ICF in neurology: Functioning and disability in patients with migraine, myasthenia gravis and Parkinson's disease

Leonardi, Matilde; Meucci, Paolo; Ajovalasit, Daniela; Albanesi, Francesca; Černiauskaitė, Milda; Invernizzi, Veronica; Lembo, Rosalba; Quintas, Rui; Sattin, Davide; Carella, F.; Romito, Luigi; Soliveri, Paola; Bussone, Gennaro; D’Amico, Domenico; Maggi, Lorenzo; Mantegazza, Renato; Raggi, Alberto

doi:10.3109/09638280903317732

Cited by 26 publications

(21 citation statements)

References 23 publications

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“…To our knowledge, ICF-derived information has been reported in only two papers [6,7]. In the first study, difficulties in activities and participation were explained more by functional impairments than by the effect of environmental factors but, nevertheless, there was a clear difference between capacity and performance indexes, thus giving evidence for a facilitating effect of the environment.…”

Section: Introductionmentioning

confidence: 83%

Functioning and disability in migraine

Leonardi

Raggi

Ajovalasit

et al. 2010

Disability and Rehabilitation

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Section: Introductionmentioning

confidence: 83%

Functioning and disability in migraine

Leonardi

Raggi

Ajovalasit

et al. 2010

Disability and Rehabilitation

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“…This may reduce the richness of disability profiles, but enables synthetic information to be derived on impairments, limitations and EF, such as the 'extension' and 'severity' indexes that are useful in describing ICF-based data in populations of adults and children with disabilities (Leonardi et al, 2009a(Leonardi et al, , 2009b(Leonardi et al, , 2012bRaggi et al, 2010aRaggi et al, , 2010bRaggi et al, , 2011Giovannetti et al, 2013). This may reduce the richness of disability profiles, but enables synthetic information to be derived on impairments, limitations and EF, such as the 'extension' and 'severity' indexes that are useful in describing ICF-based data in populations of adults and children with disabilities (Leonardi et al, 2009a(Leonardi et al, , 2009b(Leonardi et al, , 2012bRaggi et al, 2010aRaggi et al, , 2010bRaggi et al, , 2011Giovannetti et al, 2013).…”

Section: Discussionmentioning

confidence: 99%

The development of a structured schedule for collecting ICF-CY-based information on disability in school and preschool children

Raggi¹,

Meucci²,

Leonardi³

et al. 2014

International Journal of Rehabilitation Research

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The aim of this study was to present the development of an instrument to collect disability information in school settings, based on the International Classification of Functioning, Disability and Health, Children and Youth version (ICF-CY): the ICF-PEI Schedule (ICF-CY-based schedule for Individualized Education Plan). Through an action-research process, a group of 14 teachers participated in the definition of a comprehensive list of ICF-CY categories, which were then used in a pilot test: categories relevant in at least 30% of the cases were retained. Teachers also reported the most relevant difficulties they had in using the ICF-CY questionnaires: these were discussed in plenary. On the basis of a pilot test and teachers' difficulties, a set of structured, easy to use and feasible questions for the school context were developed. A total of 118 ICF-CY categories were included in the preliminary list and 67 were retained. The most relevant difficulties in using ICF-CY questionnaires were as follows: obtaining reliable information on bodily impairments; using capacity in activities and participation; using qualifiers in 'borderline situations'; and identifying systems and policies as barriers or facilitators. The ICF-PEI Schedule is composed of 62 items, with a simplified rating scale. Teachers are asked to rate performance, which is directly observed, and to address which environmental factors impact it; thus, environmental factor rating is simplified. The ICF-PEI Schedule was drafted as a feasible instrument for school settings to collect and exploit functioning and disability data. Teachers can fruitfully employ it to assist in the definition of educational objectives and verify them longitudinally.

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“…A count-based method, previously employed to analyze ICF-based data on functioning in clinical populations [11–15], was used, and for ICF domains of BF and A&P two indexes were developed: “extension” and “severity”. The first is the count of categories in which qualifiers 1–3 (describing the full range from mild-to-complete problems) were applied, whereas the second is the count of categories in which qualifiers 3 only (describing only the range of very severe to complete problems) were applied.…”

Section: Methodsmentioning

confidence: 99%

A Population Survey in Italy Based on the ICF Classification: Recognizing Persons with Severe Disability

Leonardi

Martinuzzi

Meucci

et al. 2012

The Scientific World Journal

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Aim of this paper is to describe functioning of subjects with “severe disability” collected with a protocol based on the International Classification of Functioning, Disability, and Health. It included sections on body functions and structures (BF and BS), activities and participation (A&P), and environmental factors (EF). In A&P, performance without personal support (WPS) was added to standard capacity and performance. Persons with severe disability were those reporting a number of very severe/complete problems in BF or in A&P-capacity superior to mean + 1SD. Correlations between BF and A&P and differences between capacity, performance-WPS, and performance were assessed with Spearman's coefficient. Out of 1051, 200 subjects were considered as severely disabled. Mild to moderate correlations between BF and A&P were reported (between 0.148 and 0.394 when the full range of impairments/limitations was taken into account; between 0.198 and 0.285 when only the severe impairments/limitations were taken into account); performance-WPS was less similar to performance than to capacity. Our approach enabled identifying subjects with “severe disability” and separating the effect of personal support from that of devices, policies, and service provision.

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ICF in neurology: Functioning and disability in patients with migraine, myasthenia gravis and Parkinson's disease

Abstract: Our study provided a description of functioning and disability domains in migraine, MG and PD and enabled to report the impact of EF in determining the actual disability experience.

Cited by 26 publications

References 23 publications

Functioning and disability in migraine

Functioning and disability in migraine

The development of a structured schedule for collecting ICF-CY-based information on disability in school and preschool children

A Population Survey in Italy Based on the ICF Classification: Recognizing Persons with Severe Disability

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