IAGG/IAGG GARN International Survey of End-of-Life Care in Nursing Homes

Wallace, Cara L.; Swagerty, Daniel; Barbagallo, Mario; Vellas, Bruno; Bong, Heung; Holmerová, Iva; Dong, Birong; Koopmans, Raymond T.C.M.; Cruz-Jentoft, Alfonso J.; Robledo, Luis Miguel Gutiérrez; Moreno, Juan Carlos Duque; Hajjar, Ramzi R.; Woo, Jean; Arai, Hidenori; Okochi, Jiro; Visvanathan, Renuka; Abdul–Rahman, Samia A.; Goel, Ashish; Moser, Andrea; Rolland, Yves; Abbatecola, Angela Marie; Russo, Marcello; Morley, John E.

doi:10.1016/j.jamda.2017.04.002

Cited by 12 publications

(5 citation statements)

References 14 publications

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“…Moreover, concerns regarding the competence of care home staff for the delivery of palliative and end-of-life care was underscored. This echoes previous studies, that staff education is a cornerstone for the provision of quality palliative and end-of-life care [ 18 , 28 , 29 , 30 ]. In the Delphi study conducted by Temkin-Greener and associates, discrepancies between the ratings of importance and feasibility regarding the palliative care practice guidelines in care homes were also noted, because some of the expectations were out of the care home control [ 12 ].…”

Section: Discussionsupporting

confidence: 86%

“…The structure of care domain clarifies the elements that should be in place at an organizational level to facilitate the development and implementation of palliative and end-of-life care in a care home setting [ 25 ]. The process of the care domain provides guidance on the purposes and crucial elements of care [ 18 , 26 ].…”

Section: Discussionmentioning

confidence: 99%

“…A local public opinion survey also showed that only a small proportion (16.2%–34.7%) of respondents preferred care homes as a place of death [ 15 , 16 ]. Residents whose health conditions have deteriorated are generally sent to hospitals for medical care due to concerns of legal liability and inadequate medical expertise and facilities in care homes [ 17 , 18 ] Therefore, the existing guidelines and framework developed in other regions might have limited applicability to Hong Kong.…”

Section: Introductionmentioning

confidence: 99%

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Key Components for the Delivery of Palliative and End-of-Life Care in Care Homes in Hong Kong: A Modified Delphi Study

Chan

Chan²,

Man³

et al. 2022

IJERPH

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Integrating the palliative care approach into care home service to address the complex care needs of older adults with frailty or advanced diseases has been increasingly recognized. However, such a service is underdeveloped in Hong Kong owing to socio-cultural and legal concerns. We adopted a modified Delphi study design to identify the key components for the delivery of palliative and end-of-life care in care home settings for the local context. It was an iterative staged method to assimilate views of experts in aged care, palliative care, and care home management. A multidisciplinary expert panel of 18 members consented to participate in the study. They rated their level of agreement with 61 candidate statements identified through a scoping review in two rounds of anonymous surveys. The steering group revised the statements in light of the survey findings. Eventually, the finalized list included 28 key statements concerning structure and process of care in seven domains, namely policy and infrastructure, education, assessment, symptom management, communication, care for dying patients, and family support. The findings of this study underscored concerns regarding the feasibility of statements devised at different levels of palliative care development. This list would be instrumental for regions where the development of palliative and end-of-life care services in care home setting is at an initial stage.

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Section: Discussionsupporting

confidence: 86%

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Key Components for the Delivery of Palliative and End-of-Life Care in Care Homes in Hong Kong: A Modified Delphi Study

Chan

Chan²,

Man³

et al. 2022

IJERPH

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“…Moreover, this positive trend was mainly limited to North America (n=11) 2,13,[19][20][21]27,31,32,[34][35][36] and Northern Europe (n=3); 30,33,37 while examples from other countries are few. 4,14 Differences in the definition of palliative care 53 and NH 54 exist across countries. Culture may influence healthcare professionals' involvement in and the structure of EOL conversations, however, our findings suggest that any family involvement in EOL conversations has a positive effect regardless the lack of cohesive definitions and differences across countries.…”

Section: Discussionmentioning

confidence: 99%

Association Between End-of-Life Conversations in Nursing Homes and End-of-Life Care Outcomes: A Systematic Review and Meta-analysis

Gonella

Basso²,

Dimonte

et al. 2019

Journal of the American Medical Directors Association

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“…JAMDA has been an increasingly valuable outlet for such information, with at least nine other papers reporting data from multiple countries in the recent past. [9][10][11][12][13][14][15][16][17] That said, it is necessary that such research be mindful of important differences in culture and the organization of health care delivery if the results and interpretations are to be valid and optimally informative. In addition, certain methodological considerations are especially relevant for research comparing international data.…”

mentioning

confidence: 99%

It's Not a Small World After All

Zimmerman

Steen

2018

Journal of the American Medical Directors Association

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The article by Morris and colleagues in this issue of JAMDA, entitled "Hearing the Voice of the Resident in Long-Term Care Facilities-an Internationally Based Approach to Assessing Quality of Life," 1 underscores the importance of including residents' perspectives regarding the care they receive. InterRAI, an international research collaborative, developed a Self-Report Quality of Life Survey for Long-Term Care Facilities (SQOL-LTCF) which assesses resident perspectives on subscales reflecting social life, personal control, food, caring staff, and staff responsiveness. The results are based on reports of more than 16,000 residents who resided in 355 LTCFs; 44% of the respondents are from Belgium (residing in 70% of the LTCFs in the study), 32% are from Canada, 21% are from the United States, and fewer than 1% are from each of Poland, Estonia, South Africa, the Czech Republic, and Australia. Based on the distributions of the data, the researchers collapsed the scores (i.e., never/rarely; sometimes; most of the time; always); established benchmark standards for subscales; and compared scores to a single item (home-likeness) that was considered to represent an overall measure of "personal quality of life." This study is valuable in its findings as well as in the issues it raises inherent to cross-cultural research: with long-term care a reality around the world, to what extent is research on care systems broadly generalizable? Obtaining perspectives directly from residents is important, and since 2010 has been a standard part of screening in the U.S. Minimum Data Set 3.0 Resident Assessment Instrument (MDS 3.0 RAI) for nursing homes. 2,3 However, not all residents are able to self-report, and in the interRAI effort, those with more severe cognitive impairment were excluded from participation. Although it may be challenging to "hear the voice" of these

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IAGG/IAGG GARN International Survey of End-of-Life Care in Nursing Homes

Cited by 12 publications

References 14 publications

Key Components for the Delivery of Palliative and End-of-Life Care in Care Homes in Hong Kong: A Modified Delphi Study

Key Components for the Delivery of Palliative and End-of-Life Care in Care Homes in Hong Kong: A Modified Delphi Study

Association Between End-of-Life Conversations in Nursing Homes and End-of-Life Care Outcomes: A Systematic Review and Meta-analysis

It's Not a Small World After All

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