ICD Knowledge and Attitudes at End of Life in a Diverse and Vulnerable Patient Population

Berlacher, Mark; Abousaab, Carol; Chen, Christine; Suarez, Arlen; Garrett, Brenden E.; Badia, Rohit R; Newcomer, Kelley; Lee, Simon; Ayers, Colby; Sulistio, Melanie S.

doi:10.1353/hpu.2022.0138

Cited by 2 publications

(1 citation statement)

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“…In multiple studies interviewing patients with ICDs, the vast majority report never considering changing their ICD settings at the end of life or discussing their ICD settings with a clinician. 57,58 Patients should ideally be counselled on their options for ICD deactivation at the time of ICD implantation and at subsequent changes in their clinical status by their primary cardiologist or electrophysiologist. For more complex goals of care needs, secondary palliative care can assist with communication around ICD settings in chronic illness.…”

Section: Palliative Care For Shared Decision-making In Arrhythmiasmentioning

confidence: 99%

Expanding the Paradigm for Cardiovascular Palliative Care

Godfrey,

Kirkpatrick,

Kramer

et al. 2023

Circulation

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Cardiovascular disease (CVD) is the leading cause of death worldwide. Despite medical advances, patients with CVD experience high morbidity and mortality rates, affecting their quality of life and death. Among CVD conditions, palliative care has been studied mostly in patients with heart failure, where palliative care interventions have been associated with improvements in patient-centered outcomes, including quality of life, end-of-life care, and health care use. Although palliative care is now incorporated into the American Heart Association/American College of Cardiology/Heart Failure Society of America guidelines for heart failure, the role of palliative care for non–heart failure CVD remains uncertain. Across all causes of CVD, palliative care can play an important role in all domains of CVD care from initial diagnosis to terminal care. In addition to general cardiovascular palliative care practices applicable to all areas, disease-specific palliative care needs may warrant individualized palliative care models. In this review, we discuss the role of cardiovascular palliative care for ischemic heart disease, valvular disease, arrhythmias, peripheral artery disease, and adult congenital heart disease. Although there are multiple barriers to cardiovascular palliative care, we recommend a framework for studying and developing cardiovascular palliative care models to improve patient-centered goal-concordant care for this underserved patient population.

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Section: Palliative Care For Shared Decision-making In Arrhythmiasmentioning

confidence: 99%