who are wheelchair dependent

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