IBD patients need in health quality of care ECCO consensus

Elkjær, Margarita; Moser, Gelson Aguiar da Silva; Reinisch, Walter; Durovicova, Dana; Lukáš, Milan; Vucelić, Boris; Wewer, Vibeke; Colombel, Jean Fréd́eric; Shuhaibar, M.; O’Moráin, Colm; Politi, Pierluigi; Odes, Selwyn; Bernklev, Tomm; Øresland, Tom; Nikulina, Inna; Belousova, Elena; Eijk, Ingrid van der; Munkholm, Pia

doi:10.1016/j.crohns.2008.02.001

Cited by 62 publications

(49 citation statements)

References 78 publications

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“…Recently, some studies have been applying marketing research strategies to assess patient satisfaction [11][12][13][14][15][16][17]. Like the pursuit of customer loyalty to products and services in the market, patient satisfaction is studied to evaluate the intentions of patient behavior to monitor and predict the return to service or to look for other providers.…”

Section: Introductionmentioning

confidence: 99%

Assessing overall patient satisfaction in inflammatory bowel disease using structural equation modeling

Soares

Marinho

Fernandes

et al. 2015

European Journal of Gastroenterology &Amp; Hepatology

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Section: Introductionmentioning

confidence: 99%

Assessing overall patient satisfaction in inflammatory bowel disease using structural equation modeling

Soares

Marinho

Fernandes

et al. 2015

European Journal of Gastroenterology &Amp; Hepatology

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“…Barlow et al reported that self-management interventions showed improved outcomes in relation to symptom reporting, psychological well-being, and healthcare resource use, but that education alone was less promising [13]. Optimizing quality of health care by improving information, increasing education and access to psychological analysis was reported as helping the patient understand the disease and to comply with its therapy, increasing quality of life, and reducing depression and anxiety [14]. A pre-post evaluation study that introduced a proactive IBD service found that the disease burden decreased, improving clinical outcomes [15].…”

Section: Introductionmentioning

confidence: 99%

Assessment of Inflammatory Bowel Disease Patient's Needs and Problems from a Nursing Perspective

et al. 2015

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Background: In this study, we aimed at assessing Inflammatory Bowel Disease patients' needs and current nursing practice to investigate to what extent consensus statements (European Crohn's and Colitis Organization) on the nursing roles in caring for patients with IBD concur with local practice. Methods: We used a mixed-method convergent design to combine quantitative data prospectively collected in the Swiss IBD cohort study and qualitative data from structured interviews with IBD healthcare experts. Symptoms, quality of life, and anxiety and depression scores were retrieved from physician charts and patient self-reported questionnaires. Descriptive analyses were performed based on quantitative and qualitative data. Results: 230 patients of a single center were included, 60% of patients were males, and median age was 40 (range 18-85). The prevalence of abdominal pain was 42%. Self-reported data were obtained from 75 out of 230 patients. General health was perceived significantly lower compared with the general population (p < 0.001). Prevalence of tiredness was 73%; sleep problems, 78%; issues related to work, 20%; sexual constraints, 35%; diarrhea, 67%; being afraid of not finding a bathroom, 42%; depression, 11%; and anxiety symptoms, 23%. According to experts' interviews, the consensus statements are found mostly relevant with many recommendations that are not yet realized in clinical practice. Conclusion: Identified prevalence may help clinicians in detecting patients at risk and improve patient management.

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“…This issue was addressed in a paper by the ECCO Quality of Health Care group, regarding optimization of quality of health care in IBD through one avenue of a consensus of simple guidelines for GP's [52] , and a booklet has been produced by the American Gastroenterology Association outlying IBD patient's self-management strategies through the use of "action plan tools" [53] . These documents however, were not found through the systematic review indicating the need for a broader exposure.…”

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confidence: 99%

Tools for primary care management of inflammatory bowel disease: Do they exist?

Bennett

Munkholm

Andrews

2015

WJG

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Healthcare systems throughout the world continue to face emerging challenges associated with chronic disease management. Due to the likely increase in chronic conditions in the future it is now vital that cooperation and support between specialists, generalists and primary health care physicians is conducted.Inflammatory bowel disease (IBD) is one such chronic disease. Despite specialist care being essential, much IBD care could and probably should be delivered in primary care with continued collaboration between all stakeholders. Whilst most primary care physicians only have few patients currently affected by IBD in their caseload, the proportion of patients with IBDrelated healthcare issues cared for in the primary care setting appears to be widespread. Data suggests however, that primary care physician's IBD knowledge and comfort in management is suboptimal. Current treatment guidelines for IBD are helpful but they are not designed for the primary care setting. Few nonexpert IBD management tools or guidelines exist compared with those used for other chronic diseases such as asthma and scant data have been published regarding the usefulness of such tools including IBD action plans and associated supportive literature. The purpose of this review is to investigate what nonspecialist tools, action plans or guidelines for IBD are published in readily searchable medical literature and compare these to those which exist for other chronic conditions. Core tip: Much inflammatory bowel disease (IBD) care could be delivered in the outpatient setting by primary care physicians. Whilst guidelines for IBD treatment exist, they are intended to support specialist practice and are not designed to use in the primary care setting. Our systematic reviewed found that a striking paucity of IBD outpatient supportive/educational tools for primary healthcare practitioners currently exists. This is despite good evidence of acceptability and usefulness of such tools in other chronic diseases. TOPIC HIGHLIGHT

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IBD patients need in health quality of care ECCO consensus

Cited by 62 publications

References 78 publications

Assessing overall patient satisfaction in inflammatory bowel disease using structural equation modeling

Assessing overall patient satisfaction in inflammatory bowel disease using structural equation modeling

Assessment of Inflammatory Bowel Disease Patient's Needs and Problems from a Nursing Perspective

Tools for primary care management of inflammatory bowel disease: Do they exist?

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