Identification and Determination of Dimensions of Health-Related Quality of Life for Cancer Patients in Routine Care – A Qualitative Study

Schrage, Theresa; Görlach, Mirja; Schulz, Holger; Bleich, Christiane

doi:10.3389/fpsyg.2022.824099

Cited by 3 publications

(8 citation statements)

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“…Therefore, educating these patients about tension and depression management techniques can improve their mental state, reduce the likelihood of high-risk behaviors, and contribute to their dignity. 33 On a similar note, Wong, et al reported that end-stage patients suffer from severe depression and have suicidal thoughts; caregivers can provide these patients with emotional and mental support to reduce their depression and help them manage their psychological tension. 34 Dealing with their feelings of shame and guilt is a major contributory factor in managing psychological tension in patients who attempted suicide.…”

Section: Discussionmentioning

confidence: 98%

Psychiatric nurses’ perception of dignity in patients who attempted suicide

et al. 2023

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Background Maintaining the dignity of patients who attempted suicide is one of the caregivers’ main ethical duties. Yet, in many cases, these patients are not treated with dignity. The concept of dignity is abstract, and there is no research on the dignity of suicidal patients. So, the present study is done to investigate psychiatric nurses’ perception of dignity in patients who attempted suicide. Objective The present study explores the concept of dignity in patients who attempted suicide from the perspective of psychiatric nurses. Research design The present study is a qualitative, descriptive work of research Participants and research context A total of 20 psychiatric nurses from 2 hospitals affiliated with a university of medical sciences in the southeast of Iran were selected via purposeful sampling. Ethical considerations The Research Ethics Committee of the Hamadan University of Medical Sciences approved the study’s protocol, and ethical principles were followed in general. Findings From the findings of the study, three main themes, namely “ respect for personal; identity,” “management of psychological tension,” and “compassion-focused therapy,” with 12 sub-themes were extracted. Discussion and conclusion In the perspective of caregivers, patients who attempted suicide need to be cared for in supportive environments with compassionate and respectful behaviors to control their psychological tensions. These conditions would maintain such patients’ dignity and result in appropriate behavioral outcomes. Policy-makers and administrators can use the present study’s findings to create an appropriate clinical environment in which the dignity of patients who attempted suicide is properly maintained.

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Section: Discussionmentioning

confidence: 98%

Psychiatric nurses’ perception of dignity in patients who attempted suicide

et al. 2023

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“…With the present study, we aimed to evaluate the HrQoL measurement for use in oncological patients in the clinical routine developed in a previous study (Schrage et al, 2022 ). The secondary aim was the reduction to one item per dimension.…”

Section: Discussionmentioning

confidence: 99%

“…This implies that Resources is a strong factor to HrQoL, contrary to the rare occurrence in other HrQoL instruments. Additionally, it serves the necessity often called for to determine the need for support in patients and therefore being able to infer actions by clinicians (Anatchkova et al, 2018 ; Nguyen et al, 2021 ; Schrage et al, 2022 ). The additional latent factor level in the modified model still entails the original six latent factors, which are directly connected to the according items.…”

Section: Discussionmentioning

confidence: 99%

“…On the basis of the previous qualitative study (Schrage et al, 2022 ), hierarchical confirmatory factor analyses (Greenhalgh et al, 2004 ) were conducted to test the factor structure of the instrument. The sample size is sufficient for this analysis (Mundfrom et al, 2005 ).…”

Section: Methodsmentioning

confidence: 99%

“…We have recently developed a short instrument measuring HrQoL in cancer patients, but it still needs psychometrical testing (Schrage et al, 2022 ). The instrument was developed using qualitative analysis of interviews and focus groups with patients and HCPs, and an expert discussion.…”

