ICF-CY code set for infants with early delay and disabilities (EDD Code Set) for interdisciplinary assessment: a global experts survey

Abstract

The EDD Code Set with 82 essential ICF-CY categories could be useful in the initial team evaluation as a common language to describe functioning of infants less than three years of age with developmental delay/disabilities, with a more holistic view. The EDD Code Set including essential categories in activities and participation, body functions, body structures and environmental factors could be used to create a functional profile for each infant with special needs and to clarify the interaction of child and environment accounting for the child's functioning.

Mind the Gap: The New Special Educational Needs and Disability Legislation in England

“…Interdisciplinary approaches to disability have been consistently recommended as the most effective way of promoting full inclusion, representing an essential pillar of the ICF-CY theoretical framework (Clarke et al, 2011;Pan et al, 2015). The main structure of the ICF-CY itself (body functions and structures, activities and participation, and environmental factors) is based on the assumption that we cannot separate education, health, and social care issues when describing the functioning profile of a child, as suggested by the biopsychosocial and bioecological approaches to development.…”

Creating a Disability Variable for Children with Disability Using the WHO ICF-CY Classification System

“…Many studies have applied the functionality of ICF-CY to specific disorders, including cerebral palsy [10], muscular disorders [11,12], spina bifida [13], disability following brain tumours [14], chronic disorders [15], and disability following trauma [16]. Comparison of content with ICF-CY in other various instruments has been performed [17], and validation for core data sets for ICF-CY has begun [18,19] together with studies of ICF-CY functionality and code selection in specific clinical settings [20,21].…”

Linking the early development instrument with the ICF-CY

“…These groups of ICF-CY codes gathered for specific contextual situations, instead of a clear diagnosis have been designated as code-sets. Some examples of this type of research are the studies conducted by Elingsen and Simeonsson (2011) on the identification of ICF-3 CY code-sets for specific age groups, the study by Rowland et al (2012), which focused on the identification of sets of codes for children who rely on Augmentative and Alternative Communication (ACC) and the recent study by Pan, Hwang, Simeonsson, Lu and Liao (2015), describing the identification of an essential set of ICF-CY codes to be used in situations of Early Developmental Delay and Disabilities (EDD)a code-set for EDD. In all the above-mentioned studies, sets of ICF-CY codes from all three components of the classification (Body Functions and Structures, Activities and Participation and Environmental Factors) were identified by experts in each field of study and systematically and consensually recognised as essential for assessment and intervention.…”

“…In all the above-mentioned studies, sets of ICF-CY codes from all three components of the classification (Body Functions and Structures, Activities and Participation and Environmental Factors) were identified by experts in each field of study and systematically and consensually recognised as essential for assessment and intervention. According to Pan, Hwang, Simeonsson, Lu andLiao (2015, p.1047) 'The EDD code-set within the ICF-CY framework could serve as a common language in the collaborative problem-solving process with parents (…) could be used in a questionnaire or checklist format for a clearer description of functioning, in order to generate individual functioning profiles'. In this study we have considered the premise that code-sets can also be used to check whether currently used measures for assessment and intervention with children and young people are actually covering or assessing all the functioning dimensions that the experts have considered essential in the situation or context at stake, or if those measures need to be complemented with other sources of assessment, so that all essential areas of functioning are covered.…”