Section: Introductionmentioning

confidence: 99%

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Evaluation of a short instrument for measuring health-related quality of life in oncological patients in routine care (HELP-6): an observational study

et al. 2023

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PurposePatient-reported outcomes have not been sufficiently implemented into the routine care of cancer patients because the existing instruments are often too long and complex or not cancer-specific. The aim of this study is the determination of psychometric properties and item reduction of a newly developed health-related quality of life (HrQoL) questionnaire for use in oncological clinical routines.MethodsThis observational study with a repeated measurements design included oncological inpatients and outpatients. A total of 630 patients participated at the first point of measurement and 404 at the second point of measurement. To evaluate the instrument, we conducted hierarchical confirmative factor analyses and for further validation correlated the resulting factors with standardized and validated HrQoL measurements. Test–retest reliability and responsiveness to change were tested.ResultsThe developed questionnaire “HELP-6” (“Hamburg Inventory for Measuring Quality of Life in Oncological Patients”) has a six-factor structure and has moderate-to-good convergent validity (r= −0.25 –−0.68). Test–retest reliability was moderate-to-good (r =0.56−0.81, p < 0.001). Indications for responsiveness to change were found for three dimensions. The final version of the questionnaire HELP-6 has six dimensions with one item each.ConclusionWith the HELP-6 instrument for measuring HrQoL in cancer patients, we provide a short and practical patient-reported outcome instrument. Though responsiveness to change could not be confirmed for all dimensions in this study, the HELP-6 includes time-efficient completion and evaluation and is informative in relevant HrQoL dimensions of cancer patients. Therefore, the HELP-6 poses an important addition to inpatient and outpatient routine cancer care.Trial registrationThis study was registered at Open Science Framework (https://osf.io/y7xce/), on 9 June 2018.

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Patients’ perspectives on the quality of care of a new complex psycho-oncological care programme in Germany – external mixed methods evaluation results

Cecon

Salm

Pfaff

et al. 2023

BMC Health Serv Res

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Background Guideline-compliant provision of psycho-oncological (PO) care is still challenging in Germany. Hence, a new care programme, called integrated cross-sectoral psycho-oncology (isPO), was implemented to improve the integration of needs-oriented PO care. Quality of care (QoC) was externally evaluated from the patient’s perspective. We aim to gain insight into patients’ experiences with isPO and how their assessment affects relevant patient-reported outcomes (anxiety and depression, health status, and work ability). Methods An explanatory, sequential mixed-methods design was applied. Patients were surveyed twice during their 1-year care trajectory: after 3 (T1) and 12 (T2) months. Data sets were matched using pseudonyms. Care documentation data, including sociodemographic characteristics and the primary outcome variable (anxiety and depression), were matched. In the survey, patients rated their satisfaction with respective isPO service providers and the programme in general (QoC). Health status (EORTC-QLQ-C30) and work ability (WAS) were measured. Descriptive analyses and t-tests for dependent samples were conducted to assess changes in outcome variables over time. Linear regression analyses were conducted to assess whether care satisfaction predicted outcome variables. Patients who completed their isPO care trajectory were asked to participate in semi-structured telephone interviews to share their experiences. Purposeful sampling was applied. All 23 interviews were audiotaped, transcribed, and analysed via content-structuring method. Results Patients reported medium-to-high satisfaction with their isPO care. All patient-related outcomes significantly improved over time and QoC measures predicted those outcomes. Needs orientation (e.g., care intensity or mode of delivery) was perceived as essential for high QoC, and outpatient care with fixed contact persons as highly important for care continuity. Furthermore, patients identified programme optimisation needs, such as period of care or extension of care to relatives. Conclusions Patients assessed the isPO programme’s QoC positively. They identified facilitators for QoC and optimisation needs. Therefore, data on QoC can function as an indicator for a programme’s feasibility and maturity within care reality. As patients’ care satisfaction positively influences important patient-related outcomes, it may be routinely considered for quality management. Based on patients’ perspectives, isPO seems to be recommendable for routine psycho-oncological care in Germany, if ongoing programme optimisation within structured quality management is guaranteed. Trial registration The study was registered in the German Clinical Trials Register (No. DRKS00015326) on 30.10.2018.

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Identification and Determination of Dimensions of Health-Related Quality of Life for Cancer Patients in Routine Care – A Qualitative Study

Cited by 3 publications

References 37 publications

Psychiatric nurses’ perception of dignity in patients who attempted suicide

Psychiatric nurses’ perception of dignity in patients who attempted suicide

Evaluation of a short instrument for measuring health-related quality of life in oncological patients in routine care (HELP-6): an observational study

Patients’ perspectives on the quality of care of a new complex psycho-oncological care programme in Germany – external mixed methods evaluation results

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